Protocel

28 Posts | Page(s): 1 2 3  Next 

Protocel

by ntmarinov on Fri May 03, 2013 03:31 AM

Quote | Reply
Hi everyone, has anyone tried Protocel for their prostate cancer? My father is currently fighting a metastatic prostate cancer. His PSA is above 100 but the worst part is he is bed ridden and in lots of pain. He did beam radiation therapy 2 times for 10 day stretches and Zometa every 28 days but he has gotten much worse since starting those treatments back in October of 2012. I read about alternative treatments and Protocel seems worth trying. Any help is greatly appreciated. Also, any advice on pain management?

RE: Protocel

by Canderson on Sun May 12, 2013 03:05 AM

Quote | Reply
My husband was was diagnoses in07'. He had the Di Vinci robotic surgery. Two years later we his PSA started going up again. He had Tomotherapy as the Proton Theraphy was int available in our area. I researched alternative treatments and he started Paw Paw and Cantron. I believe that those two alternative supplements helped him. Now four years later his PSA is going up again.. Dr, gave him a hormone shot a month ago and he goes back in two weeks for another PSA test. After that he will be trying another alternative supplement. He cannot have Proton Theraphy because of having had the Tomo Theraphy. I think your father should try the Protocel or Cantron. Good luck.

RE: Protocel

by ntmarinov on Sun May 12, 2013 08:30 AM

Quote | Reply
Thanks for your response. I am getting cautiously optimistic about Protocel. I haven't heard about Cantron though. Any additional info on it will be appreciated. Thanks and best of luck to you!

rjcrossley rjcrossley
(Inactive)

RE: Protocel

by rjcrossley on Sun May 12, 2013 12:51 PM

Quote | Reply

On May 12, 2013 8:30 AM ntmarinov wrote:

Thanks for your response. I am getting cautiously optimistic about Protocel. I haven't heard about Cantron though. Any additional info on it will be appreciated. Thanks and best of luck to you!

Protocel Looks good All he can do is give it a try let us know how it works out take care Ray

 

RE: Protocel

by Lilliane on Mon May 13, 2013 06:03 AM

Quote | Reply

On May 03, 2013 3:31 AM ntmarinov wrote:

Hi everyone, has anyone tried Protocel for their prostate cancer? My father is currently fighting a metastatic prostate cancer. His PSA is above 100 but the worst part is he is bed ridden and in lots of pain. He did beam radiation therapy 2 times for 10 day stretches and Zometa every 28 days but he has gotten much worse since starting those treatments back in October of 2012. I read about alternative treatments and Protocel seems worth trying. Any help is greatly appreciated. Also, any advice on pain management?

Hello,

We are Protocel veterans.  My husband was diagnosed with Gleason 10 Pca in April of 2012. We were horrified with the Dx and the treatment proposed, hormone therapy to be followed by radiation.  It was metastatic to seminal vesicles and lymphs. We tried Protocel with other supplements as recommended by a Naturopathic Doctor.  The results: Total failure.  In four months his PSA went from 22 to 222, and two "indeterminate" spots on his pelvis went to "innumerable Prostatic lessions" on pelvic, femur and ribs. Pain was horrible, nausea was constant and debilitating, and he had lost 30 pounds. 

We immediately changed to Integrative Therapy, at Seattle Cancer Treatment and Wellness Center, which gave us a Naturopathic Oncologist working together with a Medical Oncologist.  They recommended Low Dose Chemo, with IV Vitamin C Therapy and other supplements.  I can truthfully and happily say that that worst day on Integrative Therapy was better than the best day on Protocel.  We wasted thousands of dollars and precious time on Protocel. Hope this helps someone else avoid the scam we went through.

My husband is not cured, but his cancer is being managed-and very effectively.  He is now on Hormone therapy and Zytiga, plus several supplements, and a very healthy diet.  He feels well, and is able to participate in life again. He is not as strong as before he was sick, but is so much better than the nightmare of last summer.

I would also recommend consultation with a Medical Oncologist Specializing in Prostate Cancer.  Dr. Charles "Snuffy" Myers is one with several very good books, and there are several others. We consulted with one affiliated with the University of Washington, and his recommendation was the same as where we are going, so it gave us additional confidence.

 Also if possible, the Naturopathic Oncologists. I don't know where you live, but last year there were 50 of them across the US, this years graduating class will add several more.

