Are we every cured?

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Are we every cured?

by MissCyndie on Wed Apr 18, 2012 01:19 AM

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I read all these posts on here and it scares the heck outta me....I THOUGHT my papillary CA was cured.....and my doctor says it's rarely a killer, but now, after reading all this stuff on here, I'm beginning to panic.  It's been 3 years next month since my surgery and I've been doing well so far...no tiredness, no weight gain, nothing bad...thank God! BUT...am I cured?  Should my doctor do an U/S of the thyroid bed yearly? I guess so, but he's stopped it this year. I guess I better find out why he stopped it. The PET scans are not being done either..and that scares me too. Now, I'm scare my cancer will return in my lungs or my thyroid bed or somewhere else 'cause all these people are writing about it coming back.  I THOUGHT I was safe, but I guess not.  I'll never relax now. 

RE: Are we every cured?

by tink2002 on Wed Apr 18, 2012 01:56 AM

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Wait, don't panic.  It seems (and you know this Miss cyndie) that every single doctor has their own plan of action.  Most of us, no matter what, seem to do okay.  even if the cancer spreads to the lungs, as long as it is still pap can, and you aren't iodine resistant, the RAI will get it.  My cousin in law was diagnosed around the same time as me.  He is younger and male.  his doctor doesn't check anything any more and (thank God !) he seems to be doing well.  A friend of the family was diagnosed 30 years ago.  no follow ups and he is doing well.  MY doctor checks and checks and checks.  At this point, that does give me some comfort, so I chose to follow his plan.  What would make you comfortable??  Only you can decide.  You might want to look at the American Cancer society website and see what their recommendations are.  Or, I always like what I read on thyca.org .  Of course, you can call the nurse service that is attaced to your insurance and they will tell you what's recommended by whatever group they follow.  Glad to hear that you are doing well.  

RE: Are we every cured?

by Susan52 on Wed Apr 18, 2012 03:40 PM

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Don't panic!  Protocol seems to change every year.  I'm at the 5 year mark and my last ultrasound was a couple years ago.  My thyroid endo cancer specialist told me after the 3rd clean scan, she'd only be doing blood work and watching the tg marker from here on out.  As long as it stays < I think .2 or .02, there's nothing going on and that would be all I'd need done annually.  Should that number rise, then we'd be looking a little closer again.  She also made a point to tell me a rise in the tg marker doesn't necessarily even indicate cancer....just indicates there are some thyroid cells growing back.....and although we don't want that cuz they COULD be cancer, all by itself, its only a test!  The best advice I ever received from her was "we know where to go look for a return of your cancer for the rest of your life....most folks are out there wandering around not having anything checked until it breaks and then sometimes it can't be fixed!  IF this makes a return, we'll be right on it!"  Definitely made me feel better!  SUE

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