Pancreatic Cancer

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Pancreatic Cancer

by greeneyedgirl64 on Sun May 13, 2012 09:10 PM

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My fiance was recently diagnosed with pancreatic cancer which has spread to his liver as well as some lymph nodes. He is only 45 years old and this has came as a huge shock to us both. I had taken him to the E.R. with severe pain and this is what was discovered...He begins chemo tomorrow and the oncologist seems hopeful that he can be put in remission. We were not given any answer on life expectency and the doctor told us it's "NOt time to worry yet." We both find that hard to believe considering it is late stage and the type of cancer it is...We want to remain hopeful but it is so hard...

RE: Pancreatic Cancer

by jocook on Sun May 13, 2012 09:18 PM

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Hi there, i can understand your sense of panic. My husband has lived with pancreatic cancer for fifty one months. He has had a reoccurance and our specialist said that there have been many new drugs since he first got cancer, at that time, we had perhaps two options and now there are many more. I would be interested in the chemo is is having and i am happy to help if i can sincerely joanne

 

RE: Pancreatic Cancer

by greeneyedgirl64 on Wed May 16, 2012 02:14 AM

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On May 13, 2012 9:18 PM jocook wrote:

Hi there, i can understand your sense of panic. My husband has lived with pancreatic cancer for fifty one months. He has had a reoccurance and our specialist said that there have been many new drugs since he first got cancer, at that time, we had perhaps two options and now there are many more. I would be interested in the chemo is is having and i am happy to help if i can sincerely joanne

 

Thank you so much for your message of encouragement :-) He is getting 2 differant drus: Geminex and Avastin, not sure if I have spelled them correctly? He had his first treatment yesterday, we were there for 7 hours, 4 of which were the actually chemo drugs. The Geminex was 2 1/2 hours and the Avastin was 1 1/2 hours. He will go every 2 weeks, the Geminex always lasting 2 1/2 hours and the Avastin will decrease: next time to 1 hour and the further treatments to 30 minutes. After 2 complete cycles of this(in about 6 weeks total I think) they will run more labs and do a new CT scan to measure his progress and if the treatment is working. Thankfully he had very little adverse reaction to the first treatment, some slight nausea and fatigue but that was it. We continue to remain hopeful and I appriciate sharing stories with you and others. I hope that your husband will respond to aome new treatment and continue to live his life with those he loves, he is lucky to have you by his side :-)

                                            Elizabeth

RE: Pancreatic Cancer

by maxxschiken on Wed May 16, 2012 07:25 AM

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Elizabeth...  was this the only option provided to you for your husbands PC?  It seems to me, depending on your location and with him being so young and without any prior problems with his health and no heart problems, newer and much more aggressive protocols for a stage 4 inoperable PC like like Folfirinox would have been suggested.  Folfirinox has shown to be highly effective in beating the odds, reducing the size of tumors and making spots in the liver and nodes literally disappear thus keeping patients living longer.  You can also follow Mark Birch on the internet.  He was diagnosed in 2007 with inoperable stage 4 PC and with this protocol the tumor on his pancreas can no longer be found, the many many spots on his liver and nodes have also disappeared.  If it is available in your area, I would highly recommend this route... PC is vicious and fast spreading.  You have to nip it in the bud so to speak as early as possible with the most aggressive options available. 

Keeping you and your loved one in my prayers.

RE: Pancreatic Cancer

by greeneyedgirl64 on Wed May 16, 2012 05:41 PM

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Hello,

this is the treatment that his oncologist has recommended. We just began chemo on the 7th and he tolerated that pretty well. The doctor seemed condfident that he can get him into remission and told us not to "worry yet" and that he will let us know when it is time to worry but I am really scared...I will mention the Folfirinox to his oncologist, I am sure he is well aware of it and may try that as a second option if the current medications do not work? We live in San Diego, California and he is being treated at a really good cancer center here so we ar remaining hopeful. What is your personal experience with pancreatic cancer? Thank you for your information and concern :-)

RE: Pancreatic Cancer

by Oncrx on Wed May 16, 2012 08:11 PM

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as a general rule, stage 4 pancreatic cancer does not have a cure.  FOLFIRINOX did show a survival advantage over Gemzar alone of about 5 months.  I dont believe adding Avastin would change that much.

RE: Pancreatic Cancer

by greeneyedgirl64 on Wed May 16, 2012 08:35 PM

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I understand that pancreatic cancer does not have a good survival rate and I have read the statistics. I am however trying to remain hopeful and positive for him and enjoy our times just doing the simple things. Attitude is a big part in dealing with any type of illness. I realize that love can not cure pancreatic cancer but it can do a lot of other things and I love this man and will continue to do so no matter what...

RE: Pancreatic Cancer

by sheann on Wed May 16, 2012 09:28 PM

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Hi - interested in your reply to Elizabeth, I have been on Folfirinox since last November, last CT March 23rd showed tumor stabilized and swelling around the pancreatic area had disapeared. I am feelng good and hope this is due to the Folfirinox, I will be having another scan at tyhe end of the month.

I was diagnosed with stage 4 p/c inoperable metastases to the liver. You mentioned - Mark Birch on the internet, would it be posslible for you to give me more information, I tried just putting his name in but was unsuccesful getting any information.

I would appreciate any information you can give me, you have given me so much hope, Thank you. 

RE: Pancreatic Cancer

by greeneyedgirl64 on Wed May 16, 2012 11:09 PM

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Hi there,

this is Elizabeth. You may contact Mark Birch by email at:

Message edited by CancerCompass staff. For personal protection,email address removed. Consider private reply. Please review CancerCompass Member Guidelines athttp://www.cancercompass.com/common/guidelines.html 

                                          Elizabeth

RE: Pancreatic Cancer

by Whippleschmiple on Thu May 17, 2012 02:51 AM

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Before people follow someone's protocol at least get the facts straight.  Mark's tumors according to his own site shrunk by about half but no they are not gone.  I do believe in a mix of conventional, nonconventional and faith and exercise and dietary change.... but each patient makes there own choice.  This is the link to his site:http://markbirch.org/Scans.html

It clearly states improvement but no not gone.  I don't know if  he had adenocarcinoma or another form too.  Be careful how much faith to put into any one person even a doctor, and with docs I believe in 2nd and maybe 3rd opinions from the top docs, not a local guy who has treated a few cases.  Trials may help too. 

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