What worked for my husband's pain after trying all the "natural" stuff that did not work was oxycodone-and the low dose chemo.  Within 2 weeks, he no longer needed the pain meds at all.  I hope this helps, I will be glad to answer any other questions you might have about our experience that could be of help to you in helping your father. 

RE: Protocel

by ntmarinov on Mon May 13, 2013 01:05 PM

Quote | Reply
Hi Lilliane, Thanks for your response, although a little discouraging. Did your husband's pain start after you started Protocel or was he in pain before that? Did he experience any of the symptoms described as typical while on Protocel (such as lysing)? My dad was on Zometa for the last 6 months and the doctors did 2 10-day sessions of beam radiation, but his condition has rapidly deteriorated to being confined in bed. His arms and legs gave up on him in the last 3-4 weeks. How are your husband's metastasis? Did he experience a reduction of his tumor as a result of the chemo and Zytiga? Thanks

rjcrossley rjcrossley
(Inactive)

RE: Protocel

by rjcrossley on Wed May 15, 2013 02:34 AM

Quote | Reply

On May 12, 2013 8:30 AM ntmarinov wrote:

Thanks for your response. I am getting cautiously optimistic about Protocel. I haven't heard about Cantron though. Any additional info on it will be appreciated. Thanks and best of luck to you!

I just read some realy damaging reports about Protocel not good from what I have read it quite useles ing treating cancer

RE: Protocel

by Lilliane on Wed May 15, 2013 05:54 AM

Quote | Reply

 Hi ntmarinov,

Sorry for the discouragement, but better to know ahead of time, and skip the disappointment, the inconvenience and the nausea.  All of which would be worth it if it worked, but it did not at all for my husband, and we followed the program very faithfully. 

When we found out the Protocel was acting like fertilzer on the cancer, we went to Integrative care, and while the cancer is not cured, nor even in remission, it is "controlled" and he is feeling well.

He did have some "lysing" symptoms, but he was so nauseated the whole 4 months he was on it, and had so many issues with constipation,  initial pain that got worse and worse on Protocel then spread to the bones, and extreme weight loss.

He is on  Zytiga, Lupron, Prednisone, and Xgeva (for bones)  He has no pain, prostate or bone, and is working outside in the yard doing some fairly heavy work.  I think the difference is in the Naturopathic treatments which also accompany the drugs, fish oil, curcumin, pommegranate, lycopene and a good multi vitamin, plus 10 mg Melatonin at night. Most of these supplements recommended by our Naturopathic Oncologist are also highly recommended by Dr. Snuffy Myers, Medical Oncologist Specializing in Prostate Cancer and author of some great books on Pca.

He did not have radiation, but did have low dose Chemo-taxotere, carboplatin and one other. This was again accompanied by supplements, IV vitamin C 25,000 units, extra protein in a smoothie along with other things which I believe improved his quality of life nearly 100% over the Protocel treatment. I don't know if his tumor has reduced or not but PSA went down to 8.9 from 52 last month, we go next week and will see what it is then.  As I said, he went from being an invalid to doing very well. Not as strong as before, the Lupron causes muscle loss, but all in all for a Gleason 10 stage IV cancer, he is doing great.  In fact we will be doing some travel this summer while he is still feeling well. I wish the best for your father, that you can find something that will give him better quality of life.

I feel very strongly that many in the medical profession are often quite cavilier about the brutality of prostate cancer treatment, and pay very little attention to quality of life issues.

Thinking of you!

Lilliane

RE: Protocel

by Lilliane on Wed May 15, 2013 05:58 AM

Quote | Reply

Forgot to add this to the other post, Cantron is the same thing as Protocel, just sold under a different name.  There are lots of annecdotal stories of being healed of cancer, but no studies, no clinical evidence, and there was certainly none in our case, as I mentioned in the other post, it was almost like fertilizer for my husbands Pca. For us, Protocel was the great false hope.

rjcrossley rjcrossley
(Inactive)

RE: Protocel

by rjcrossley on Wed May 15, 2013 08:11 PM

Quote | Reply

On May 15, 2013 5:58 AM Lilliane wrote:

Forgot to add this to the other post, Cantron is the same thing as Protocel, just sold under a different name.  There are lots of annecdotal stories of being healed of cancer, but no studies, no clinical evidence, and there was certainly none in our case, as I mentioned in the other post, it was almost like fertilizer for my husbands Pca. For us, Protocel was the great false hope.

Hi Lilliane sorry it dident work out But glade he doing OK If you dont mine me asking what it cost you for the four months he was on it

28 Posts | Page(s): 1 2 3  Next 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.