ca19 normal what's next?

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ca19 normal what's next?

by jdlinder on Tue Apr 16, 2013 08:54 PM

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So, my last ca19-9 levels were normal 33.Yay !!! But I still have a 2×2.9cm tumor on my pancreas and 2 spots on my liver. I have been on folfirinox for 5 months and folfiri for the last 2 months due to neuopathy. I am getting a Splenic Arterial Embolization done next month for my enlarged spleen and to keep my platelets up during my next months of chemo. Any thoughts on what else I can do to decrease the tumor size and live spots? Love my ca19-9 and feel great but want to see the tumor and spots gone!!!! Any ideas would be appreciated! Thanks.

RE: ca19 normal what's next?

by Harts on Wed Apr 17, 2013 01:09 AM

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Hi. Congrats on the low tumor marker numbers. What were they at your high? I also had to have my enlarged spleen removed....but the cancer of pancreas couldn't be touched. The spleen was eating up my platelets too.  I have spots in my liver that have never changed since diagnoses in Dec. 2010. Spots in the lungs which some got smaller, some get biggger and some disappear. Tumor on the pancreas shrunk from about 6cm to 4 cm.. I feel really good most of the time.

Hopefully after your spleen is removed you can kill some more cancer cells with more chemo. And most importantly PRAYER!!!

Karen

RE: ca19 normal what's next?

by Gretchen72404 on Wed Apr 17, 2013 12:40 PM

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On Apr 16, 2013 8:54 PM jdlinder wrote:

So, my last ca19-9 levels were normal 33.Yay "" target="_blank" rel="nofollow">http://33.Yay " target="_blank" rel="nofollow">33.Yay !!! But I still have a 2×2.9cm tumor on my pancreas and 2 spots on my liver. I have been on folfirinox for 5 months and folfiri for the last 2 months due to neuopathy. I am getting a Splenic Arterial Embolization done next month for my enlarged spleen and to keep my platelets up during my next months of chemo. Any thoughts on what else I can do to decrease the tumor size and live spots? Love my ca19-9 and feel great but want to see the tumor and spots gone!!!! Any ideas would be appreciated! Thanks.

Hi.  Have you checked into getting the Nanoknife done for the tumor on the pancreas?

RE: ca19 normal what's next?

by cb531 on Wed Apr 17, 2013 05:08 PM

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Do they do the CA19-9 levels on everyone? no one has ever mentioned it to my mom.

thanks cathy

RE: ca19 normal what's next?

by bushy on Tue Apr 23, 2013 04:07 AM

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cathy

As far as I am aware CA19-9 blood test is done on all Pancreatic Cancer Patients as to track how high or low the Tumor markers are,as well as CT scans and various other tests, perhaps it would help to ask your Mothers doctors to find out her levels.

bushy

RE: ca19 normal what's next?

by jeffrey-d on Thu May 23, 2013 01:46 PM

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My father had low CA 19-9 levels for at least half a year (<17), but now levels have risen to 27 (three weeks ago) and 65 this week. My father is on FOLFIRINOX as of July of last year. And the intervals are now three weeks.

All other bloodwork is only showing improving rates. The pancreas did not show any cancer activity anymore on the last two PET and CT scans; two out of three metastasis didn't show any activity either and the last one showed a significant shrinkage.

Does anyone know if the increase is within normal range?

RE: ca19 normal what's next?

by aus6321 on Thu May 23, 2013 04:54 PM

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On Apr 17, 2013 5:08 PM cb531 wrote:

Do they do the CA19-9 levels on everyone? no one has ever mentioned it to my mom.

thanks cathy

Don't forget there are two kinds of pancreas cancer: neuroendocrine and adenocarcinoma (the more common one).  The ca19-9 levels are normally monitored for those with adenocarcinoma.  For neuroendocrine, the docs will monitor other things like a CgA level.

If your mom does have adenocarcinoma, the doctors should be using the CA19-9 levels as a metric.  If they haven't told your mom what her levels are, it's probably good idea to understand why.

RE: ca19 normal what's next?

by cb531 on Fri May 24, 2013 01:18 AM

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I finally asked the drs my moms levels were 14300 in March they are down to 1100 and tumors on Pancreas has shrunk tumors on liver shrunk and lympnodes shrunk. Mom has stage 4 adenocarinoma.  Dr said this is wonderful news but 1100 is still high to me.  I can't ask the dr anything in front of mom she does not want to know I have 5 brothers and sisters and they only want to hear the good stuff I need to hear it all! Mom lives with me I need to know what to expect!!!!

thanks cathy

RE: ca19 normal what's next?

by Harts on Sat May 25, 2013 02:01 PM

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Those are great results Cathy. Prayers and treatments are working.  Do you have power of attorney for your Mom....maybe they would provide you more info about her with that ..not sure.

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