long term side effects of radiation for head/neck cancer

318 Posts | Page(s): 1 2 3 4 5 ...3132 Next 

long term side effects of radiation for head/neck cancer

by familypractice1 on Fri Feb 03, 2012 07:51 PM

Quote | Reply

I am 13 years out and cancer free. The problem now is swollowing talking eating.  I am looking into vital stim treatment and stem cell tranasplant. Has anyone tryed this.

RE: long term side effects of radiation for head/neck cancer

by LadyBird on Sat Feb 04, 2012 09:32 PM

Quote | Reply

I have wondered about that too.  H & N Radiation in 2003.  I have swallowing, talking, & eating issues.  My teeth have been trashed and I'm getting crowns and partials made.  Good luck and I would love to hear what you find out.

RE: long term side effects of radiation for head/neck cancer

by GoldDustWoman on Sun Feb 05, 2012 12:24 AM

Quote | Reply

Hi my husband is one year out, no issues.  Are you both saying that you had no issues right after treatment but the swallowing issues developed years after? 

I'm sorry I can't offer any help or advice for you ~ we're too new into this head/neck cancer process.

Much love ~ GDW

RE: long term side effects of radiation for head/neck cancer

by LadyBird on Sun Feb 05, 2012 02:18 AM

Quote | Reply

It has gotten much worse over time.  Swallowing issues were there from beginning, but not so bad.  Good luck.

RE: long term side effects of radiation for head/neck cancer

by GoldDustWoman on Sun Feb 05, 2012 06:34 PM

Quote | Reply

I know I've seen others post on here about swallowing issues and the treatments they used.  You might want to check into some of the older posts.  I also recall that some folks need physical therapy to help with swallowing issues and a speech pathologist for issues with speech.  What does your doctor say about looking into those or other options?

RE: long term side effects of radiation for head/neck cancer

by LadyBird on Sun Feb 05, 2012 10:18 PM

Quote | Reply

I just startied swallow therapy for the 2nd time.  I FAILED my recent swallow test with all 4 consistencies going down past my vocal cords.  There are many other isssues in my neck and jaw with numbness, tingling and pain upon various movements.

I appreciate your post.  I will check into some and see what other people have done.

RE: long term side effects of radiation for head/neck cancer

by Sdurnell on Mon Feb 06, 2012 06:57 PM

Quote | Reply

Congratulations on your 13 years!  What an inspiration!

I know of several people who've had good results with vital stim for swallowing, not sure, though about for speaking. 

When's the last time you had your throat scoped?  Maybe an ENT or GI could give you some relief.  I've heard from my docs that scarring can occur long after the treatments.

Best of luck to you.

Susan

RE: long term side effects of radiation for head/neck cancer

by smb22 on Thu Apr 25, 2013 02:56 AM

Quote | Reply

Sorry my friend, I am 10 years out and I cannot swallow or talk very well. I am looking for the same type of info. If I or you find something lets let each other know. I have heard of stem cells from swine being used to regererate damaged tissue but I can't find out any more about how to get into a research program as a voluteer. Anyway I'll do my best to let you know if I find out something of value.

 

RE: long term side effects of radiation for head/neck cancer

by Sdurnell on Thu Apr 25, 2013 05:32 AM

Quote | Reply

Throat dilations are what have helped me the most.  I had about 8 or 9 the first year after treatment, and several more in the year+ since then.

And if it's the actual swallow mechanism itself, speech therapy is the way to go.  You don't want to mess too much with this, as you can easily develop pneumonia if you are aspirating food or liquids.

Susan

RE: long term side effects of radiation for head/neck cancer

by Rastuspristl on Wed May 01, 2013 06:30 AM

Quote | Reply

On Apr 25, 2013 5:32 AM Sdurnell wrote:

Throat dilations are what have helped me the most.  I had about 8 or 9 the first year after treatment, and several more in the year+ since then.

And if it's the actual swallow mechanism itself, speech therapy is the way to go.  You don't want to mess too much with this, as you can easily develop pneumonia if you are aspirating food or liquids.

Susan

Hi all. I am 11 years out, having had neck disection, followed by a joint radiotherapy/chemotherapy regime. I still suffer major problems with speaking, eating and swallowing. Have continual episodes of aspirating leading to constant chest infections, including pnemonia. Have tried speech therapy etc with no luck.

318 Posts | Page(s): 1 2 3 4 5 ...3132 Next 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.