Phase ll Clinical Trial of BMS-936558 working on my Mom

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Phase ll Clinical Trial of BMS-936558 working on my Mom

by solovemymom on Wed Nov 02, 2011 05:32 PM

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My Mom is particpating in a phase ll clinical trial of antibody BMS-936558 and I'm praising God and thrilled to report it is shrinking her tumors significantly !!! The antibody drug is administered intraveneoulsy every 3 weeks for 1 hour and she has CT scans every 6 weeks. She has been on the trial for only 12 weeks and some tumors are no longer visible and others have shrunk 50-70% !!! She has almost no side effects other than being a little tired once in awhile ! She is 67 years old and still works and is feeling well ! This trial is still recruiting particpants in many areas but is only accepting a total of approximately 150 patients across all sites. One of the prerequisites is a patient must have been on at least 1 prior Anti-Angiogenic therapy but not more than 3. Examples include Sutent, Nexavar & Votrient. Go to ClincialTrials.gov and search for Identifier NCT01354431 to read more about this amazing trial and find participating study locations.

RE: Phase ll Clinical Trial of BMS-936558 working on my Mom

by Lenswife on Tue Nov 08, 2011 11:58 AM

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After two cycles of sutent (mixed results) and three months on afinitor (tumor growth, high blood sugar, weight loss) my husband had his first infusion of this drug on Sept. 2nd. Since then he has gained back 40+lbs, blood levels have all returned to normal and last ct scan showed shrinkage in tumors in both his lungs and liver. A few are no longer visible.

RE: Phase ll Clinical Trial of BMS-936558 working on my Mom

by solovemymom on Thu Nov 10, 2011 06:39 PM

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Dear Lenswife,

I'm sooo Happy to hear your Husband is doing so well on the BMS-936558 Clinical Trial also !!! My Mom was previously on Sutent which landed her in hospital after 10 days due to terrible side effects, Nexavar (shrunk tumors for 10 months) and Votrient which didn't work for her. We're so very Thankful for this Trial and I just want as many people with Kidney Cancer to benefit from it as possible !!! I'm praying your Husband will continue to do Fantastic on it !!!

Cherri

RE: Phase ll Clinical Trial of BMS-936558 working on my Mom

by Postime on Mon Nov 28, 2011 11:50 PM

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Hi,

I am about to start my treatments as part of the trail on 12/9/11. From what I hear this is very promising news. I was on panzopanib for over 24 months on another study before my tumors grew. I will pray for everyone and keep you posted on my results.

RE: Phase ll Clinical Trial of BMS-936558 working on my Mom

by Jimhoff1029 on Fri Dec 09, 2011 01:18 PM

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Postime,

I just started on the PMS trail Dec. 1 in Charleston, S.C.  will certainly keep you informed on my progress as we go along. Would love for this to work on both of us. I've been thru all of the other drugs, sutenet, Afinitor and votrient all with side affects. Hopefully the side effects of this drug will be minimal. So far, everything I have read seems to be positive. Lets keep in touch.

Thanks,

Jim

RE: Phase ll Clinical Trial of BMS-936558 working on my Mom

by hopen on Thu Jan 05, 2012 03:15 PM

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Wow amazing!!!!  I lost my mother in August of 2010, but it gives me such hope to see new treatments working for those of you fighting!  Will definately have to spread this around the few cancer groups I belong to, wonderful news :)

Hope

 

RE: Phase ll Clinical Trial of BMS-936558 working on my Mom

by Jimhoff1029 on Fri Jan 06, 2012 09:12 PM

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Have my first Cat scan coming up 01/12/12, since I began this trial. I hear there might not be much change base on the amount of time I've been on the trial. They say it sometimes takes 3 to 5 sessions before any improvement and or progression shows up on the scan but we"ll see.  I've only had 2 sessions. I'll keep you informed. 

RE: Phase ll Clinical Trial of BMS-936558 working on my Mom

by hopen on Mon Jan 09, 2012 09:36 PM

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I will be very interested to hear how things are going!!  How are the side effects? 

Hope

RE: Phase ll Clinical Trial of BMS-936558 working on my Mom

by Midmomom on Tue Jan 10, 2012 06:40 PM

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Could you please tell me what costs are associated with treatment in this clinical trial?  Thanks!

RE: Phase ll Clinical Trial of BMS-936558 working on my Mom

by Jimhoff1029 on Tue Jan 10, 2012 09:49 PM

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There really hasn't been any side effects that I can tell after 2 treatments, which is great! I had side effects with all the other medicines but this is a little different pathway to the cancer thru immunotherapy. All the people that have posted about this trial have said their side effects were pretty much nonexistent. 

The cost of this trial is like anything else if you have Medical  insurance. I'm sure there are other financial assistance programs but I'm not aware of them. The only thing that is paid for is the medicine they inject into the IV bag. Everything else like cat scans, blood work, office visits, etc, is billed to your insurance company or Medicare.

Will keep you informed,

Jim

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