Tarceva

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Tarceva

by lstewart on Fri Mar 15, 2013 04:10 AM

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I am 49 years old and have stage IV NSCLC that has mets to my spine.  I have been on Tarceva 150 mg  since Nov 2012 and I am doing GREAT.  At first I had the rash on my face, neck, upper back that was sore to the touch and later turned into  acne.  Things got much better around the second month.  I still have dry skin and occasional small splits in my skin, but nothing that is too unpleasant.  I had the stomach upset and diarrhea for the first few months and continue to have bouts of it, but again is was totally tolerable.  I had my first PETSCAN in Januray 2013 and the tumor in my lung has shrunk 40% and 2/3rd's of the hot spots/lessions are starting to heal.  I thank God everyday for allowing man to make this drug, and have been truly blessed!!

RE: Tarceva

by DwainandSue on Thu Mar 21, 2013 11:15 PM

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I agree with you about tarcava I had 98 rad treatments and 4 chemo sessions nothing worked My doctor but me on 150mg that was to strong. I am now on 100mg Tarceva 5mo now 3rd pet in april have been in remission 3mo. Hang in there.

RE: Tarceva

by Ravensara on Sat May 25, 2013 01:39 PM

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I have been NED on Tarceva for the 3 years I have been on it.  There was some rash initially but saw a suggestion to take a 3 day break and the rash went away.  I still get a red spot or mouth sore from time to time.

My big problem is gastrointestinal to the point of a 10 day hospitalisation and a Crohn's diagnosis a year ago.  Daily struggles with stomach cramps and diarhea.  I've had to completely eliminate caffiene.

I like Cetaphil products for the dry skin issues.  Tried many things and always return to that.

Here is what I devised to treat those painful fingertip splits:

After trying uncounted multitudes of things to treat those nasty little splits  at the corners of my fingertips I developed the following recipe/procedure. You can get these ingredients at most pharmacies and grocery stores. If I do this several times/week the splits never come.

1 c. distilled water or aloe vera juice (not gel)
1/4 c. glycerin
1/8 c. good oil (e.g. evening primrose, jojoba, sweet almond, olive)
a few drops essential oil, if desired. Calendula extract is good, too, but basic recipe works fine.
unpowdered disposable gloves. I like the blue nitrile ones the best and can get large boxes of them at BJs

Combine all ingredients in spray bottle. Shake well for each use and spray 5-10 times into the gloves. (put on gloves) I wear them overnight but even a few hours/day is good.

If you have problems with your toes, the way I did (several infections) daily soaks in Epsom salts at the first sign of pain always works. Also gel booties sold at bed bath and beyond are nice.

Hope it works for you the way it does for me!
Jackie

RE: Tarceva

by lstewart on Tue May 28, 2013 02:30 AM

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On May 25, 2013 1:39 PM Ravensara wrote:

I have been NED on Tarceva for the 3 years I have been on it.  There was some rash initially but saw a suggestion to take a 3 day break and the rash went away.  I still get a red spot or mouth sore from time to time.

My big problem is gastrointestinal to the point of a 10 day hospitalisation and a Crohn's diagnosis a year ago.  Daily struggles with stomach cramps and diarhea.  I've had to completely eliminate caffiene.

I like Cetaphil products for the dry skin issues.  Tried many things and always return to that.

Here is what I devised to treat those painful fingertip splits:

After trying uncounted multitudes of things to treat those nasty little splits  at the corners of my fingertips I developed the following recipe/procedure. You can get these ingredients at most pharmacies and grocery stores. If I do this several times/week the splits never come.

1 c. distilled water or aloe vera juice (not gel)
1/4 c. glycerin
1/8 c. good oil (e.g. evening primrose, jojoba, sweet almond, olive)
a few drops essential oil, if desired. Calendula extract is good, too, but basic recipe works fine.
unpowdered disposable gloves. I like the blue nitrile ones the best and can get large boxes of them at BJs

Combine all ingredients in spray bottle. Shake well for each use and spray 5-10 times into the gloves. (put on gloves) I wear them overnight but even a few hours/day is good.

If you have problems with your toes, the way I did (several infections) daily soaks in Epsom salts at the first sign of pain always works. Also gel booties sold at bed bath and beyond are nice.

Hope it works for you the way it does for me!
Jackie

Hi Jackie ~  This is great info and thank you.  If you don't mine me asking what is NED?  Also since you have been on it for 3 years how is your cancer going?

 

God Bless!!

 

Laura

RE: Tarceva

by KimmieAnne on Tue May 28, 2013 03:45 PM

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Good Morning! I am Kim and I have IV NSCLC diagnosed in 2003 (given 2-3 years to live) and here I am today!  I had two years of chemo, 6 months of radiation, took Irressa for 6 months and changed to Tarceva.  I have been able to take Tarceva 150 mg successfull for the past six (6) years!  Tarceva is a miracle drug and I am so grateful!

