I have colorectal cancer and problems with my ileostomy and watery stools...helpppppppp

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RE: I have colorectal cancer and problems with my ileostomy and watery stools...helpppppppp

by ajp1228 on Sat Jun 02, 2012 09:10 PM

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Last Tuesday afternoon after Mother's doctor appointment we had another leak, but I finally felt free to experiment with a different product.  We had a couple of samples of the Eakin seals, so I tried one of them.  I had expected them to be pretty much identical to the Coloplast mouldable rings we had been using, but these felt like a different material.  I used one of these and don't think I used any other skin barrier right around the stoma.  I used the same technique I was using with the other rings - rolled it out into a "snake" and then rejoined it and placed it onto the one-piece bag.  Then we cleaned her up and replaced the bag, and we used some heat just like we had always been doing.  It's been 4 days now and she's still not had a leak! 

I don't know for sure if it was the Eakin seal or if we just got lucky - back in mid or late April we had a couple to stick about this long.  I ordered more of the Eakin seals, so we will continue to try them and see how things go.  This could be the answer to the problem!  I noticed the Coloplast rings we'd been using still had plenty of material stuck to the bags; evidently the stool seaped under them and they came loose from her skin.  Perhaps the material in the Eakin seals is sticking better.  We will see what happens when this one does leak or on Monday afternoon, whichever comes first.  (I've read we shouldn't wear the same bag more than 7 days, and Monday will be 6.  We decided a couple of months ago that if a bag was sticking we would not change it until we absolutely had to, because the one time we did try to go on a schedule, the day turned into a disaster.  LOL)

RE: I have colorectal cancer and problems with my ileostomy and watery stools...helpppppppp

by retirednurse111 on Sat Jun 02, 2012 09:59 PM

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On Jun 02, 2012 9:10 PM ajp1228 wrote:

Last Tuesday afternoon after Mother's doctor appointment we had another leak, but I finally felt free to experiment with a different product.  We had a couple of samples of the Eakin seals, so I tried one of them.  I had expected them to be pretty much identical to the Coloplast mouldable rings we had been using, but these felt like a different material.  I used one of these and don't think I used any other skin barrier right around the stoma.  I used the same technique I was using with the other rings - rolled it out into a "snake" and then rejoined it and placed it onto the one-piece bag.  Then we cleaned her up and replaced the bag, and we used some heat just like we had always been doing.  It's been 4 days now and she's still not had a leak! 

I don't know for sure if it was the Eakin seal or if we just got lucky - back in mid or late April we had a couple to stick about this long.  I ordered more of the Eakin seals, so we will continue to try them and see how things go.  This could be the answer to the problem!  I noticed the Coloplast rings we'd been using still had plenty of material stuck to the bags; evidently the stool seaped under them and they came loose from her skin.  Perhaps the material in the Eakin seals is sticking better.  We will see what happens when this one does leak or on Monday afternoon, whichever comes first.  (I've read we shouldn't wear the same bag more than 7 days, and Monday will be 6.  We decided a couple of months ago that if a bag was sticking we would not change it until we absolutely had to, because the one time we did try to go on a schedule, the day turned into a disaster.  LOL)

Yahooooo!  I am making it about 2 days, have gone 3=4 but I cant stand not to shower....I know they say you can but it loosens my bag.

2 days ago I had no breakdown so no powder or spray, yeahh!  Today it leaked and breakkdown again, so here we go again.

I really dont think there is an answer, its just each persons body shape and type of skin............God Bless you for helping your Mother.  Fran

RE: I have colorectal cancer and problems with my ileostomy and watery stools...helpppppppp

by Super01Mom on Sun Jun 03, 2012 07:41 PM

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Fran,

Sorry you are having such a hard time with the leaking. You are right everyone's body type is different and believe me I know. When I had a broken leg I just wanted to shower and well you know you can't shower with a cast on, so I found a product that you put over the cast to prevent it from getting wet, so I thought I would look into a product to put over the bag. I did find a product with Hollister, that you place over your stomach area to prevent the seal and bag from getting wet, so I could shower and not have to change the seal and bag every time I did so. It did help, I can't remember the name of it though, sorry but I did purchase it from Hollister. If you have their catalog or go online you should be able to find it, or even better you could call their customer service line and a sales person could help you. I loved thier customer service dept. they were always very helpful. I hope this helps, whatever works right? Sometimes it is just trial and error.

