T2 Adenocarcinoma, Chemo?

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RE: T2 Adenocarcinoma, Chemo?

by innashuman on Fri Mar 10, 2017 11:43 PM

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Hello , I have almost the same diagnosis , T2,N0, T0, also had liver resection segments 4 and 5 with complications after surgery . 5 lymph nodes and liver biopsy were negative . My oncologist started iv gemcitabine , but I never had radiation . I finish 7 sessions of gemcitabine from 18 , and she wants to add Xeloda pills , all Markers are negative . Next ct will be done in a few weeks . I am inNY , Sloan Kettering. So scare to start Xeloda because of side effects . How you tolerated Xeloda ? Thank you I.S.

RE: T2 Adenocarcinoma, Chemo?

by Maudsie on Sat Mar 11, 2017 12:27 AM

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Hi -- not sure if you were directing that question to me.  Probably not.  But since I ha the exact same diagnosis, surgery, and similar follow-up, I will tell you how Xeloda was for me.  And, actually, it's not too bad.  I had it first, before my course of gemitabine. I had Xeloda along side radiation, and I really couldn't tell much change.  For several weeks.  Toward the end, the last 2 weeks or so -- yes, stomach started feeling bad, crampy, achey, so by the time it was over I was much relieved.  Everyone's experience is pretty individual, but don't worry too much.  Most side effcts an be managed pretty well, and just keep close communication with your oncologist.  keep in touch!

RE: T2 Adenocarcinoma, Chemo?

by CindyWain on Sat Mar 11, 2017 05:07 AM

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I  had Xeloda with my IV chemo and also concurrent with the radiation. The side effects they told me about were indeed upsetting, but they are required to tell you all that and it does not mean you will have them. I made sure to follow the directions very carefully, I kept a diary of when (time of day) I took the pills, when i ate and how I felt and showed it to my doctor at every appointment, he seemed to appreciate that. I started to get mouth sores but I used salt water mouth rinses and made sure to keep my mouth clean and drank lots of water and it made it go away. Nausea was always present but again drinking lots of water helped and keeping busy as I was able, lots of walking and fresh air helped. concentrated on eating healthy helped too. I never had to reduce my dose although the doctor gave me directions of how to reduce it. 

RE: T2 Adenocarcinoma, Chemo?

by innashuman on Sat Mar 11, 2017 07:59 AM

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Thank you so much . I.S.

RE: T2 Adenocarcinoma, Chemo?

by Maudsie on Sat Mar 11, 2017 11:08 AM

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Cindy makes good points and reminds me: I also had a pretty exact routine when I took my xeloda, ate carefully, and kept daily notes.  It really helped when I wanted to recall information to report to the oncologist...and it also gave me a sense of control somehow.  This control thing, taking notes, doing research, paying attention to detail...I guess it was purely psychological...but it helped.  :)

RE: T2 Adenocarcinoma, Chemo?

by innashuman on Sat Mar 11, 2017 04:25 PM

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Thank you . I.S.

RE: T2 Adenocarcinoma, Chemo?

by pandawarrior on Thu Jun 15, 2017 04:27 PM

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Hi again, 

My mom completed 4 cycles of Gemzar and CT scan was done afterwards to find that tumor in her duodenum was present. It was there when she had ct scan done in the very beginning of chemo therapy bc consistent elevated CA 19 tumor markers, but at that time it was a suspicious smaller mass thought to be fat deposit and was confirmed after finishing chemotherapy to be a tumor. Good news is that no spread of cancer except for that tumor that was growing to begin with. 

Now she has started radiation therapy in conjunction with taking Xeloda 5x/week for the next 5 weeks. It's been 11 days now on this radiation therapy. She has been losing weight since starting radiation and has lost of appetite. And recently developed thrush. 

Has anyone been through similar symptoms being on radiation therapy? Hoping she will remain strong. She will be seeing a nutritionist to help with maintaining her weight.

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