Exploratory Surgery??

15 Posts | Page(s): Prev 1 2 

RE: Exploratory Surgery??

by dlind48 on Thu Jul 04, 2013 08:04 PM

Quote | Reply

I just had my 6 month visit at Mayo in Scottsdale, as well as an oncology surgigal consult. My tumors are essentially unchanged, showing measurable growth on my scan. All my labs were good, except that my pancreastatin was slightly elevated. I had it done here in Tucson 3 months ago, and it was 85, but the results a couple of weeks ago at the Mayo Clinic were 125. The Tucson lab's normal range is up tp 135, however the range for the Mayo's test is only up to 88. I'm wondering if every lab has different evaluation protocols that would account for the difference in ranges. I'm not too concerned and will wait 3 months to see what level I'm at then. The surgical consult pretty much confirmed what I suspected - continue Sandostatin, 3 month blood work and 6 month scans -  until things start to go south, then revisit the surgical options, of which there are several. My surgeon from last summer very coldly told me, "There is nothing more I can do for you.", which has been weighing heavily on my mind for all this time. The Mayo doctors are questioning his findings as they feel my disease has not progressed as much as he indicated in his surgical notes, especially regarding the level of my liver involvement. It made me feel so much more hopeful to know that there is, in fact, much more that can be done when circumstances indicate a more aggressive approach, and that my doctors are proactive and optimistic about my outlook. Best of luck to you, and I hope you will continue to post your progress.

RE: Exploratory Surgery??

by dlind48 on Thu Jul 04, 2013 08:05 PM

Quote | Reply

OOPS...tumors showing NO measurable growth!

RE: Exploratory Surgery??

by kelly97 on Tue Aug 06, 2013 12:30 AM

Quote | Reply

After my appt with my oncologist & the chief of surgery, & he also brought in 2 other surgeons to discuss, they've decided not to do the surgery. My oncologist wants to take out lymph nodes near the central/backside of my mesentery and in my retroperitoneal area. The surgeon said he wouldn't be able to get to them laproscopically - only the lymph nodes around the periphery, which would do us no good.

So, instead, he's started me on Sandostatin subq injections.

RE: Exploratory Surgery??

by dlind48 on Tue Aug 06, 2013 02:34 AM

Quote | Reply

Has an exploratory laparotomy been considered? That was the only way we discovered the extent of my disease, since nothing was showing up on my scans or lab work. Maybe they feel it would be overkill for you at this point.

I don't know if it's the shots or the indoent nature of the disease or maybe a combination of both, but over the past year, my disease has stayed essentially unchanged. I'd like to think it's the shots that are helping. I have developed one troubling symptom, which is a painful area in my right armpit. I just discovered this yesterday, so I'm hoping it is a plugged sweat gland or a cyst of some sort. I'll give it a week or 2 to resolve before I let myself get too concerned. Let me know how you do on the shots. They do hurt, but hopefully, whoever gives them to you is really good and has a technique that makes them less painful. I've discovered a gem of a nurse where I go, and I insist on getting her every time, even if I have a longer wait.

Best of luck to you, and I hope you keep posting with your progress.

RE: Exploratory Surgery??

by kelly97 on Sat Aug 31, 2013 11:14 PM

Quote | Reply

They're not considering the laparotomy right now. The chief of surgery doesn't want to do it, unless he knows there's something there for sure.

I've been on the subq octreotide shots for about a month now. I have noticed less frequent flushing and bowel movements.

I'm also in the process of having Dr O'Dorisio review my records at the Univ of Iowa to see if he'll agree to let me have a gallium 68 scan. I hope my insurance will pay for at least a part of it.

I recently had an endoscopy EUS. They found 2 - 3cmx2cm lymph nodes in the peri-portal region next to my liver that they biopsied. Maybe won't find out the results for another week or two.  These have never shown on any scan. I'm amazed at how much is missed or doesn't show on these scans....  I hope I get a more definitive answer when the biopsy results come back.  

15 Posts | Page(s): Prev 1 2 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.