Sheryl

RE: I have colorectal cancer and problems with my ileostomy and watery stools...helpppppppp

by ajp1228 on Wed Jun 06, 2012 01:45 AM

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We had more trouble after having to change the bag that stayed on 5 days; we had to change it 4 between Sunday evening and Monday afternoon.  We couldn't figure out why the Eakin seal worked once but wouldn't stick any longer.  The only thing we could think of was that the weather was cooler so maybe the bag & seal weren't warm enough when we put them on.  So Monday afternoon I applied the seal to the bag, cleaned Mother up, and then right before I was ready to apply the bag to her skin I heated it with a hair dryer for several seconds.  So far, it's stayed on 1 day and 5 hours, so maybe it will stay a few more days.  Her skin was getting red again, especially on the one side where the leaks happened, but not as bad as before.  I hope heating the bag/seal before applying it to the skin is the trick to getting it to stay.  It would be wonderful to stop having to worry about it coming loose any second.  It's so frustrating to have something work once but not again.

RE: I have colorectal cancer and problems with my ileostomy and watery stools...helpppppppp

by retirednurse111 on Wed Jun 06, 2012 02:49 PM

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On Jun 06, 2012 1:45 AM ajp1228 wrote:

We had more trouble after having to change the bag that stayed on 5 days; we had to change it 4 between Sunday evening and Monday afternoon.  We couldn't figure out why the Eakin seal worked once but wouldn't stick any longer.  The only thing we could think of was that the weather was cooler so maybe the bag & seal weren't warm enough when we put them on.  So Monday afternoon I applied the seal to the bag, cleaned Mother up, and then right before I was ready to apply the bag to her skin I heated it with a hair dryer for several seconds.  So far, it's stayed on 1 day and 5 hours, so maybe it will stay a few more days.  Her skin was getting red again, especially on the one side where the leaks happened, but not as bad as before.  I hope heating the bag/seal before applying it to the skin is the trick to getting it to stay.  It would be wonderful to stop having to worry about it coming loose any second.  It's so frustrating to have something work once but not again.

I use the hairdryer immediately every time after I apply my bag, press in circles around the stoma, and then apply a heating pad for 15 min.  Sure helps!  I just routinely change my bag now every 2 days.......a schedule is easier!  Have you tried the Coloplast paste?  I think it works the best....God Bless!

RE: I have colorectal cancer and problems with my ileostomy and watery stools...helpppppppp

by ajp1228 on Thu Jun 14, 2012 04:17 AM

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The hairdryer seems to help.  I used it to warm the bag for several seconds right before applying it to her skin.  Then we use the corn-filled heating bag for about 15 minutes; after that, she still lies in bed for awhile longer until it cools off. 

One stuck for four days - we were hoping for 5 since the first bag with the Eakin seal stayed on for 5 days, but we didn't quite make it.  The next one made it just past the 3 1/2 day mark.  I was planning to change it yesterday evening, anyway, because she had a doctor's appointment today.  However, she sprung a leak early in the afternoon, so we changed it then.  I hope these continue to hold this well for the next 2 weeks.  She has her reversal surgery two weeks from today.

When we were using paste, we tried a couple of different brands but they seemed the same.  We used Adapt, by Hollister; I'm not sure if the other one was Coloplast or Convatec.  But they were very messy, and her skin had gotten so bad that the paste burned.  The strip paste, the Coloplast mouldable rings, and the Eakin seals didn't burn.  That's another good thing about the Eakin seals - her skin is almost completely healed now!  It still has a small red place near where she usually leaks, but the rest of it is fine.  It's no longer sore when I clean her off.  I'm not using any skin prep, just the Eakin seal.  It was always red and sore - sometimes a little better, but not good - until the first Eakin seal.

