Ok, what do i do now?

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Ok, what do i do now?

by momofeight on Wed Apr 18, 2012 10:11 AM

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Last wednesdy I was told I have cancer. That was all the doctor said, but i know it has to be either colon or rectal. From what i am reading online, it must be Stage 3 Rectal Cancer, because I had an abscess that needed to be drained, and while doing that the doctor did a biopsy which is how he found the cancer. This after I had been going back and forth to the E>R with severe rectal pain since October. So, the dr. does not seem to want to be in contact with me any longer, I am 53 and a week has gone by with no communication from a doctor of what I neeed to do or if i have a chance of living. I even had to go to the e.r and ask for them to give me better pain medication as mine wasn't working. I was on vicodin but they changed me to didlaudin. I still have a lot of pain but what can i do? I'm in the bathroom too frequently and usually just pass gas, or nothing at all. I have to drink prune juice to keep from getting horribly constipated. I don't know what to do, I knnow when he did the biopsy he said it had gone into the lymph node...which i could have told him because i have a huge lump in my groin. Can anyone please help me with what i should do now? I have applied for disability so i can have some insurance, which is why i think these drs. are ignoring me, i had no insurance. But i don't want it to continue spreading while i wait to hear from a dr.  Please can someone help me? If i am going to die, I need someone to say that, I have eight grown children and six grandchildren who need to prepare. Are there drugs so i won't feel any pain as I die? I am really tired of being in pain already. First they thought it was hemmorhoids, then my sciatic acting up now it is cancer...look how much time has been wasted. If anyone could walk me through this i would appreciate it.

RE: Ok, what do i do now?

by Sunset5 on Thu Apr 19, 2012 10:15 PM

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Oh, I am so sorry to hear of all that you are going thru.  Please contact your local social service agency to see what kind of help they can give you as far as health care options.  That's one thing you need to get handled first off.  I don't know what disability will do as far as your health care, but having someone to help you figure out what you qualify for would be a great relief to you.  

Also, find a doctor who specializes in colorectal cancer that is willing to work with you and whatever insurance or medical plan you have.  

Please don't condemn yourself to die.  People live with cancer for years.  People can be cured from it.  We all think the very worst when we are diagnosed, but don't allow yourself to live in a constant state of thinking that way.  Think of ways to live better now that you know you have this disease.  It's not a cakewalk, it's not easy at all, but living with your head held up and being positive will help you on this journey, and it is a journey.  How you travel this journey is entirely up to you.

I was diagnosed in 2004.  I'm am living with my disease and making the most of every day.  I have a rare form of ovarian cancer and I am stage IV with metastasis to my liver.  I have 5 children and 1 granddaughter myself.  They are all very supportive and loving.  I have decided that I am only going to die once and I am going to spend all the rest of my days living and making the most out of life.  

I know this is a horrible time in your life.  I wish I could give you a great big hug and tell you that you are stronger than you realize, and when your back is up against the wall, you have NO choice but to come out swinging.  For the sake of all who love you, and for YOUR own sake, do not allow yourself to slide down that wall.  I am not a brave person, I am full of fear and struggle as much as the next person, but I will not  allow this disease to define me or consume me.  It is my life, not the cancer's life.  I have decided to be more loving and kind even to those who are less than kind to me.  I have decided to do things for myself that make me feel good.  This doesn't necessarily mean spending a lot of money, it just means making the most of the time that I have here on this earth and enjoying the things that make me happy on a daily basis.  I live in a state of gratitude for all that I have and it helps me keep a smile on my face.  Wow!  I cannot believe you have 8 children.  I would have had more, but miscarried several times myself.  Isn't it great having so many children?  And Grandchildren?  You are very blessed to have so many to love and be loved by.

I know that I don't have the same cancer as you, but cancer sucks no matter what kind it is and we all share similar feelings.  

So, what you do now is to find your inner strength.  Find out what kind of help you qualify for, find a doctor who you feel comfortable with, and fight.   I hate using that term fight because cancer is one of those things you just don't know where to throw the first punch at, but fighting it can be as easy as just deciding that you are going to win and do everything you can to improve your chances.

