T2 Adenocarcinoma, Chemo?

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T2 Adenocarcinoma, Chemo?

by RocknIraqVet on Wed Dec 05, 2012 06:59 AM

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I was diagnosed 9-25-2012, incidental discovery after having my gallbladder removed for gallstones.

I am in my fourth week of recovery from liver and node surgery.

I am staged T2N0M0.  I would like to hear from anyone with this same diagnosis, and hear if you had chemo after resection surgery, as insurance to prevent recurrance.

RE: T2 Adenocarcinoma, Chemo?

by lourdes726 on Fri Dec 07, 2012 04:05 AM

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 I WAS DIAGNOSED 4-12-10 after gallbladder surgery , incidential finding as well. I was 47 at the time. I also had a liver resection afterwards and was diagnosed T2N0MO. I had several different opionions about chemo and radiation , some doctors recommended it and some did not. I did do radiation for 5 and hald weeks with a chemo pump at the same time 5fu,and later I had 5 more months of chemo. First I had xeloda, but did not tolerate that well and I was swithced to gemar which I tolerated just fine. I have scans every 6 months and blood work and have been clear. I will be 3 years out April and I am hoping for the best. After searching the internet it seems that the few survivors that I did find that emailed me all had some type of chemo afterwards. I felt that these cancer is so rare and dadly I needed to do everything possible, even if it was proven to help to try to beat this. 

RE: T2 Adenocarcinoma, Chemo?

by RocknIraqVet on Fri Dec 07, 2012 05:00 AM

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Thank you so much for your reply.  I'm 51 years old.  Brand new to all this.  I'm at home recovering from the big surgery right now and trying to educate myself.  Learning a lot.  My regular physician who I have been going to for years, seemed sure I would have chemo, after the liver resection surgery.  The doctors who did the resection (at UCLA) said that all I need is surviellance.  So this confused me a little and I am concerned.  

I have an appointment next Tuesday with an Oncologist.  I have another appointment with a second Onc. set up for 1-8-2012 (soonest they could get me in).

I'm of the same opinion as you, lourdes726, I've read the statistics and don't want to miss my shot at making sure to kill all the cancer cells.  Thank you very much for the response it helps a lot in sorting all this out.

RE: T2 Adenocarcinoma, Chemo?

by lourdes726 on Sat Dec 08, 2012 02:02 AM

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I also had my resection at UCLA( small world)! My surgeon there did not recommend chemo or radiation, but I did travel to Dana Farber abd they did recommend chemo and radiation as did my local oncologist. I think very highly of the surgeon at UCLA, but I still felt that I didn't want any regrets if the cancer came back. I also could only find a few survivors online with my stage and they had received radiation and chemo and they are close to 5 years and one has passed the fve year mark. There is no real research because there are so few of us out there, so it is a hard call to make. I also know of another women with our stage that went to Mayo clinic and she had chemo but radiation was not recommended. I did see an oncologist as well from UCLA after my discharge and he was very gloon and doom and did recommend chemo as well. My case was brought up at the tunor board at UCLA and I was told some doctors felt I should pursue chemo and others felt I shouldnt. I am from las vegas so I traveled home and pursued other opionions as well. I wish you much luck in your future treatments and in this cancer journey. It sucks to have to go through this. 

RE: T2 Adenocarcinoma, Chemo?

by Maudsie on Sat Dec 08, 2012 09:36 PM

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Lourdes!  Thanks for responding to Rick so quickly.  He found me through Bloch as you did, and he was looking for a T2 person to talk to.....I was thinking of you, naturally.....and here you are!

The the world of gallbladder cancer, the world IS small.

RE: T2 Adenocarcinoma, Chemo?

by RocknIraqVet on Sun Dec 09, 2012 01:36 AM

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On Dec 08, 2012 9:36 PM Maudsie wrote:

Lourdes!  Thanks for responding to Rick so quickly.  He found me through Bloch as you did, and he was looking for a T2 person to talk to.....I was thinking of you, naturally.....and here you are!

The the world of gallbladder cancer, the world IS small.

Yup.  I contacted Livestrong, which led me to Imerman Angels, which led me to R.A. Bloch Cancer Foundation.  Maudsie told me about this message board.  Can't tell you how much this helps.  Thanks!

RE: T2 Adenocarcinoma, Chemo?

by lourdes726 on Sun Dec 09, 2012 05:20 AM

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Maudsie nice to hear from you. Glad to hear that you are still reaching out to people through the Bloch Foundation. You are a great source of information and it is always so nice to hear how well you are doing!

RE: T2 Adenocarcinoma, Chemo?

by RocknIraqVet on Thu Dec 13, 2012 05:50 PM

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I found this online calculator-

http://skynet.ohsu.edu/nomograms/GBindex.html

Gallbladder Cancer: Will your patient benefit from Post-Operative Radiotherapy?

I'm curious what y'all think about this.

RE: T2 Adenocarcinoma, Chemo?

by Maudsie on Thu Dec 13, 2012 06:09 PM

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Wow, Rick, interesting calculator.  And scary.  And I think totally whack.  I am T3.....and my survival rate is under 50% at 24 months because ....why?  Where do they get these stats?  They even have T2s mostly not surviving this.  Like I said, totally whack when we know that surgery can be completely curative, and basically IS curative for T1 and T2s.    But the overall message seems maybe accurate to me, which is: radiotherapy can help, if there turns out that there are stray cells out there to be zapped...but not a big help.

I guess you are trying to decide whether you should have radiation or not.  Hard to call that one.  In my case there was little question, I went for it, but for you... dunno.  I know you want to pull out all stops on this, I guess I'd ask what the downside to the radiation really is.

Maudsie

RE: T2 Adenocarcinoma, Chemo?

by RocknIraqVet on Thu Dec 13, 2012 06:09 PM

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I should add this appears to be a recent publication in 2012.  It is from the Knight Cancer Institute in Oregon.

http://skynet.ohsu.edu/nomograms/

2012 by the Department of Radiation Medicine, Oregon Health & Science University

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