AFTER WHIPPLE

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After Whipple

by morepain on Thu Jan 05, 2012 10:39 PM

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Why don't the docs tell patients about the extreme pain they may have after surgery? We thought my bro-in-law was past the pain, but he's worse now than before, and reading all these posts, he may be in pain for some time. He's been in the hospital a couple times trying to figure what's wrong, and like everyone else, they haven't found anything on the scans. At least he could have had a heads up if he knew to read this site.

 

RE: AFTER WHIPPLE

by rose108 on Fri Jan 06, 2012 12:36 AM

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I think doctors don't tell you because they don't know.  Unless you have felt the pain yourself you can't explain it to someone else.  Every person is different and experiences pain in a different way.   If they can't see it or feel it, they don't know.  You just have to find a compassionate doctor who is willing to work with you.  If they told you half of what you were in for, we probably would be less likely to follow their advice.  Good luck to your BIL.

RE: AFTER WHIPPLE

by kathy0401 on Fri Jan 06, 2012 12:59 AM

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On Jan 05, 2012 10:39 PM morepain wrote:

WHY DON'T THE DOCS TELL PATIENTS ABOUT THE EXTREME PAIN THEY MAY HAVE AFTER SURGERY?  WE THOUGHT MY BRO-IN-LAW WAS PAST THE PAIN, BUT HE'S WORSE NOW THAN BEFORE, AND READING ALL THESE POSTS, HE MAY BE IN PAIN FOR SOME TIME.  HE'S BEEN IN THE HOSPITAL A COUPLE TIMES TRYING TO FIGURE WHAT'S WRONG, AND LIKE EVERYONE ELSE, THEY HAVEN'T FOUND ANYTHING ON THE SCANS.  AT LEAST HE COULD HAVE HAD A HEADS UP IF HE KNEW TO READ THIS SITE.

Not sure when the surgery was, but I am 3 weeks post-op and finally feeling better (still not driving and taking it very easy).  I did call my doctor the other day because until 2 days ago, I felt the same way as your BIL. I didn't sleep at night and  only napped during day along with a lot of pain.  I think changing my diet (smaller meals, more often), no strong drugs for pain (oxy/tylenol), only advil and eliminated dairy. This has helped the gas which has been my largest problem. I moved to 4 hrs. of sleep to 6 hours which is a blessing. 

I your brother-in-law feels better, but he should call his gastro.. or surgeon to understand normal healing than something else. Kathy

By the way, reading this info. has helped me tremendously.

RE: AFTER WHIPPLE

by jocook on Fri Jan 06, 2012 01:18 AM

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On Jan 05, 2012 10:39 PM morepain wrote:

WHY DON'T THE DOCS TELL PATIENTS ABOUT THE EXTREME PAIN THEY MAY HAVE AFTER SURGERY?  WE THOUGHT MY BRO-IN-LAW WAS PAST THE PAIN, BUT HE'S WORSE NOW THAN BEFORE, AND READING ALL THESE POSTS, HE MAY BE IN PAIN FOR SOME TIME.  HE'S BEEN IN THE HOSPITAL A COUPLE TIMES TRYING TO FIGURE WHAT'S WRONG, AND LIKE EVERYONE ELSE, THEY HAVEN'T FOUND ANYTHING ON THE SCANS.  AT LEAST HE COULD HAVE HAD A HEADS UP IF HE KNEW TO READ THIS SITE.

hi there, i am sorry to hear about the pain your BIL is having. my husband has had pancreatic cancer for four years and had very little pain other than terrible gas problems.my husband was blessed to have one of the top surgeons in the world and as a result his pain was greatly reduced. it is considered to be the worse surgery you can have and had i not done all the research we would not have been prepared for the length of this surgery. he is unable to work and still sleeps a great deal every day

RE: AFTER WHIPPLE

by squand on Fri Jan 06, 2012 03:45 PM

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I was given all the info on the whipple.I do wish I had IIbeen better prepare.ALL IN ALL,MY DOC DID A GOOD JOB.I HAD WHIPPLE ON JULY 20 2010.MY PAIN WAS AVERAGE.I THINK THE PATIENT DOES HOLD A RESPONSIBILTY ALSO.IT TAKES A YEAR MIN.

RICK

RE: After Whipple

by PujaDaskolkata on Sat Jan 07, 2012 06:02 AM

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Hi My mother under went by whipple surgery on 20/12/2011.Still she is in hospital.she had pain too...too much pain it was..doctors gave her central line injection which minimize her pain...she had that 5-6 days....due to an infection,she underwent through pigtail catheter insertion...but ,,what i am seeing is,,only time can recover such surgery effect..the patient as well as the relative should have the patience for the recovery....But it is easy to say,hard to believe

RE: AFTER WHIPPLE

by PujaDaskolkata on Sat Jan 07, 2012 06:08 AM

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as of you know,,whipple's is a big operation..the system of the patient is totally different than other normal people.This surgery is minimized the digestion capacity in our body.so the enzymes/digestive pills should be taken properly,otherwise gas formation may cause the tremendous pain.do consult with doctors  regularly if it is not minimized...but its true after surgery one should take care of healthy food(not much oily/fat/junk food)...the food which should be digestive....

RE: After Whipple

by chuck1943 on Sat Jan 07, 2012 11:54 AM

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Like Rick I was fully informend by doc, happened so fast I didn't worry about what would happen after the operation till it was over. I pushed sitting up and walking and was out of hospital in five days with little pain. Had to mess with diet, lot of gas, but kept up moving and had little side effects, drove in a week, was amazed. Had top surgeon and staff,makes a difference on there post op system as to how soon recovery starts. Everyone is different but stay possative and keep pushing.

RE: After Whipple

by magenda on Fri Jan 13, 2012 05:30 PM

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Who did your surgery and did you have any vascular reconstruction with the surgery?

RE: AFTER WHIPPLE

by kellyk on Fri Jan 13, 2012 10:38 PM

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My mother is whipple post op day 2 in ICU and complains of discomfort and not passing gas secondary to pain now. She's been in the hospital for almost 1.5 weeks because she had severe pain from obstructed stent and infection from a failed stent replacement in prior to whipple. I don't know how to help alleviate the discomfort. We have no idea what to expect and what symptoms are considered "expected-normal" versus abnormal after whipple. Does anyone have any feedback or suggestions? Also, her total bilirubin level elevated after the op and she looks a bit jaundiced. Has anyone experience that afterwards? Anticipation certainly would help reduce anxiety and stress.
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