I don't even know you and I care that you are hurting.  Care enough to try to cheer you up because I have been there, and I still get down, but this is where I come to get a good lift when I need it.  :)

I just want to live my life better and do it for as long as I can.

Hugs,

Renee/Sunset5

RE: Ok, what do i do now?

by Baileysmom97 on Thu Apr 19, 2012 10:35 PM

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Hi Renee--

Just wanted to say that's a brilliant post and well said.  This should be the motto of every person battling this disease!

Karin

RE: Ok, what do i do now?

by ulta12 on Thu Apr 19, 2012 10:41 PM

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On Apr 19, 2012 10:15 PM Sunset5 wrote:

Oh, I am so sorry to hear of all that you are going thru.  Please contact your local social service agency to see what kind of help they can give you as far as health care options.  That's one thing you need to get handled first off.  I don't know what disability will do as far as your health care, but having someone to help you figure out what you qualify for would be a great relief to you.  

Also, find a doctor who specializes in colorectal cancer that is willing to work with you and whatever insurance or medical plan you have.  

Please don't condemn yourself to die.  People live with cancer for years.  People can be cured from it.  We all think the very worst when we are diagnosed, but don't allow yourself to live in a constant state of thinking that way.  Think of ways to live better now that you know you have this disease.  It's not a cakewalk, it's not easy at all, but living with your head held up and being positive will help you on this journey, and it is a journey.  How you travel this journey is entirely up to you.

I was diagnosed in 2004.  I'm am living with my disease and making the most of every day.  I have a rare form of ovarian cancer and I am stage IV with metastasis to my liver.  I have 5 children and 1 granddaughter myself.  They are all very supportive and loving.  I have decided that I am only going to die once and I am going to spend all the rest of my days living and making the most out of life.  

I know this is a horrible time in your life.  I wish I could give you a great big hug and tell you that you are stronger than you realize, and when your back is up against the wall, you have NO choice but to come out swinging.  For the sake of all who love you, and for YOUR own sake, do not allow yourself to slide down that wall.  I am not a brave person, I am full of fear and struggle as much as the next person, but I will not  allow this disease to define me or consume me.  It is my life, not the cancer's life.  I have decided to be more loving and kind even to those who are less than kind to me.  I have decided to do things for myself that make me feel good.  This doesn't necessarily mean spending a lot of money, it just means making the most of the time that I have here on this earth and enjoying the things that make me happy on a daily basis.  I live in a state of gratitude for all that I have and it helps me keep a smile on my face.  Wow!  I cannot believe you have 8 children.  I would have had more, but miscarried several times myself.  Isn't it great having so many children?  And Grandchildren?  You are very blessed to have so many to love and be loved by.

I know that I don't have the same cancer as you, but cancer sucks no matter what kind it is and we all share similar feelings.  

So, what you do now is to find your inner strength.  Find out what kind of help you qualify for, find a doctor who you feel comfortable with, and fight.   I hate using that term fight because cancer is one of those things you just don't know where to throw the first punch at, but fighting it can be as easy as just deciding that you are going to win and do everything you can to improve your chances.

I don't even know you and I care that you are hurting.  Care enough to try to cheer you up because I have been there, and I still get down, but this is where I come to get a good lift when I need it.  :)

I just want to live my life better and do it for as long as I can.

Hugs,

Renee/Sunset5

I just recently was diagnosed with stage 3b rectal cancer I am 51 years old you hav to be an advocate for your health and well being I am so scared at times I went through 28 dqys of radiattion and chemo I am having surgery may 11  I am hoping for good but have days of crying and feeling very afraid I am thinking about you and sending positive energy to you

RE: Ok, what do i do now?

by Sunset5 on Thu Apr 19, 2012 11:37 PM

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On Apr 19, 2012 10:35 PM Baileysmom97 wrote:

Hi Renee--

Just wanted to say that's a brilliant post and well said.  This should be the motto of every person battling this disease!

