After 3-plus years, the fight is almost over.

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RE: After 3-plus years, the fight is almost over.

by SouthernMaryland on Tue Oct 16, 2012 11:39 AM

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Dear ilovemybear:

As I read you post I feel the tears running down my cheeks.  You and so many others are where I was almost 3 months ago and it may as well have been yesterday as it brings it all back.  That place you speak of, the middle of asking God to send his angels quickly and the opposite, please God more time...well it's heartbreaking. 

I am praying that the angles come quick, because in the end, just like in life, you love them so much that you will trade being without them so that they can be pain free and at peace and whole once again.  When that happens you will be numb.  I think in a way it is a gift, that numbness because you will need it.    Know that you are surrounded by love and understanding.  Bless you,  

 

Barb, (Paul's Mom)

RE: After 3-plus years, the fight is almost over.

by Cristiana on Thu Oct 25, 2012 04:49 AM

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Dears Ilovemybear and Siblingof

I could have written this post myself... SO difficult to image what our loved ones are going through, we could only image...

If it would possible to share the pain and fear I am sure we would do it

Cris

RE: After 3-plus years, the fight is almost over.

by Mimione on Thu Oct 25, 2012 07:00 AM

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Hi ilovemybear,

Just wanted to tell you how sorry I am that you are having to go through this.  It is one scary rollercoaster of a ride.  I just recently lost my beloved mother, aged 88, to this cruel disease.  She had been in very good health until her diagnosis on June 14, 2012.  Because of her advanced age,  the large size and invasive nature of her tumor, she was not a candidate for radiation or chemo.  The doctors just told us to take her home and provide paliative care and to keep her comfortable.  My dad, brother and I provided excellent care to my mother.   Because of her advancing

Alzheimer's disease she did not really know the extent or seriousness of her condition.  She slept most of the days away but was not in any real pain.  She did lose her ability to walk and stand and became bedridden.  She talked very little and when she did talk it was barely a whisper.  She became totally dependent on  us for all of her care and thankfully in my earlier years, I was a Registered Nurse so was quite comfortable in caring for her except for the emotional toll all of that took on me.  GBM is a terrible diease and I pray for all of you going through it in one way or another as a patient or a caregiver.  It is not easy.  My mom passed away exactly two months to the day of her diagnosis however she was in her own bed surrounding by her loving family and just slipped away peacefully in her sleep.  If any of you have any questions that I can answer of if you just need a sounding board or reassurance or a comforting word or two, please feel free to contact me.    

 

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