Worried about my husband

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Worried about my husband

by swdesertlover on Mon May 21, 2012 02:03 PM

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I’m so worried about what I’m seeing happen to my husband.  He was diagnosed on September 10, 2009 with stage IIB pc.  He had a Whipple followed by six months of chemo and radiation.  Scans all clean until the end of 2010 when he began to develop a cough and spots appeared in both of his lungs.  A needle biopsy confirmed mets to the lungs.  He’s been on Folfirinox treatments since and has been doing pretty well.  His cough went away shortly after going back on chemo and his last scan showed the tumors had shrunk some.  My concern now is that his dry cough started coming back in February, but he continues to tell his doctor that he thinks it’s allergies (he’s never had allergies before, he has no other symptoms of allergies and allergy medicine has not helped at all).  In addition, he is now sleeping a lot.  He sleeps about 10 to 12 hours a night and then naps all day long in his recliner.  It’s almost impossible for him to stay awake when he’s sitting down.  When he’s up and outside he seems to feel well and is still fairly active, although I’ve also noticed that any physical exertion leaves him breathing hard and usually heading back indoors to rest.  He is still eating pretty well, although not as much as he used to, and his weight is slowly creeping down.  His next scan will be sometime around the end of June.  I’m confused because his last scan seemed to be such good news, but what I’m actually witnessing is very concerning.  If anyone has any thoughts on this, I would really appreciate it.

Cindy

RE: Worried about my husband

by Guynextdoor on Mon May 21, 2012 03:20 PM

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Please see an oncologist as soon as possible.

RE: Worried about my husband

by swdesertlover on Mon May 21, 2012 03:40 PM

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Thanks.  He goes back for his next treatment in about a week, but I'm thinking about telephoning his oncologist before that appointment and letting her know what's really going on with him.  He is not always honest with her, even though I keep telling him he has to tell her everything so she can treat him appropriately.  I go with him to all of his appointments and sometimes speak up when he's less than honest, but it seems to irritate him.  I hate to do things behind his back, but I think a telephone call to her without him knowing is my best option at this point.

Cindy

RE: Worried about my husband

by BlessedDaughter on Mon May 21, 2012 04:17 PM

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On May 21, 2012 3:40 PM swdesertlover wrote:

Thanks.  He goes back for his next treatment in about a week, but I'm thinking about telephoning his oncologist before that appointment and letting her know what's really going on with him.  He is not always honest with her, even though I keep telling him he has to tell her everything so she can treat him appropriately.  I go with him to all of his appointments and sometimes speak up when he's less than honest, but it seems to irritate him.  I hate to do things behind his back, but I think a telephone call to her without him knowing is my best option at this point.

Cindy

Cindy,

Do not think of it as going behind his back because you need to have some answers to this. Maybe it has to do with the chemo and it needs to be adjusted (?) It may not be anything serious.

I am praying for you and your husband!

RE: Worried about my husband

by Oncrx on Mon May 21, 2012 04:44 PM

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Things can change fast in PC.  I would try and get another scan before the end of June.  Those symptoms are concerning for return of his lung mets.

RE: Worried about my husband

by swdesertlover on Mon May 21, 2012 04:50 PM

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Thanks.  I'm going to try to call her tomorrow.    

Cindy

RE: Worried about my husband

by swdesertlover on Mon May 21, 2012 04:51 PM

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Thanks Oncrx.  I agree; I've seen things change fast for others and that's a lot of my concern.  I'm going to try to call tomorrow and talk to his doctor.

Cindy

RE: Worried about my husband

by ItaliaPrincess on Mon May 21, 2012 05:02 PM

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On May 21, 2012 4:17 PM BlessedDaughter wrote:

On May 21, 2012 3:40 PM swdesertlover wrote:

Thanks.  He goes back for his next treatment in about a week, but I'm thinking about telephoning his oncologist before that appointment and letting her know what's really going on with him.  He is not always honest with her, even though I keep telling him he has to tell her everything so she can treat him appropriately.  I go with him to all of his appointments and sometimes speak up when he's less than honest, but it seems to irritate him.  I hate to do things behind his back, but I think a telephone call to her without him knowing is my best option at this point.

Cindy

Cindy,

Do not think of it as going behind his back because you need to have some answers to this. Maybe it has to do with the chemo and it needs to be adjusted (?) It may not be anything serious.

I am praying for you and your husband!

It is a known fact, majority of men are not as forthcoming about pains and feeling sick as women are.  We tend to be more vocal.  If I did not attend every Dr. visit with my husband, they would not have a precise picture of how he was feeling.  I am certain BOTH your husband and Dr. appreciate you being vocal!!!

             **We are our husbands' BEST advocate**

 

RE: Worried about my husband

by praying4acure on Thu May 24, 2012 02:41 PM

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Did you get to talk to the dr yet? How are things going?

RE: Worried about my husband

by chuck1943 on Thu May 24, 2012 03:59 PM

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As ha husband in kinda the same position can I suggest trying to talk your hubby to tell the oncologist himself, nothing p.o. Me more that when I think my wife throwers me under the bus, even though it for my own good. Maybe talk to the oncologist and give him or her a heads up and he or she can lead him into the right questions. Just a word from a thick headed husband hoping to help
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