T2 Adenocarcinoma, Chemo?

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RE: T2 Adenocarcinoma, Chemo?

by CindyWain on Fri Feb 10, 2017 05:36 PM

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Been watching this thread and now to put my 2 cents in. I was diagnosed Stage 2 after gallbladder removal in summer 2016, then went to Loma Linda for a liver resection with clear margins/no node involvement. Tumor board at Loma Linda (my case went before the tumor board several times to make recommendations on my treatment plan-for me it was like the whole oncology department guiding my care) recommended an Adjuvant treatment found in a phase II study published in Journal of Clinical Oncology (vol 33, number 24 aug 20, 2014 pg 2617-2622) in August of 2014 called SWOG S0809. I had 4 cycles of Gemcitabine IV/Capecitabine oral (Brand Name: Xeloda®) (3 weeks on, one week off) followed by oral capecitabine concurrent with Proton Radiation to the surgical site and lymph nodes for 38 days.  I had very few side effects, biggest problem was emotional I think. My Tumor markers were never elevated. The surgeon wants the blood test every three months while I am under surveliance. Have only had one post treatment CT scan and won't have one until next year. The surgeon said the  Tumor markers are not extremely reliable in Gallbladder cancer but it is the only tool he has to use right now to try to catch a recurrence early and for now I should have those blood test regularly until something better comes along. He warned me that the problem with gallbladder cancer is once you have symtoms then it is pretty far advanced...and when.if it comes back it could be just about anywhere but mostly the lungs, bones and liver is where it likes to go. I feel pretty certain I have done what I can. So according to what I have been told the Tumor markers are like guides to the progress of the disease, but not definte indicators of  the disease. When they are elevated, further studies need to be done. So right on Lora for the doctor to do follow up! Have courage. 

RE: T2 Adenocarcinoma, Chemo?

by pandawarrior on Fri Feb 10, 2017 07:16 PM

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Hello Cindy,

Thanks for giving your "2 cents". First of all, God bless you for fighting this monster type of disease! My mom's oncologist did tell us that the tumor marker blood test is not used solely as a screening test for cancer spread. But since finding out that her levels have been increasingly elevated from her first tumor marker test, it's disconcerting especially knowing that GC is an aggressive type of cancer. We will now have to wait for her CT scan appointment as that's the next course of action while still on chemo.

Your chemo/radiation treatment plan sounds very similar to what my mom is going through now. If I may ask, where are you now after going through the chemo and radiation. No more cancer? 

RE: T2 Adenocarcinoma, Chemo?

by Maudsie on Fri Feb 10, 2017 07:57 PM

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excellent summary.  thanks, Cindy!

RE: T2 Adenocarcinoma, Chemo?

by CindyWain on Fri Feb 10, 2017 08:57 PM

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Right now I feel really good...as if the Cancer had never visited me! I do have a little feet swelling now and then (usually if I am inactive or sit a lot)  but using compression hose helps a lot when it happens. Never had that before, I think that could be the result of the removal of Lymph nodes. 

My liver resection in Oct 2015 was of the 4B and 5 segments. They removed  12 lymph nodes. They found tumors in the liver that turned out to be benign. I had a small section of my incision with delayed healing that gave me minor issues; I was uncomfortable for an extended amount of time...I finally stopped having occasional pain at the surgical site about Dec 2016. In Oct 2016 I had my first followup PET/CT scan, my ocologist said he considers me to be in remission, but I have to remain alert to any changes since this cancer is very sneaky. In Nov 2016 the Surgeon said I am to return in one year and recommended I follow up with the oncologist with Tumor markers about every 3 months and send him the results (CEA and CA19-9). 

RE: T2 Adenocarcinoma, Chemo?

by CindyWain on Fri Feb 10, 2017 08:58 PM

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I guess I should tell you I will be 69 yrs old this month.

RE: T2 Adenocarcinoma, Chemo?

by Nbcarole on Tue Feb 21, 2017 09:41 PM

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I was diagnosed with T2M0N0 2 years and 8 months ago had a radical cholesyectomy with no cancer spread to my liver or lymph nodes. Since then I have had all clear Pet scans or CT scans every 6 months. A year ago my CA919 blood test started slowly rising from 34 ( at the time of surgery) and was 299 last week. I had a Pet scan Feb 14 and it showed a 1.6 cm change area where my GB used to be and also that area was highly hit with radiation. So, there was a change but it is not a tumor and it is not in my liver. My Oncologist doesn't want to give me any Chemo unless she is sure this is cancer and not inflammation. She said rising CA919 numbers can be a sign of inflammation, possibly from Radiation. I have an appt with my surgeon tomorrow, and they are presenting my case to the tumor board tomorrow morning at Kaiser in Irvine, CA. DR said possibly a biopsy or surgery to confirm whether this is inflammation or cancer recurrence. Any comments or feedback is appreciated from members of this board. Anyone else have rising CA919 numbers? Carole

RE: T2 Adenocarcinoma, Chemo?

by Rnjsmoy on Thu Feb 23, 2017 01:39 AM

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Hello, my CA-19 has been going up since December.  It had actually gone down to the low 200's but now is up to 2674.  It was the lowest between my 4th and 5th cycles of Cisplatin/Gemcitabine, but then started creeping up again.  A repeat PET Scan in January confirmed the cancer is growing.  I'm currently in my 2nd cycle of Oxaliplatin/Capecitabine.  I haven't been feeling great and I wonder if this is due to the Chemo or the cancer?  Thanks.

RE: T2 Adenocarcinoma, Chemo?

by WillieRay on Thu Feb 23, 2017 10:22 PM

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I am in a similar situation. Had a T2M0N0 GB tumor found incidentily after  GB removal in Jun 2014. Had liver resection in Aug 2014 with followup rediation/chemo in Nov 2014.

In Dec 15 my CA199 started climbing above 25. My last CA199 in Jan 2017 was 2500. During this same period I have had 4 PET scans - all perfectly clear. I feel great and am an active 80 year old

My 2 oncoogists are confused totally. Now doing 6 month wait for another CA199 and then a CT in June.

No one mentioned sign of inflammation. Interesting.

Any and all comments most welcome

RE: T2 Adenocarcinoma, Chemo?

by Nbcarole on Fri Feb 24, 2017 10:43 PM

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Willie Ray was that last CA919 number 2500? Mine was 299. Nothing showed up last March but this time a small 1.6 cm area lit up where my GB used to be. Biopsy scheduled in 2 weeks through endoscopy. I feel absolutely fine so I'm happy about that. My Dr wants confirmation before we start more Chemo, which would be the Gemzar and Cistplatin I think. I'll keep everyone posted. It's been 2 years and 9 months since my diagnosis of T2N0M0 and resection.

RE: T2 Adenocarcinoma, Chemo?

by innashuman on Fri Mar 10, 2017 11:31 PM

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Hi, how are you doing ? Just want to ask you a question about Xeloda side effects . My oncologist added Xeloda pills to my gemcitabine IV . She told me about side effects of Xeloda . What did you experienced with Xeloda ? Thank you . I.S.
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