irinotecan and slurred speech

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irinotecan and slurred speech

by HopefulChic on Thu May 09, 2013 01:15 AM

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Just wondering if anyone else has experienced this. my dad started his second round of folfirinox chemo and developed slurred speech after the irinotecan infusion, it happened last time too, but was more pronounced this time. he also has the shakes in his hands.

RE: irinotecan and slurred speech

by sheann on Thu May 09, 2013 06:34 PM

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I have had the same symptoms of slurred speach during chemo if I remember right it happened during the first few treatment after that it got less, hope your Dad is tolerating the folfirinox with out to many side effects.

Take care good luck and blessings, Sheann

RE: irinotecan and slurred speech

by maxxschiken on Fri May 10, 2013 09:02 AM

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My wife never experienced slurred speech during folfirinox.  Irinotecan was eliminated during her very first four hour infusion to see how she tolerated the other three drugs and since she did fine, they introduced it on her second treatment and maintained the 4 drugs in the folfirinox coctail for 10 months.  Hopefully the slurred speech symptom is only related to how your Dad's tongue feels from these drugs as my wife's tongue during treatment and even on off weeks felt thick and slime-y.  It affected her taste buds but never her speech.  Make sure the slurred speech isn't a symptom of a stroke though as this combo has been known to cause mild to severe strokes in a small percentage of participants.  Praying your Dad is able to tolerate folfirinox with results showing his cancer is responding to the treatment.  It worked wonders for my wife.

RE: irinotecan and slurred speech

by Kjohnchas on Fri May 10, 2013 09:47 AM

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My husband never had slurred speech,I don't really understand about the different chimo ,the one my husband had,I have never seen on this site. He had no problems with it and his doc said they were doing a aggressive treatment

RE: irinotecan and slurred speech

by maxxschiken on Fri May 10, 2013 12:29 PM

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On May 10, 2013 9:47 AM Kjohnchas wrote:

My husband never had slurred speech,I don't really understand about the different chimo ,the one my husband had,I have never seen on this site. He had no problems with it and his doc said they were doing a aggressive treatment

Are you your husbands primary caregiver?  Do you want to understand more about the drugs being used to treat your husbands condition?  If so, you should inquire with his oncologist about what he is taking.  In fact, you should make a list of everthing he is taking so if in the future he is unable to speak for himself, say for instance if he becomes too ill and has a hospital visit, you can provide the information needed to healthcare professionals making his assessments.  In the U.S. as long as the patient approves it, you should be able to know everything and every detail about what is happening with him during treatment.

RE: irinotecan and slurred speech

by Harts on Fri May 10, 2013 01:24 PM

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I had slurred speach after folfirnox. I always said I was at the chemo bar. HaHa. I couldn't walk straight and couldn't talk right. Sensitivity to coldness in my mouth and fingers and feet. Numbness in hands and feet, sometimes cramping too. ( my fingers and toes to my calves continue to be numb. Other chemos still have that side effect ) Nausea, loss of appetite, diarreah, etc. Side effects stink BUT the "chemos" are gaining me more precious time with family and friends.

May God's peace rain on you both, Karen

RE: irinotecan and slurred speech

by sheann on Fri May 10, 2013 05:36 PM

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Hi Karen, I just had to message you because so many symptoms from the folfirinox that you had I also had, the day of chemo is a right off for me - the walking and talking, sensitivity to coldness the neuropathy in my hands and feet have stayed with me since beginning treatment, even when I had a six month break. I was diagnosed September 2011 so it has been 18 months not bad considering I was given six months, I would be interested to hear how long you have been on folfirinox. I hope you continue to do well and that the side effects will lessen, especially the nausea and diarrea.

Take care Blessings Sheann

RE: irinotecan and slurred speech

by Harts on Fri May 10, 2013 07:01 PM

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On May 10, 2013 5:36 PM sheann wrote:

Hi Karen, I just had to message you because so many symptoms from the folfirinox that you had I also had, the day of chemo is a right off for me - the walking and talking, sensitivity to coldness the neuropathy in my hands and feet have stayed with me since beginning treatment, even when I had a six month break. I was diagnosed September 2011 so it has been 18 months not bad considering I was given six months, I would be interested to hear how long you have been on folfirinox. I hope you continue to do well and that the side effects will lessen, especially the nausea and diarrea.

Take care Blessings Sheann

Hi Sheann. I started with 10 sessions of folfirnox. Then 23 sessions of Gemzar. Then back to 10 sessions of folfirnox. I'm now on Abraxane/ Gemzar combo. I've had 17 sessions so far... I have a CT scheduled for Monday, results on Tuesday. I'll update on the message board. My Doctor changed the chemos because the tumors in my lungs keep growing...the pancreas is not growing ) This chemo combo has the least side effects for me. I have little nausea, food tastes bland and sometimes a fever for a day. Not bad at all. My bowels behave now too. ( the numbness continues in my fingers and feet) I was diagnosed 12-20-10. Given about 5 months to live. But with chemo they said I could live 12-18 months. That was ....28 months ago. Honestly I feel really good. I'm babysitting my 8 month old Grandson today. I walk alot, bike and kayak. Eat and drink what I want. In fact, I'm getting fat. I take no drugs or supplements. (my doctor does insist I take blood thinner shots because of the numerous nodules through out my abdomen and lungs). I put my trust in God. I enjoy everyday that I'm blessed with.

Gods blessings to you, Karen

RE: irinotecan and slurred speech

by sheann on Fri May 17, 2013 02:05 AM

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Hi Karen, congratulation on beating the statistics my prayers are with you for good results on your CT scan, you sound as if you are doing very well with plenty of energy, it is great to hear and gives me so much hope, I am doing ok had chemo yesterday, lots of energy today which I hope lasts for nine days at least as my husband and I with some friends will be on our way to Burmuda tomorrow then  back home to the Toronto area for my next chemo. 28 months and you are doing great I am just hitting 18 months, I do a twenty minute work out almost every day and like you walk a lot weather permiting, I do have the numbness in my fingers and feet which I have had for about 14 months I do take Gabapentin which I do think has helped but I have to use a pencil with an eraser to use when typing.

My thoughts and blessings are with you, Sheann

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