Metastatic pancreas cancer with lung nodules

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RE: Metastatic pancreas cancer with lung nodules

by cbirger on Sun Jan 27, 2013 11:13 PM

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How is your Dad doing?  I realize that post was from May.  My husband was diagnosed June 2011, 8 months on Fulfirinox, 1 month radiation, then whipple in April 2012.  Found multiple lung nodules (small, 5mm) on last CT scan last week.  CA19-9 at 350. PET scan next week.  Sounds like shemo is only option....

RE: Metastatic pancreas cancer with lung nodules

by tlgoldilocks on Mon Jan 28, 2013 06:07 AM

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Hello,

I am so sorry to hear of your husband's diagnosis and vigorous treatment regime. What a trooper he must be and I know how hard it is for you as a care giver feeling so hopeful and at the same time in such pain as well watching all of this.......I truly have so much empathy for you all. I'm crying as I write this, as my pain is still so raw. I lost my sweet dad, my best friend, and a my hero on Oct 14th of 2012. I am really heart broken.

My dad never had a PET scan, we are in Canada, and they are not widely available or referred to???? I did manage to get my dad on the experimental chemo drug Abraxane, used for soft tissue cancers and has been used for breast cancer and is more tolerable than Fulfirinox, especially in older patients. My dad was 72, healthy, fit, active all of his life, non smoker and looked 60. However the time that PC was diagnosed he was stage 4, with mets to the lungs in late Dec 2011. He did not start chemo till July, as it was something he did not want, as he was never good with medication of ANY KIND. It was his last resort....There was recently a report saying that Abraxane with gemcitibine sustained life by 2 months...Was a "Breaking News Story on Pan Can" Very disappointing to many as after 40 years of no progress, many were hoping for better news than 2 months.

I do hope you have some great results with the regime, as I always feel there is another iron in the fire, so to speak, and more in the medical pipeline...so maybe 2-4 months, buys more time, only if our loved one is not in pain or suffering more.....We always want more time with the ones we love the most...I wish I just had another day to say all that I wanted to & needed to.

Giving you a big hug :)

Tracy

 

 

 

 

RE: Metastatic pancreas cancer with lung nodules

by barb1214 on Thu Jan 31, 2013 02:14 AM

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My friend was diagnosed with adenocarcinoma stage 3 in the tail, 2 lymph nodes involved in May 2010. She had surgery that included splenectomy and resection of portal vein. She underwent 6 months of gemcitibine with 6 weeks of radiation (during that time) finishing around March 2011. In July 2011, nodes were found in her lungs. She began chemo again in Sept 2011, leucovorin enhancer followed by 5FU infused over 48 hours. The 5FU is attached at the hospital and worn at home, removed by a visiting nurse. This treatment is every other week with occasional breaks of an extra week for Christmas, etc. My friend has a good quality of life and is keeping very active. She has gone on a few vacations, cooks and cleans her house, gardens, goes on long walks and has a busy social calender. She has some side effects like tiredness, metalic taste in her mouth, neuropathy in hands and feet but overall she is doing amazingly well. She was very fit and 54 when diagnosed. So far, CAT scans have shown that the nodules in the lungs are stable. CA19 has been creeping up and is around 168 last week.

RE: Metastatic pancreas cancer with lung nodules

by cbirger on Thu Jan 31, 2013 03:56 AM

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Thank you so much, Barb.

We go for a PET scan tomorrow.  CA19-9 came back at 350.  It's so interesting how all different treatments are recommended.  My husband really handled the initial chemo rounds with strength (including the take home part).  I'm curios: when you go through chemo for a second time, do you lose your hair again?  We will continue to fight with all we've got!

RE: Metastatic pancreas cancer with lung nodules

by barb1214 on Fri Feb 01, 2013 02:22 PM

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My friend still has all of her hair. Her weight is good, too. She was having some neausea when the 5FU was first hooked up, but she now takes a prescriped anti-nauseant 2 days before treatment and is handling it much better. We even went out for dinner straight from chemo last week. This treatment that she is on is part of a trial study. Good luck.

RE: Metastatic pancreas cancer with lung nodules

by Kjohnchas on Sat Feb 23, 2013 01:34 AM

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This is a old post but maybe will help anyone listening,my husband has PCM since oct 4 2012'a pet scan showed tumor in pancreas and dozen nodulers in lungs,after lung biopsy no cancer found there,but doctor seemed to think eventually will be. Went through 6 weeks of radiation and on his 3rd month of chimo with 2 more months to go than another pet scan can hardly wait. As of now he has had no side effects NONE only lost his apetite,so he (we) are very positive we will beat this

RE: Metastatic pancreas cancer with lung nodules

by megomego on Sat Mar 09, 2013 08:43 PM

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On May 11, 2012 2:09 PM Tony11 wrote:

My dad had pc with mets to the liver and lung nodules. The only way is chemo.

My dad just received news Thursday is has gone into the lungs as well.  Im so angry, as we could see something was wrong with the tumor marker #s climbing.....   Tony, what chemo is your dad using?  Have the liver or lung tumors shrank?

RE: Metastatic pancreas cancer with lung nodules

by megomego on Sat Mar 09, 2013 08:47 PM

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On May 11, 2012 9:20 PM RocCandy wrote:

My husband had recurrence with a nodule in each lung.  Cyberknife treatments for both nodules. 

Pam

Pam - where does your husband get his CyberKnife treatments?  At CTCA?

RE: Metastatic pancreas cancer with lung nodules

by megomego on Mon Mar 11, 2013 04:14 AM

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On May 09, 2012 11:07 PM swdesertlover wrote:

Hi Tracy,

My husband was diagnosed with pancreatic cancer in September 2009 and had a Whipple the same month.  A scan in early 2011 showed numerous nodules in both of his lungs that were confirmed as metastatic pancreatic cancer.  He was put on Folfirinox treatments and has been on them almost continuously since June 2011.  He started out getting the treatments every other week, but now gets them every three weeks.  His last few scans have shown that the tumors have shrunk by about 50%. While we wish they were completely gone, we're happy that for now they are shrinking.  Hope this information helps.

Cindy 

Did your husband have any effects of the metastasis to the lungs - hoarse voice, fluid build up, pain, cough, wheeze???

RE: Metastatic pancreas cancer with lung nodules

by swdesertlover on Tue Mar 12, 2013 01:07 AM

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The only effect he's ever had from the lung nodules is a minor cough.  It's not bad at all and has stayed about the same.  He continues to do well and had a six month break from the chemo.  He just started back the first week of February. 

Cindy

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