I agree that a schedule is easier if you can get on one.  We tried a couple of months ago to change it early in the morning, like the ostomy nurse told us, after two days.  First, it took us awhile to get one to stick that long and be timed for early morning.  Then, it turned out she was pretty active even that early before breakfast - not quite like the nurse thought she'd be.  Then, the new one we put on didn't stick and we had to change it 2 or 3 more times that same day.  So we decided after that if something was sticking we'd leave it alone.  LOL

Now with the Eakin seals starting to stick better, we probably would get on a schedule if she was not having the reversal so soon.  If the 4-day time continues to work out, I'm planning to change it every 4 days until her surgery.

RE: I have colorectal cancer and problems with my ileostomy and watery stools...helpppppppp

by TwoTwo on Sun Jun 17, 2012 03:07 PM

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Hello!  I am about 6 weeks post op.  I had problems with my bag and leaking for the first 2 weeks.  I have used the Hollister 2-piece the whole time.  One trick I learned was to eat about 8 - 10 big marshmallows to slow or even stop the output before changing the appliance.  It really helps to not have output while changing.  Once I get the first appliance off, I wash, rinse and dry the area around the stoma.  Keeping the area dry is very important!  I will also bunch up a small amount of tissue around the stoma just in case there is any watery output.

In the beginning, I had some skin reddness in a few places.  I would apply the powder in those areas and then blow off any excess with the hair dryer.  The next step is the skin prep.  When applying over the powdered area, I just dabbed it so as not to wipe off the powder.  I make sure I use a good bit of the skin prep.  It provides a water-proof barrier in case of any leaks.  Then I apply the Adapt paste to the inside sticky area of the ring and hit it with a hot hair dryer for at least 10 seconds to heat up both the ring and the paste.  Immediately, I place it around the stoma and hold it in place, pressing all around the ring for about 15 - 30 seconds.  Then I attach the bag and I'm good to go. 

The only leak I have had since using all the above methods is when I got the appliance wet trying to shower.  The saran wrap trick just doesn't work for me, not even with the clinging type of saran.  I had some extra 12" shower shields from my port cath and have used those with success.  I ordered some through Edgepark, the distributor I use for the Hollister products but they are on back order.  I hope they come in soon.  I prefer taking a full shower. 

Oh, and another thing that seems to help is to empty the bag when it is 1/3 - 1/2 full.  I think anything more than that puts too much strain on the seal and bag.

So, since doing all the above I haven't had any leaks and consistently can go 5 - 6 days before changing and I no longer have any skin redness or irritation.

I hope all of this helps some of you.  These little tips and tricks were learned seperately from other people, either on the internet or from other ostomates I have met and spoken with in person.  Too bad none of the Drs or Ostomy Nurses know or share these tips.

Good Luck to all of us!

RE: I have colorectal cancer and problems with my ileostomy and watery stools...helpppppppp

by TwoTwo on Sun Jun 17, 2012 03:07 PM

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Hello!  I am about 6 weeks post op.  I had problems with my bag and leaking for the first 2 weeks.  I have used the Hollister 2-piece the whole time.  One trick I learned was to eat about 8 - 10 big marshmallows to slow or even stop the output before changing the appliance.  It really helps to not have output while changing.  Once I get the first appliance off, I wash, rinse and dry the area around the stoma.  Keeping the area dry is very important!  I will also bunch up a small amount of tissue around the stoma just in case there is any watery output.

In the beginning, I had some skin reddness in a few places.  I would apply the powder in those areas and then blow off any excess with the hair dryer.  The next step is the skin prep.  When applying over the powdered area, I just dabbed it so as not to wipe off the powder.  I make sure I use a good bit of the skin prep.  It provides a water-proof barrier in case of any leaks.  Then I apply the Adapt paste to the inside sticky area of the ring and hit it with a hot hair dryer for at least 10 seconds to heat up both the ring and the paste.  Immediately, I place it around the stoma and hold it in place, pressing all around the ring for about 15 - 30 seconds.  Then I attach the bag and I'm good to go. 

The only leak I have had since using all the above methods is when I got the appliance wet trying to shower.  The saran wrap trick just doesn't work for me, not even with the clinging type of saran.  I had some extra 12" shower shields from my port cath and have used those with success.  I ordered some through Edgepark, the distributor I use for the Hollister products but they are on back order.  I hope they come in soon.  I prefer taking a full shower. 

