Kidney cancer related to agent orange

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Kidney cancer related to agent orange

by DaddysKYgirl on Sat Jul 21, 2012 09:13 PM

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My Dad was recently Diagnoised with stage 4 RCC. We found it bc of symptoms of the tumor that was in his brain. He had the brain tumor removed May 17. He was home with me May 19. I hate to say it but brain surgery may have been the easy part of the battle he faces. He is now on Sutent. Been on it 10 days. My Aunt who has been a cancer Mom bc of my cousin now 34 who was Diagnoised at age 4 or 5 will grim prognosis did some research and found that many Vietnam Vets are now being Diagnoised with kidney cancers bc of agent orange. My Dad is a Vietnam Vet. He has 40% benefits bc of things related but was denied his agent orange claim. He has since re filed. I wanted to post this information in case some of the other Kidney cancer patients were also Vietnam Vets. Good luck to all of you. I pray my Dad lives another 30 years.

RE: Kidney cancer related to agent orange

by Lawrenceofperu on Sun Jun 29, 2014 07:57 PM

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Hello...there was in I believe 2012 a study done by the VA Hospital in Shreveport, Louisiana, which connected AO to Renal Cancer.  I have not been able to get more data from the VA, as the Dr.. who reported it in Washington, DC at the meeting of UROLOGISTS there IMMEDIATELY RETIRED, the phone number at the VA is no longer connected, and no one knows anything about it.  A request to the VA for data re the study, as is required of them by law, in an effort to assist the vet, goes unanswered.  The lady who was said to be the secretary is not to be found.  What was yet required was the PEER REVIEW.  So why is the study so secret?  Because the data was straight from the VA's own study? 

But,there are a LOT OF STUDIES WHICH CONNECT THE TWO!  One so much so that the VA dismissed it because it was so positive.  (One can't be too correct, right) I can give more data if interested.

Lawrenceofperu

 

RE: Kidney cancer related to agent orange

by CPLDavid on Fri Aug 15, 2014 06:55 PM

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On Jun 29, 2014 7:57 PM Lawrenceofperu wrote:

Hello...there was in I believe 2012 a study done by the VA Hospital in Shreveport, Louisiana, which connected AO to Renal Cancer.  I have not been able to get more data from the VA, as the Dr.. who reported it in Washington, DC at the meeting of UROLOGISTS there IMMEDIATELY RETIRED, the phone number at the VA is no longer connected, and no one knows anything about it.  A request to the VA for data re the study, as is required of them by law, in an effort to assist the vet, goes unanswered.  The lady who was said to be the secretary is not to be found.  What was yet required was the PEER REVIEW.  So why is the study so secret?  Because the data was straight from the VA's own study? 

But,there are a LOT OF STUDIES WHICH CONNECT THE TWO!  One so much so that the VA dismissed it because it was so positive.  (One can't be too correct, right) I can give more data if interested.

Lawrenceofperu

 

I was diagnosed with Urinary Bladder Cancer in April, 2013, treated using resection (surgery) several times and now my doctor found cancer cells in the left kidney. According to him, "the cancer seems to have started in the kidney and seeding the bladder which accounts for the recurrence of tumors". The doctors stated that they need to take the kidney as soon as possible to prevent spreading to other organs. My surgery is scheduled for Sept. 3, 2014. Will this hurt my case for disability? I originally filed for disability with an office that is located on the the VA hospital grounds. Was that a mistake? My problem is I now have to show proof that my cancers were caused by my exposure to Agent Orange while serving my country in Vietnam in 1968-69. I can use all of the help and information I can get. 

CPLDavid

RE: Kidney cancer related to agent orange

by Lawrenceofperu on Sun Aug 17, 2014 08:46 PM

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David, Of course I am no "expert" on which direction the VA will JUMP, but I would not think it would hurt your case. The VA accepts PROSTATE cancer.  How does the affected material get to the prostate but by route of the kidney and bladder ( as I told my rep with the Tex. Veteran's Commission...it ain't from dragging something in the contaminated soil...it isn't that long!). THere are studies which do in fac t show that they are related, one being the Seveso, Italy incident and another in the Netherlands.  And others.  The VA has just built their criteria to keep them from being PRESUMPTIVE.  BUT  COMBEE vs BROWN says you can file based on FACTS FOUND, ie, the facts of your case.

Read CITATIONS for RENAL CANCER, winners and losers.  Losers tell you why a vets case was not accepted, so you can cover that before sending in your claim, or your ammendments.  Some times it is just getting certain UNDERSTOOD items formally included in his statement..

Lawrence of Peru

RE: Kidney cancer related to agent orange

by CPLDavid on Mon Aug 18, 2014 04:20 AM

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On Aug 17, 2014 8:46 PM Lawrenceofperu wrote:

David, Of course I am no "expert" on which direction the VA will JUMP, but I would not think it would hurt your case. The VA accepts PROSTATE cancer.  How does the affected material get to the prostate but by route of the kidney and bladder ( as I told my rep with the Tex. Veteran's Commission...it ain't from dragging something in the contaminated soil...it isn't that long!). THere are studies which do in fac t show that they are related, one being the Seveso, Italy incident and another in the Netherlands.  And others.  The VA has just built their criteria to keep them from being PRESUMPTIVE.  BUT  COMBEE vs BROWN says you can file based on FACTS FOUND, ie, the facts of your case.

