biopsy and conization results differ dramatically

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biopsy and conization results differ dramatically

by vegan on Tue Mar 19, 2013 06:46 PM

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Hi all,

I am writing here because I cannot find an answer to my questions on German-speaking forums.

I had a biopsy and colposcopy in January this year. Diagnosis: Adenocarcinoma in situ of the cervix.

A week ago the conization followed. Result: nothing could be found. Neither irregular cells nor a precancerous stage, nothing, nada.

How is this possible? Anybody here with similar experience?

My doctor said that the biopsy has already removed all the precancerous Adenocarcinoma in situ.

Ever heard of that? A biopsy removing all precancerous tissue so that nothing can be found in the conization tissue???

I am interested in all ideas and help!

Thanks a lot,

vegan

RE: biopsy and conization results differ dramatically

by spider92 on Thu Mar 21, 2013 07:02 PM

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I don't have any answers to your question, as I was actually the opposite.  When I had my biopsy and colposcopy the doctors found CIN3 cells.  They ordered a cone and the doctor thought everything would be just fine after the cone.  Turns out the pathologist found poorly differentiated adenocarcinoma of the cervix (Stage 1).  The doctor did not have the margins he needed to make a determiantion as to whether he had gotten all the cancer.  At this point I was told I needed a hysterectomy immediately.  However, I desired fertility and found I had an option to do a trachelectomy or another cone.  I had follow up tests, MRIs, colposcopies, etc. by three different doctors and none could find any evidence of the cancer still being there - hence the decision to be less aggressive and go with the cone.  Due to certain circumstances it was 6 months before my cone (not recommended).  The doctor found some residual invasive adenocarcinoma and some in situ carcinoma but was able to get it all and have the margins he needed.  I am now awaiting the results of my first follow up Pap.  Originally I was told it would be an ECC, but it was just a Pap.  Now I am left wondering how they will catch the cancer if it should be recurrent, as the Pap and Colposcopy could not detect it the first time?

RE: biopsy and conization results differ dramatically

by Lolo8282 on Thu Mar 28, 2013 08:36 PM

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Hi, Spider, not trying to hijack the thread but have you received your results from your pap back?

As to the original question.  I don't know.  I can only go from what my doctor's told me so take it with a grain of salt and I could be wrong.  I believe when it is in-situ, it's still contained.  SO, it is possible to get it all during the biopsy and the cone is more a follow-up step to ensure there is no invasive cancer present?  It's better to have the cone come back as "no cancer".  I'm sure any women on here who've been through cancer could answer more definitively. 

RE: biopsy and conization results differ dramatically

by weez1967 on Sun Apr 14, 2013 08:05 PM

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I would pursue another opinion if it were me (because it was me at one time) I was told nothing was wrong, to I had CC, to I had endometriosis..ended up being Stage IIB CC.

continue pursing and do not stop until you get your answer is all I can suggest.  I am a stage IIB survivor of 20 years, but I did the fighting when no one else would take me seriously. 

sometimes, you have to be own advocate and you know your body best. If there is anything I can help you with, please message me or see my profile for more information. 

God bless!

RE: biopsy and conization results differ dramatically

by linpal on Mon Apr 22, 2013 01:56 PM

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Years ago, I too had a diagnosis of cancer cells in the cervix. I had  a cone biopsy and the doctor told me that the procedure actually took out all the cancer cells. I have never had any more problems. I have pap smears every two years now and in 30 years I've had no more cancer.   I hope this helps you.

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