Oh, and another thing that seems to help is to empty the bag when it is 1/3 - 1/2 full.  I think anything more than that puts too much strain on the seal and bag.

So, since doing all the above I haven't had any leaks and consistently can go 5 - 6 days before changing and I no longer have any skin redness or irritation.

I hope all of this helps some of you.  These little tips and tricks were learned seperately from other people, either on the internet or from other ostomates I have met and spoken with in person.  Too bad none of the Drs or Ostomy Nurses know or share these tips.

Good Luck to all of us!

RE: I have colorectal cancer and problems with my ileostomy and watery stools...helpppppppp

by retirednurse111 on Mon Jun 18, 2012 03:35 PM

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On Jun 17, 2012 3:07 PM TwoTwo wrote:

Hello!  I am about 6 weeks post op.  I had problems with my bag and leaking for the first 2 weeks.  I have used the Hollister 2-piece the whole time.  One trick I learned was to eat about 8 - 10 big marshmallows to slow or even stop the output before changing the appliance.  It really helps to not have output while changing.  Once I get the first appliance off, I wash, rinse and dry the area around the stoma.  Keeping the area dry is very important!  I will also bunch up a small amount of tissue around the stoma just in case there is any watery output.

In the beginning, I had some skin reddness in a few places.  I would apply the powder in those areas and then blow off any excess with the hair dryer.  The next step is the skin prep.  When applying over the powdered area, I just dabbed it so as not to wipe off the powder.  I make sure I use a good bit of the skin prep.  It provides a water-proof barrier in case of any leaks.  Then I apply the Adapt paste to the inside sticky area of the ring and hit it with a hot hair dryer for at least 10 seconds to heat up both the ring and the paste.  Immediately, I place it around the stoma and hold it in place, pressing all around the ring for about 15 - 30 seconds.  Then I attach the bag and I'm good to go. 

The only leak I have had since using all the above methods is when I got the appliance wet trying to shower.  The saran wrap trick just doesn't work for me, not even with the clinging type of saran.  I had some extra 12" shower shields from my port cath and have used those with success.  I ordered some through Edgepark, the distributor I use for the Hollister products but they are on back order.  I hope they come in soon.  I prefer taking a full shower. 

Oh, and another thing that seems to help is to empty the bag when it is 1/3 - 1/2 full.  I think anything more than that puts too much strain on the seal and bag.

So, since doing all the above I haven't had any leaks and consistently can go 5 - 6 days before changing and I no longer have any skin redness or irritation.

I hope all of this helps some of you.  These little tips and tricks were learned seperately from other people, either on the internet or from other ostomates I have met and spoken with in person.  Too bad none of the Drs or Ostomy Nurses know or share these tips.

Good Luck to all of us!

Thanks so much for your tips....I struggled for about 8 weeks.  I had never heard the marshmellow tip....what about calories, I dont need any extra, lol.  I too use the hairdryer but only after so I will try the before.  I use Coloplast bags, the convex, and change every 2-3 days now.  I also use Viva paper towels to cover the stoma after showering before application.

I just wish I could go longer without changing.....but so far no luck.  Thanks for all your help......Fran

RE: I have colorectal cancer and problems with my ileostomy and watery stools...helpppppppp

by Unknown_Member on Fri Jun 22, 2012 11:02 AM

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On Apr 23, 2012 11:13 PM retirednurse111 wrote:

I am stage 3 colorectal cancer, 4 weeks post op.  We have tried Hollister bags and Coloplast, and I am also having watery stools..............leaking daily.  My skin is bad and I need help with product recommendations and diet recommendations.

 

Bless you all.....hope to hear from you

Hi, i ended up in hospital too, severe hydration, the stools or water was green, bad dizziness spent time in hospital on drips,i had a gastro infection and on another occasion. i was prescribed antibiotics for a tooth infection, apparently anitiotics and illiostomy don't mix, my local doctor advised to take Hydralyte over the counter product at the chemist.... it worked. i keep them handy in the pantry. hope your aware that black coffee can give you loose stools too.......good luck 

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