17 months

23 Posts | Page(s): 1 2 3  Next 

17 months

by jon4156 on Mon Aug 27, 2012 11:49 PM

Quote | Reply

We are blessed.  My wife is at 17 months since diagnosis (March 2011), two months since her last Temodar cycle (June 2012), and had a great MRI, MRS, and Perfusion scan today.  No change, no sign of recurrence.  We continue to pray for those who have not been as fortunate as us and think about all our GBM family often.

RE: 17 months

by siblingof on Tue Aug 28, 2012 12:05 AM

Quote | Reply
Congrats on 17 months! We are at 20.5 months but the situation is not rosy with us at all.

RE: 17 months

by Cristiana on Tue Aug 28, 2012 02:15 AM

Quote | Reply

Dear Jon congrats and lots of new clean scans, it is possible !

We are 24 months from surgery with 2 recurrence but had stable MRI today, it's an unhappy -happy day 

best

Cris

bernadettep bernadettep
(Inactive)

RE: 17 months

by bernadettep on Tue Aug 28, 2012 02:53 AM

Quote | Reply
Congratulations! So happy for you both! We are 15 months from surgery and so far clean scans. Always mindful of those not as fortunate but hoping and praying for all brain tumor warriors. Bernadette

RE: 17 months

by mollie924 on Tue Aug 28, 2012 03:38 AM

Quote | Reply

It is great to hear your news.  For everyone who does well that means there is hope for others.  Can you tell me why your wife gets an MRS and Perfusion Scan?  The oncologist only orders an MRI.  Would like to know what these tests show and if I should be asking him about doing these tests.

RE: 17 months

by huxley2006 on Tue Aug 28, 2012 10:17 AM

Quote | Reply
Jon, Congratulations on 17 months. I am at 25 months since recurrence. A wayward spot here and there but so far so good. Its great your insurance cover the MRS. I had one about year ago and they fought me tooth and nail on it. Had to have the Dr. Call the insurance company. Hux

RE: 17 months

by CelPB on Tue Aug 28, 2012 06:06 PM

Quote | Reply

Congratulations on your 17 months!!  I pray for many many more clean scans for your wife.

Celeste - wife of Robert 8/30/60-2/11/12

RE: 17 months

by debz3j on Tue Aug 28, 2012 06:29 PM

Quote | Reply

Congrats to everyone that responded on the good MRIs.  It is truly a wonderful thing!  Hopefully a cure will be found soon.  Fight on our strong warriors.

Strength and prayers,

Debz

Wife of Jimi 05/19/57-10/29/10

RE: 17 months

by jpmog on Tue Aug 28, 2012 10:07 PM

Quote | Reply

Congrats!!! We are pretty close in timeframe as I think you noted once before ... we go in for first MRI post Temodar 9-10 and am already stressing it!

 

RE: 17 months

by jon4156 on Wed Aug 29, 2012 01:24 AM

Quote | Reply

On Aug 28, 2012 3:38 AM mollie924 wrote:

It is great to hear your news.  For everyone who does well that means there is hope for others.  Can you tell me why your wife gets an MRS and Perfusion Scan?  The oncologist only orders an MRI.  Would like to know what these tests show and if I should be asking him about doing these tests.

mollie924, I believe she gets the MRS and Perfusion simply because her NO believes all the info from multiple tests are necessary to arrive at a well formed opinion regarding her progress.  The more data they have available the better the analysis they can perform.

We have an NO at Mass General in Boston which we use as a resource for second opinions and he said that MRS was essentially not reliable in determining recurrence and so he doesn't order them.  So there you go, one NO that orders them all the time, another that says the information is not reliable.

MRS is Magnetic Resonance Spectroscopy.  They concentrate on a specific target area (called a voxel) around or near the resection area and analyze the chemical makeup of that area for Choline and Creatin, the ratio of which can indicate whether cancer cells are present.

Perfusion is an analysis of blood flow in the brain.  Tumors require much more blood flow than regular cells and so an increase in blood flow around a resected area can indicate that cancer cells are present.

Again, neither MRS or Perfusion is fool-proof and so they use them as additional resources to an MRI to garner as much info as possible when trying to decide if recurrence is present.

23 Posts | Page(s): 1 2 3  Next 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.