Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)

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RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)

by drowen on Thu Mar 12, 2015 11:59 AM

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I reply every year or so to this blog. I hope everyone gets encouraged by the good results reported. My son 45 years old has been GBM free for 9 years. Diagnosed and treated at MD Anderson, standard of care first: surgery, Temador/ Radiation, then experimental , CRT-11 and Avastin for one year. Numerous new technologies and methodologies becoming available, good luck and God Bless. Don Owen

RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)

by turtle14 on Fri Mar 13, 2015 12:27 PM

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Thats great to hear Don, my daughter is 20 years old and we are looking for that kind of treament that could save her life. We all know standard treatment is not good enough. Thanks for sharing, Paryese

RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)

by Dollym on Sat Mar 14, 2015 04:21 AM

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On Feb 08, 2011 6:45 AM sarahsmiles wrote:

I was 42 when I was diagnosed, so the age group that we are told is typical (over 50's) doesn't always conform. I am a 6 year survivor and through natural therapies and nutritional change have managed to shrink the tumor down to almos nothing. My MRI's are now annually and I am living a healthy and full life. If anyone is interested in the type of therapies I have been doing, please drop me a line. If all i was given this disease for was to help others, that's what I intend to do.

Could you please share what therapies are you using. My husband is also 42. Thanks in advance for your help. Dj Maan

RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)

by Seegz on Sat Mar 14, 2015 07:12 PM

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On Mar 14, 2015 4:21 AM Dollym wrote:

On Feb 08, 2011 6:45 AM sarahsmiles wrote:

I was 42 when I was diagnosed, so the age group that we are told is typical (over 50's) doesn't always conform. I am a 6 year survivor and through natural therapies and nutritional change have managed to shrink the tumor down to almos nothing. My MRI's are now annually and I am living a healthy and full life. If anyone is interested in the type of therapies I have been doing, please drop me a line. If all i was given this disease for was to help others, that's what I intend to do.

Could you please share what therapies are you using. My husband is also 42. Thanks in advance for your help. Dj Maan
Yes please share anything you have done that you believe has helped! I'm sure all are interested to learn new possibilities! Thanks and best regards Seegz

RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)

by turtle14 on Sun Mar 15, 2015 03:15 AM

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My daughter has change her diet to vegan.Intere sted in hearing what you did?

RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)

by Lisatrpcevski on Sun Mar 15, 2015 11:36 AM

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Hello I would love to hear how you have dealt with this horrible disease in terms of treatment. My mum DX december 2014, full resection January 2015, just finished first round chemo and rt. Next scan April . Love to hear your thoughts of what we should do from here in terms of diet or alternative therapies .... Lisa

RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)

by Redmist on Sun Mar 15, 2015 01:21 PM

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Don: Thanks for passing this on. My wife was diagnosed on 11/2/10 with GBM. Resection on 11/9/10 followed by chemo and Temodar until 2 tumors presented on 5/17/11. She has been on Avastin ever since, nothing else. She turned 60 on 2/1/15. Her MRIs show no presence of a tumor. I'm now concerned the Avastin is taking it's toll and tiring her out too much to do much of anything. Is your son now off everything including Avastin?

Thanks.

RGE

RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)

by priya1234 on Sun Mar 15, 2015 01:40 PM

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On Mar 14, 2015 4:21 AM Dollym wrote:

On Feb 08, 2011 6:45 AM sarahsmiles wrote:

I was 42 when I was diagnosed, so the age group that we are told is typical (over 50's) doesn't always conform. I am a 6 year survivor and through natural therapies and nutritional change have managed to shrink the tumor down to almos nothing. My MRI's are now annually and I am living a healthy and full life. If anyone is interested in the type of therapies I have been doing, please drop me a line. If all i was given this disease for was to help others, that's what I intend to do.

Could you please share what therapies are you using. My husband is also 42. Thanks in advance for your help. Dj Maan
Can you please enlighten me with this therapy,as my father who is 57 years old is also suffering with this disease.

RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)

by drowen on Sun Mar 15, 2015 10:00 PM

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My son stayed on the experimental treatment one year. The others in his group did not-about 12-15 people (ave 3 months)-all are gone. Stay on the treatments as long as you can. Tired is preferred to gone. As with most cancer blogs-NEVER do the so-called natural therapies as a replacement for modern clinical care. MRI's and CT scans can not determine type of brain cancer- only a biopsy. Many non-biopsed brain cancers are mis-diagnosed as GBM's - therefore "successful" treatments - may actually be very slow growing brain tumors of other types. We will be successful in defeating this disease- Please do your home work on the Internet- find the experimental programs--get agressive- get in the programs. Never gice up more and more cases will be in re-mission or even cured!

RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)

by redhotnana on Sun Mar 15, 2015 11:21 PM

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In this very issue of the CC Newsletter there is an article about using a tetanus shot in conjunction with other therapy; half the people in the experiment outlived their original prognoses, and one person is still living NINE years after, with NO sign of the tumor! Please check it out--looks really promising!

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