Karin

Thank you Karin.  I have to remind myself constantly of these things, but it does really help to keep positive even in the most difficult situations.  :)   Thank you for your kind words.

Renee

RE: Ok, what do i do now?

by richeyt on Fri Apr 20, 2012 12:33 AM

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Hello,

I had 1/3 of mycolon removed 10/10 due to colon cancer.  I was 44 and all doctors fought me on even having a colonoscopy b/c of my age for several months.  They thought I had anxiety:(  Heck yeah I had anxiety after telling them something was in my stomach movin around at night for months!  Anyway I am praying for you now:)  I am still fighting and continue to grow the sessile polyps(the ones that turn into cancer once they get to a certain size.  I am in constant pain from throbbing of my colon.  There will be good days and bad days...I am also in the bathroom 5-30 x a day depending upon how much I eat/drink that day...They found my last polyps in the rectal area...Contact CTCA...

RE: Ok, what do i do now?

by sandraellis on Mon Apr 23, 2012 03:00 AM

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 I am very sorry for anyone with cancer.All  of you need to research vitamin B-17. It is found in fruit seeds especially apricot, the kernel inside the seed. Please read and make your own decision. Cancer could be caused by a vitamin deficiency. All wild animals will eat the nut inside the seed. watch the video, "World Without Cancer". God bless you. 

RE: Ok, what do i do now?

by sandraellis on Mon Apr 23, 2012 03:00 AM

Quote | Reply

 I am very sorry for anyone with cancer.All  of you need to research vitamin B-17. It is found in fruit seeds especially apricot, the kernel inside the seed. Please read and make your own decision. Cancer could be caused by a vitamin deficiency. All wild animals will eat the nut inside the seed. watch the video, "World Without Cancer". God bless you. 

RE: Ok, what do i do now?

by busiwork on Sat Apr 28, 2012 01:30 PM

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Bless you - you have had a really rough time on route to your diagnosis - unfortunately this is not an uncommon story.

As the other message said - contact your local social services agency, they will be able to help you and give you the information you so desperately need.

I know this is a very difficult thing for you to deal with- but try not to panic. Lots of people live with cancer and some successfully recover. The word Cancer is a horrible scary word that makes everyones world crash down around them.

It sounds as though you are having a tough time with a lot of time spent in the bathroom - so maybe once you start your treatent things will begin to improve for you.

This will be terrible for your family also - people hear the word cancer and they think of death - be strong for yourself and them. You have the power to control your famillies journey in this terrible time.

Face this head on - go to war with this invading cancer, eat well and boost your vitamin and fluid intake, get lots of rest and celebrate every day as a victory.

You can do this - as my Mum always taught me: take deep breathes and small steps.

There are millions of people and their famillies facing this all over the world - and everyone of us is wishing you well.

Take Care xxx

RE: Ok, what do i do now?

by Super01Mom on Thu May 10, 2012 07:07 AM

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First off I am so sorry you were diagnosed with cancer, the word cancer is so scary and most people associate it with death. Do not give up hope. Have you tried calling the doctors office and talking directly to the doctor? I can't imagine a doctor giving you a diagnois of cancer and then turning his or her back from you. I know when I did not biopsy they do not stage your cancer at that point, usually have to go thru more testing , in my case it was the removal of the tumor and the lymp nodes before I had a staging. If this doctor is not willing to work with you because of insurance issues, then you need to find a doctor that will. You can get state assistance if you are uninsured and qualify, going thur Social Security takes a very long time and you need to act quickly. When I went on disability it took me over two years to get approved, most people do not get accepted the first try, no matter what the disability. If you are older and already on social security you can get medicare, which will pay for the medical expenses and the medications depending on what plan you are on. But I would seriously be proactive with your health right now, if you are unable to get your family to help out with getting all your questions answered, when I was diagnosed my entire immediate family went to the visit on my consultation appointment , they answered all our questions, inform us on the best treatment plan for myself, and not only provided medical assistance but also psycological assistance because it doesn't just affect your body, but your mind too. Please act quickly, because at this point you know nothing, do not assume anything, just act please.

Sheryl

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