Read CITATIONS for RENAL CANCER, winners and losers.  Losers tell you why a vets case was not accepted, so you can cover that before sending in your claim, or your ammendments.  Some times it is just getting certain UNDERSTOOD items formally included in his statement..

Lawrence of Peru

Thank you for the information. If it is possible I would appreciate help in finding some of these mentioned citations. I am not a whiz on a computer so I am struggling on how to find the information. Are these found on the VA website or do I just GOOGLE "citations related to agent orange"? I really could use some help like maybe a link to a site or two. Any help would be appreciated. 

Thanks.

CPLDavid

RE: Kidney cancer related to agent orange

by peggyznd on Thu Aug 21, 2014 06:19 PM

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There is some precendent for assuming disability from Soc Sec with metastatic kidney cancer, which may be your situation, with involvement of the bladder.  My biggest question for you right now is as the bladder findings and any biopsies that were done in this.  What exactly were those cell, and was the bladder tumor really a kidney metastases.  If this is metastatic kidney cancer that was not obvious to that doctor and to the pathologist, you have to find a kidney cancer specialist.  This is a far more rare disease than bladder cancer, and is know to be a tricky kind of disease.  I write a blog which is based on educational info from EXPERTS, and should be a good way to get a solid understanding of the issues you may face. 

Go to www.peggyRCC.wordpress.com , and look for the earliest posts from 2012.  That includes a series of lectures at a patient conference at MD Anderson. peggyzuckerman@gmail.com   Happy to write directly.

RE: Kidney cancer related to agent orange

by cannonball on Thu Aug 21, 2014 08:11 PM

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I was in Vietnam in 1966 and I was diagnosed as being a Diabetic in the earrly Seventies   I was in a location that was sprayed consistenly. I wa diagnosed with kidney cancer in 2011. and had my left kidney removed and now I have rcc in my lungs.  I am taking Inlyta and just had to cange to this medication from voutrient.

Thanks for info on the agent orange .

Cannonball

RE: Kidney cancer related to agent orange

by Lawrenceofperu on Fri Mar 27, 2015 07:26 AM

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On Aug 18, 2014 4:20 AM CPLDavid wrote:

On Aug 17, 2014 8:46 PM Lawrenceofperu wrote:

David, Of course I am no "expert" on which direction the VA will JUMP, but I would not think it would hurt your case. The VA accepts PROSTATE cancer.  How does the affected material get to the prostate but by route of the kidney and bladder ( as I told my rep with the Tex. Veteran's Commission...it ain't from dragging something in the contaminated soil...it isn't that long!). THere are studies which do in fac t show that they are related, one being the Seveso, Italy incident and another in the Netherlands.  And others.  The VA has just built their criteria to keep them from being PRESUMPTIVE.  BUT  COMBEE vs BROWN says you can file based on FACTS FOUND, ie, the facts of your case.

Read CITATIONS for RENAL CANCER, winners and losers.  Losers tell you why a vets case was not accepted, so you can cover that before sending in your claim, or your ammendments.  Some times it is just getting certain UNDERSTOOD items formally included in his statement..

Lawrence of Peru

Thank you for the information. If it is possible I would appreciate help in finding some of these mentioned citations. I am not a whiz on a computer so I am struggling on how to find the information. Are these found on the VA website or do I just GOOGLE "citations related to agent orange"? I really could use some help like maybe a link to a site or two. Any help would be appreciated. 

Thanks.

CPLDavid

Col David,

Please let me know if you stilll need assistance...just saw your response from Aug 17th ( at that same time I was dealing with a RENAL CLEAR CELL  metastasis of the pelvis, and it has sort of had my attention.  Yes, I will be happy to assist.  I can also lead you to the many studies which I have found which have found a POSITIVE link.  The VA is trying to "set up a bottle cap at 1000 yards as a target" in order for a study to meet their requirements for the size of the study to qualify as an acceptable study  for their purposes. 

Lawrenceofperu

RE: Kidney cancer related to agent orange

by Cdphillips on Fri Apr 10, 2015 10:25 PM

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I would be interested in links also. I sent you a private message earlier. I need all info I can get. Thank you and bless you

RE: Kidney cancer related to agent orange

by Lawrenceofperu on Wed Apr 22, 2015 03:47 PM

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Peggy,
Good morning I am currently a patient at MD Anderson Cancer Center they have done biopsies of the metastasis and these show that the cancer is clear cell renal cancer from the nephrectomy that I had back in 2007 I don't really know what else is available to meet you mentioned Social Security but I'm already 72 and receiving retirement is there really an advantage to getting in touch with Social Security I'm just a dumb ol whatever and don't know anything about the Medicare Social Security benefits from the catcher whatever because I cannot work with the situation that I have although I have been trying to work I can't set up I can't stand or walk for any length of time for other reasons and this is a pretty much the same thing that fact I have another surgery next Friday and the result for this metastasis so I'm interested in what you have to say Peggy thank you.
Larry S
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