Possible Multiple Myeloma husband

9 Posts | Page(s): 1 

Possible Multiple Myeloma husband

by amypa on Fri Aug 31, 2012 02:20 AM

Quote | Reply

Hi..my husband got some distressing news today after seeing a gastroenterologist for some elevated liver profiles..They did some additional bloodwork and found paraprotein and M Spike with levels of IgM kappa 0.14 g/dl and IgG Kappa 0.65 g/dl.They now want him to see a hematologist/oncologist for additional tests and diagnosis and Multiple myeloma was mentioned.his mom died of multiple myeloma in 1999.  I am an absolute wreck..He has not felt well for over a year due to vertigo which could not be diagnosed despite mri, cat scans and other tests.  He is only 53..I feel lost and overwhelmed..I know I am jumping the gun but from what I know this does not look good..Are there other diseases that can cause the paraprotein/m spike..what should we be looking at next...thanks for any help you can offer..Amy

RE: Possible Multiple Myeloma husband

by Freddie8511 on Thu Sep 06, 2012 04:10 AM

Quote | Reply

Dear Amypa,  I'm so sorry.  My husband Freddie was diagnosed last year after his T10 collapsed.  So I can relate to your feeling overwhelmed.  I'd never heard of Multiple Myeloma and here you have lost a mother-in-law to it so no wonder you are a wreck.  My husband is doing well after 1 week of radiation and 5 months of Revlimid 25mg.  He had a horrible reaction to the chemo so we are trying supplements now.  He is on Marine Phyto Plankton 5000 and curcumin (you can learn more about the latter on Margaret's Corner blog).  He is doing really well so we decided to have his stem cells harvested while he is doing so well in case the cancer comes back with teeth.  You can also look the Marine Phyto Plankton 5000 capsules up on the internet.  We leave on Monday to go to Seattle where he'll have the harvesting done.  I will keep you and your husband in my prayers.  God has walked every step of this journey with us and I pray he does with you as well.  God bless, Freddie's wife  P.S. Freddie says the phyto plankton has to smell like a fish aquariam or it's no good.

RE: Possible Multiple Myeloma husband

by amypa on Thu Oct 11, 2012 04:20 PM

Quote | Reply

thank you for your kiind email and taking the time to respond..Good luck with your husband and I will keep in my thoughts and prayers..thanks again...Amy

RE: Possible Multiple Myeloma husband

by Quincypp on Thu Oct 11, 2012 08:29 PM

Quote | Reply

Hi Amy - was wondering - has you husband seen the the hema/oncologist yet? Did he get a diagnosis? My thoughts are with you and hope for the best.

I see my hema/oncologist Oct 26 - similar to your hubby over  a year of not feeling well (night sweats and fevers too)and finally an abnormal lamda/kappa ratio and other blood work that has continuously come back abnormal and they have mentioned MM to me as well. I also wonder - what else could cause these bloodwork to be out of whack. First they blamed early menopause (I'm 41)- but now with these proteins they are taking it more serious.

All the best,

Quincy

RE: Possible Multiple Myeloma husband

by amypa on Thu Oct 11, 2012 08:36 PM

Quote | Reply

We saw the hema/onco on Tuesday and protein was also found in his urine..The doc did not say MM but he is scheduled for body scan, bone marrow and biopy of fat tissue..On his dx sheet MM was listed...I'm so sorry that you are going through similar things..The protein that he has is the M protein which is a marker for MM and in his urine..It is so ovewhelming...I hope you get better news..he has not had any night sweats fevers and most of his cbc boodwork was fine..just the proteins...take care.  Amy

RE: Possible Multiple Myeloma husband

by Freddie8511 on Thu Oct 11, 2012 08:42 PM

Quote | Reply

Dear Amy,  I have such wonderful news to tell you.  Freddie was told he's in TOTAL REMISSION when in Seattle at the Seattle Cancer Care Alliance.  They are advanced and known internationally for harvesting stem cells for transplants.  Freddie harvested 10,280,000 in a day and a half.  Yes they count them!!! One of Freddie's nurses asked him what he'd been doing and he told her about the marine phyto plankton 5000 and curcumin.  She was checking into it for herself and some of her other patients!!!  Freddie now has me taking the phyto plankton as it helps your body repair itself - so anybody can use it.  And here I thought I was taking care of him.  Even more amazing is that we only had to be in Seattle two weeks.  True, Freddie didn't have a transplant, but we met people there with MM who had been over a year and one for nine months with MM hoping to get their count up.  God has so blessed us.  You are in our prayers.  Freddie's wife

RE: Possible Multiple Myeloma husband

by amypa on Thu Oct 11, 2012 08:43 PM

Quote | Reply

wonderful news indeed!!!!  Thanks for the good news!

RE: Possible Multiple Myeloma husband

by Quincypp on Thu Oct 11, 2012 11:18 PM

Quote | Reply

Keep us posted. I wish you both all the best.

Quincy

RE: Possible Multiple Myeloma husband

by Freddie8511 on Fri Oct 12, 2012 12:03 AM

Quote | Reply

Thanks Quincey.  Will do.  We're hosting our daughter's 21st birthday party tonight.  Freddie's grilling the burgers.  It's a celebration for our family.  God bless.

9 Posts | Page(s): 1 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.