whipple surgery'''

9 Posts | Page(s): 1 

whipple surgery'''

by babygirl10 on Tue Aug 14, 2012 05:39 AM

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whipple surgery]]]  i'am very worried about my brother''

RE: whipple surgery'''

by bestfriendmom on Tue Aug 14, 2012 01:51 PM

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I understand your concern.  My mother had the whipple procedure on January 19th 2012.  She was 75 years old at the time of her surgery and did very well with the procedure.  She spent two days in ICU.  She was in the hospital a total of 7 days and then came home.  Unfortunately, she did contact C-Diff from the procedure and was in and out of the hospital for the next 3 months.  The C-Diff was much harder on her then the surgery and she almost died from it because it took three months for the to find out she had it.  It has been 9 months since the procedure.  She has had six roundds of chemo and she is starting to get her strength back.  Unfortunately, they were not able to get all of my mother's tumor and she is not able to continue with chemo and radiation and chemo.  I wish you and your family the best of luck.  I will be praying for you.  I recently read a book by Bob Brown about his experience with pancreatic cancer.  He has been in remission since 2009, his story is very ispirational, you should read it.  He was told by numerous doctors that he would not suffer but he keep on going and never gave up.  He has given me the strength to keep fighting for my mom and to keep looking for new doctors. 

RE: whipple surgery'''

by babygirl10 on Tue Aug 14, 2012 06:14 PM

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thank u for sharing with me i'am so worried for my brother hes runing a temp a'nd he keeps talking out of his mind its like the man who went in to the or is not the same man that came back out of the or'' i'am just so lost i dont know what to think' and when he does come home he still hase to get'' chemo'and radiation' so its going to be a long jurney for him ''' god bless u and ur mother'''

RE: whipple surgery'''

by bestfriendmom on Tue Aug 14, 2012 06:43 PM

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It is an extremely long and scary joureny.  It is normal to run a temp after the procedure and the pain meds are what are causing him to talk crazy.  My mother saw a clown on a bike outside her window, after her procedure, and she was on the six floor.  I know that it is hard not to freak out but you have to keep it together for you brother. He has a long road ahead of him.  The chemo will make him very tired and weak.  He will not want to eat and all he will want to do is sleep.  The radiation is even worse.  The next few months are going to be hard and he needs someone to cheer him on and keep him going.  The only way to beat this is to keep a postive attitude.  I recently read a book by Bob Brown called The Ride of my Life.  He had stage III in operable Pancreatic Cancer and has been in remission since 2009.  It really helped me to get through the bad times.  Remember that your brother needs you to get him through the next fews months.  This website is full of peole to help you get through your journey as a care giver.

RE: whipple surgery'''

by babygirl10 on Wed Aug 15, 2012 02:02 AM

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tank u so much'' im new to tis site im not sure how i even found it'' im glade i did thow''

RE: whipple surgery'''

by lucky2Bhere on Thu Aug 16, 2012 01:43 AM

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God Bless your brother & your family.

Will keep him and all on these boards in my prayers.

When is his surgery?

Think positive & pray.

RE: whipple surgery'''

by babygirl10 on Thu Aug 16, 2012 04:33 AM

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he hade the surgery last week'' he did ok with it 'now its turning bad for him with a temp and saying he seeing things thats not real'' im worried'' thank u for the prayers''

RE: whipple surgery'''

by marlene24 on Fri Aug 17, 2012 02:57 PM

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On Aug 16, 2012 4:33 AM babygirl10 wrote:

he hade the surgery last week'' he did ok with it 'now its turning bad for him with a temp and saying he seeing things thats not real'' im worried'' thank u for the prayers''

Hi,  I had the whipple done in November 2010 and I am still having many problems from it, it is a very long road and my doctors tell me that I have to accept that this is the new me and it is not going to get any better.  I had the same problem after the surgery with halucinations it is the pain meds make sure they don't have him on Hydro-morphon if they do tell them to put him on straight morphine I was better after they swithed me over because on the hydro I was sitting up in bed thinking I was cooking dinner among alot of other crazy things my husband tells me.

On this site cancer compass go to the blog "Chronic Pain after the Whipple Surgery" there are alot more people sharing there experience's about the surgery there are about 17 pages of stories that may help you.

I had the same surgeon as Bob Brown do my surgery, everybody's experience is different it is just how your body reacts, mine did not do so well afterwards.  I got pancreatitis 6 weeks after my surgery and had it for 10 weeks my pancreatic duct closed up due to scar tissue and I had to have another surgery, they had to remove another piece of my pancreas in March 2011, then in September 2011 they found 2 large incisional hernias so I had another surgery in February 2012. 

I still have pain attacks everyday varying in intensity and alot of Digestive issues that affect my quality of life dramatically.  I have lost alot of weight and I have extreme fatigue and depression of how my life is now I am 45 and it is very hard to feel like this all the time.

Please feel free to ask me any questions you have and I will do my best to help you.  But deffinately look at the other blog because there are tons of info on there everybody is trying to get answers and trying to help each other.

I wish your brother the best of luck and Please have everybody in your family try to have lots of patience and give him lots of Love.  They don't call this surgery "The Cadilac of All Surgeries" for no reason it is a Life Changer!!!

Marlene

 

RE: whipple surgery'''

by marlene24 on Fri Aug 17, 2012 03:02 PM

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On Aug 17, 2012 2:57 PM marlene24 wrote:

On Aug 16, 2012 4:33 AM babygirl10 wrote:

he hade the surgery last week'' he did ok with it 'now its turning bad for him with a temp and saying he seeing things thats not real'' im worried'' thank u for the prayers''

Hi,  I had the whipple done in November 2010 and I am still having many problems from it, it is a very long road and my doctors tell me that I have to accept that this is the new me and it is not going to get any better.  I had the same problem after the surgery with halucinations it is the pain meds make sure they don't have him on Hydro-morphon if they do tell them to put him on straight morphine I was better after they swithed me over because on the hydro I was sitting up in bed thinking I was cooking dinner among alot of other crazy things my husband tells me.

On this site cancer compass go to the blog "Chronic Pain after the Whipple Surgery" there are alot more people sharing there experience's about the surgery there are about 17 pages of stories that may help you.

I had the same surgeon as Bob Brown do my surgery, everybody's experience is different it is just how your body reacts, mine did not do so well afterwards.  I got pancreatitis 6 weeks after my surgery and had it for 10 weeks my pancreatic duct closed up due to scar tissue and I had to have another surgery, they had to remove another piece of my pancreas in March 2011, then in September 2011 they found 2 large incisional hernias so I had another surgery in February 2012. 

I still have pain attacks everyday varying in intensity and alot of Digestive issues that affect my quality of life dramatically.  I have lost alot of weight and I have extreme fatigue and depression of how my life is now I am 45 and it is very hard to feel like this all the time.

Please feel free to ask me any questions you have and I will do my best to help you.  But deffinately look at the other blog because there are tons of info on there everybody is trying to get answers and trying to help each other.

I wish your brother the best of luck and Please have everybody in your family try to have lots of patience and give him lots of Love.  They don't call this surgery "The Cadilac of All Surgeries" for no reason it is a Life Changer!!!

Marlene

 

I am sorry I gave you the wrong name of the Blog Go To  Post Whipple Surgery - Pain

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