A year and a half now Taceva

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A year and a half now Taceva

by DwainandSue on Tue Nov 06, 2012 06:50 PM

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What a rollercoaster ride. Most important thing we have learned and know that is very true is hope. Hope and faith. We have to admit we have lost it a tad here and their and life is pretty ugly with out it. Sorry God, but cancer sucks. We know you have always been there for us, but it its still miserable for both of us, not knowing our future outcome of this is hard. Please God keep us with peace, kindness, love and some joy throughout this difficult journey.

Yes everyone is an individual, so how can any doctor give you a time. A time your life ends. Today though we feel we would like to know, 6 months a year? How will my husband feel? Can we go on a trip? Should we sell our house? A living will? A doctor from another hospital told us 6 months to a year. Thur when we see our main doctor we know he wouldnt tell us that.

Stage 3A lung cancer survivor diagnosed April 2011

After my husbands 98 radiation treatments and 18 chemo treatments. Doctors feel it is time to switch to Tarceva. No more radiation can be done, considered high risk.

 

RE: A year and a half now Taceva

by KimmieAnne on Wed Nov 07, 2012 07:20 PM

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Hello, Dwain and Sue!

My name is Kim and I have Stage 4 nsclc.  I was given 2-3 years to live and I am now in my 10th year!

I did 2 years of chemo and 6 months of radiation.  I have been on Tarceva for 6 years now and it is saving my life!

My cancer has metastisized in my left lung lining and since taking the Tarceva, there has been no further growth.

I initially experienced "pink eye" in both eyes and loose stool.  These symptoms have gone away.  I do experience fatigue, but heck, who isn't tired at the end of a busy day!

I go to the oncologist every three months for bloodwork, since I am "pre-disposed to other cancers." 

Think positive, take the Tarceva and let the magic work.

I am praying for you both!

 

 

RE: A year and a half now Taceva

by skately on Sun Nov 11, 2012 05:37 AM

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I just signed on as a member this evening and as I read your message I glimpsed what it is like from the other person's view.  Just keep singing "One Day At a Time", like the song goes.  I believe life on earth is only  part of our journey, and we'll be separated for a short time but then we'll be together again. Doctors are all different. My sister died a year and half ago.  Her children found out she had lung cancer in Feb/Mar 2011 after she fell; she died  a few weeks later on May 2. We just lost our daughter in September . . . she had a heart and lung condition. Two years ago we were told she wouldn't live through the night but God let us have her for two more years and 3 months. You're right the journey is difficult, but we can make happy little trips and treasured memories along the way lined with hope and faith.  Thank you for sharing! I pray for a miracle for your husband.

Skately

RE: A year and a half now Taceva

by DwainandSue on Sun Nov 11, 2012 04:03 PM

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On Nov 11, 2012 5:37 AM skately wrote:

I just signed on as a member this evening and as I read your message I glimpsed what it is like from the other person's view.  Just keep singing "One Day At a Time", like the song goes.  I believe life on earth is only  part of our journey, and we'll be separated for a short time but then we'll be together again. Doctors are all different. My sister died a year and half ago.  Her children found out she had lung cancer in Feb/Mar 2011 after she fell; she died  a few weeks later on May 2. We just lost our daughter in September . . . she had a heart and lung condition. Two years ago we were told she wouldn't live through the night but God let us have her for two more years and 3 months. You're right the journey is difficult, but we can make happy little trips and treasured memories along the way lined with hope and faith.  Thank you for sharing! I pray for a miracle for your husband.

Skately

Thank-you for taking the time  to respond to our message.

One day at a time, so true.

Blessings to you and to yours

Dwain and Sue

RE: A year and a half now Taceva

by kpw455959 on Mon Dec 03, 2012 12:00 AM

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Hello this is really great news. My really good friend has been recently diagnosed with lung cancer non small cell and had 4 tumors which he recieved 2 weeks of radiation. He is being told that Chemo is not an opition but he is a candidate for Tarceva. He has no insurance for percriptions so we are praying the company gives him the medication he needs. He has the gene or something that they say Tarceva will work well with. Praying he get it sone. The tumor in his lung is making it hard to get oxygen.

RE: A year and a half now Taceva

by KimmieAnne on Mon Dec 03, 2012 04:00 PM

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Contact Genen-tech Pharmacuetical Company.  They are the manufacturer of Tarceva.  They do have patient assistance.

You can also go to tarceva.com and read about Tarceva.

You are both in my prayers.  Tarceva is saving my life daily.

RE: A year and a half now Taceva

by BethanyH on Mon Dec 03, 2012 10:09 PM

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I thought you initially stated that you were able to live on Tarceva for a year and a half.  So sorry. My husband, stage 4 lung cancer and yes a roller coaster ride.  I am sitting in James Cancer center on day 5 after failed pain management attempts to find out what is the blockage in Gregg's esophogus.He has not eaten in 10 days. IV fluids only and we were told Thursday prior to being admitted that we will not be strong enough to handle Tarceva and Doc recommended us to go home with hospice. Gregg just turned 54 yrs old! Just a note to you, the James Cancer center is not God.  Google flax seed meal and lignans.  This was just brought to my attention on Thanksgiving. Would you believe Friday after Thanksgiving was last day we could have started something since Gregg cannot swallow without being in excruciating pain.  10 days with no food.  my prayer is that we can put a stint in his esophogus with this EDG procedure that they will finally due in the am. God is still in control. Can you imagine if there would be something that can regress cancer and it is not poison ( Tarceva!). what a blessing.  Something in me tells me that that would be God's way.  IF we could only try it with God first before man's way.  May the Lord bless you.  keep me posted . I would love to know this would work for someone else too. Also we were to start Tarceva and met mad phase 3 clinical study. This was suppose to have good results.  Something to prayfully consider for yourself.  Ask God to make it clear and He will in His way to you.  Love in Christ, Beth

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