My cancer metastisized to my lung lining and the Tarceva has shrunk the size of the mets.

This is my miracle drug!

 

 

RE: Tarceva

by lstewart on Tue May 28, 2013 03:52 PM

Quote | Reply

On May 28, 2013 3:45 PM KimmieAnne wrote:

Good Morning! I am Kim and I have IV NSCLC diagnosed in 2003 (given 2-3 years to live) and here I am today!  I had two years of chemo, 6 months of radiation, took Irressa for 6 months and changed to Tarceva.  I have been able to take Tarceva 150 mg successfull for the past six (6) years!  Tarceva is a miracle drug and I am so grateful!

My cancer metastisized to my lung lining and the Tarceva has shrunk the size of the mets.

This is my miracle drug!

 

 

Hi Kim ~  This is GREAT news and you are a testament to God's grace and mercy!!  Thank you for signing in for all to see how well Tarceva is working.  It makes my day and gives so many hope!!  God Bless!!

Laura

RE: Tarceva

by KimmieAnne on Tue May 28, 2013 06:07 PM

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Hey, Laura!  NED means No Evidence of Disease.

RE: Tarceva

by Ravensara on Tue May 28, 2013 11:03 PM

Quote | Reply

On May 28, 2013 2:30 AM lstewart wrote:

On May 25, 2013 1:39 PM Ravensara wrote:

I have been NED on Tarceva for the 3 years I have been on it.  There was some rash initially but saw a suggestion to take a 3 day break and the rash went away.  I still get a red spot or mouth sore from time to time.

My big problem is gastrointestinal to the point of a 10 day hospitalisation and a Crohn's diagnosis a year ago.  Daily struggles with stomach cramps and diarhea.  I've had to completely eliminate caffiene.

I like Cetaphil products for the dry skin issues.  Tried many things and always return to that.

Here is what I devised to treat those painful fingertip splits:

After trying uncounted multitudes of things to treat those nasty little splits  at the corners of my fingertips I developed the following recipe/procedure. You can get these ingredients at most pharmacies and grocery stores. If I do this several times/week the splits never come.

1 c. distilled water or aloe vera juice (not gel)
1/4 c. glycerin
1/8 c. good oil (e.g. evening primrose, jojoba, sweet almond, olive)
a few drops essential oil, if desired. Calendula extract is good, too, but basic recipe works fine.
unpowdered disposable gloves. I like the blue nitrile ones the best and can get large boxes of them at BJs

Combine all ingredients in spray bottle. Shake well for each use and spray 5-10 times into the gloves. (put on gloves) I wear them overnight but even a few hours/day is good.

If you have problems with your toes, the way I did (several infections) daily soaks in Epsom salts at the first sign of pain always works. Also gel booties sold at bed bath and beyond are nice.

Hope it works for you the way it does for me!
Jackie

Hi Jackie ~  This is great info and thank you.  If you don't mine me asking what is NED?  Also since you have been on it for 3 years how is your cancer going?

 

God Bless!!

 

Laura

Thank you for ewsponding and asking how I'm doing.  There is still currently no evidence of disease.  My Dr. thinks that I may be able to stop taking Tarceva in a few years if my scans continue to stay clean!

How are you doing, Laura?

Jackie

RE: Tarceva

by Ravensara on Tue May 28, 2013 11:06 PM

Quote | Reply

On May 28, 2013 3:52 PM lstewart wrote:

On May 28, 2013 3:45 PM KimmieAnne wrote:

Good Morning! I am Kim and I have IV NSCLC diagnosed in 2003 (given 2-3 years to live) and here I am today!  I had two years of chemo, 6 months of radiation, took Irressa for 6 months and changed to Tarceva.  I have been able to take Tarceva 150 mg successfull for the past six (6) years!  Tarceva is a miracle drug and I am so grateful!

My cancer metastisized to my lung lining and the Tarceva has shrunk the size of the mets.

This is my miracle drug!

 

 

Hi Kim ~  This is GREAT news and you are a testament to God's grace and mercy!!  Thank you for signing in for all to see how well Tarceva is working.  It makes my day and gives so many hope!!  God Bless!!

Laura

Thank you for ewsponding and asking how I'm doing.  There is still currently no evidence of disease.  My Dr. thinks that I may be able to stop taking Tarceva in a few years if my scans continue to stay clean!

Kim - 6 years is amazing!  So ha[[y for you.  Taeceva truly is a miracle drug!

How are you doing, Laura?

Jackie

RE: Tarceva

by lstewart on Tue May 28, 2013 11:40 PM

Quote | Reply

Hi Jackie ~ I am doing great.  I am so happy for your great news.  You give so much hope to all of us who have NSCLC!  Glory to God!  I have a PETSCAN in July so will know more than but feel super!

Laura

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