Life expectancy

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Life expectancy

by Gert6868 on Fri Sep 30, 2011 11:15 PM

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My hsband was diagnoied with Carcinoid Syndrome last June, BUT.... His primary cannot be found and there is nothing they can do for him... Only thing that is being done is the Sandostatin shot once a month.. My biggest concern is Life expectany.. What can we expect???

RE: Life expectancy

by lloyd1 on Sat Oct 01, 2011 09:51 PM

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On Sep 30, 2011 11:15 PM Gert6868 wrote:

My hsband was diagnoied with Carcinoid Syndrome last June, BUT.... His primary cannot be found and there is nothing they can do for him... Only thing that is being done is the Sandostatin shot once a month.. My biggest concern is Life expectany.. What can we expect???

Carcinoid is a very slow growing cancer.Some people live 10 -20 years after being diagnosed.A testimony to that is Sunny Carney.You can read her blog at sunnycarneycarcinoid.

RE: Life expectancy

by Sam77 on Sat Oct 08, 2011 12:50 PM

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Have you tried another hospital or speciaists that deals with carcinoid?

I was diagnosed in June 2008 with unknown primary but with liver mets (metatisized to liver)

I have had so many scans I cannot remember, (omg I cant remember lol), my primary was finally found in my small bowel. I was transferrred to another ospital as that one where I was being treated did not specialize in this rare form of cancer.

I am not sure of your history, but research, research, research, maybe he will find something or they will find te primary.

Prayers to you and youy husband!

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