37 year old with locally advance pancreatic cancer

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RE: 37 year old with locally advance pancreatic cancer

by Kjohnchas on Wed Jun 19, 2013 08:53 AM

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This is so true,my husband has PC and been off treatment almost 3 months. We go to ctca and he really likes it there,they are out of network but they handle everything,he has a ct and pets can every 2 months. The tumor is shrinking,and hasn't spread,he is in hospital now with bleeding from stomach ,they say from taking aspirin for his heart,UNREAL,but coming home today. It seems its always something once you have cancer,feel depressed today I guess

RE: 37 year old with locally advance pancreatic cancer

by cb531 on Wed Jun 19, 2013 04:31 PM

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Hi PunkyD,

Is your mom still on Gemzar and Abraxane that is what my mom is taking since March and tumors are shrinking!! Tumor markers are stable. How is she doing now.

 

thanks, Cathy 

RE: 37 year old with locally advance pancreatic cancer

by PunkyD on Fri Jun 21, 2013 05:31 AM

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Hi Cathy,

Sorry, I missed this post.  Just found it now.  My mom is off chemo.  My mom's tumors (1 lesion on liver and several small in lungs) have remained stable for the past year, but her numbers have decreased dramatically, so I'd say that the Gemzar/Abraxane combination is a good one, for our moms at least!  Unfortunately, she got ascites and pain, which caused a rapid/steady decline in her overall condition, and now she is bedridden and trying to get her strength back.  Last night she had chicken and potatoes!!!!, real food for the first time in weeks.  I think she may actually be getting slightly better now that she is off chemo.  I guess she needed a break.  A doctor is supposed to assess her this morning to see if she is in good enough shape to undergo a proper draining in a hospital and afterwards, take a special medicine to permanently dry up the ascites.  Keep your fingers crossed.

Glad to hear the chemo combo is working for your mom.  As long as she can take it, go for it!  Is she at home?

Hope your mom's feeling well, PunkyD

RE: 37 year old with locally advance pancreatic cancer

by cb531 on Fri Jun 21, 2013 04:04 PM

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On Jun 21, 2013 5:31 AM PunkyD wrote:

Hi Cathy,

Sorry, I missed this post.  Just found it now.  My mom is off chemo.  My mom's tumors (1 lesion on liver and several small in lungs) have remained stable for the past year, but her numbers have decreased dramatically, so I'd say that the Gemzar/Abraxane combination is a good one, for our moms at least!  Unfortunately, she got ascites and pain, which caused a rapid/steady decline in her overall condition, and now she is bedridden and trying to get her strength back.  Last night she had chicken and potatoes!!!!, real food for the first time in weeks.  I think she may actually be getting slightly better now that she is off chemo.  I guess she needed a break.  A doctor is supposed to assess her this morning to see if she is in good enough shape to undergo a proper draining in a hospital and afterwards, take a special medicine to permanently dry up the ascites.  Keep your fingers crossed.

Glad to hear the chemo combo is working for your mom.  As long as she can take it, go for it!  Is she at home?

Hope your mom's feeling well, PunkyD

Thanks PunkyD,

Mom also has Ascites in the abdomen but doesnt' seem to be bothering her thank god. her tumor numbers are coming down but still in the 1000s she also eats well but everything she puts in her mouth comes right out. thanks for responding and Punky I pray that your mom gets stronger and they can remove the ascites so she can have some relief!!

God Bless Cathy

RE: 37 year old with locally advance pancreatic cancer

by RugbyMom on Fri Jun 21, 2013 04:18 PM

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On Jun 14, 2013 2:19 PM vanessab wrote:

Hi,

My brother is 37 yrs old and was diagnosed with localy advance pancreatic cancer in November 2012. He has an unresectable mass encasing the supior mesentric artery. He was initially treated with 6 cycles of FOLFIRINOX and had only a modest response. He was never hospitalized or had any infections while FOLFIRINOX.  He was then treated with chemoradiation.  At which point a CT scan relvealed nothing new.  There is no evidence of distant metastasis.  

At this point his oncologist has told him there is nothing else he can do for my brother except continue to monitor him until progressive disease developes and then attempt further chemotherapy with Gemzar and Abraxane.

my brother has been without any treatment for about 5 weeks now. His dr did not give any other options. We live in miami and are looking for a second opion but have no clue where to begin. We are also trying to see if there is any possible way for him to be seen at either MD anderson or John Hopkins, we are waiting on insurance.

Any suggestions??  He is only 37 yrs old and there must be at least some other tretment he can try.  Unfortunatley his oncologist is of no help.

Vanessa

Vanessa, I went to a NCI facility. They have the most up to date research. I chose Vanderbilt because it was closest to where I live, but I was also accepted to MD Anderson. I feel, any of the NCI facilities are your best bet with PC. Best of luck & prayers for you all. Here is the link: http://www.cancer.gov/researchandfunding/extramural/cancerce

RE: 37 year old with locally advance pancreatic cancer

by healthy.life on Fri Jun 21, 2013 04:53 PM

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Hi Vanessa,

My prayers go out to you and your family. I'm a student pursuing my degree as an ND. MD's get little to no nutritional training in med school and it's sad to see that they are so closed-minded to the power of nutrition healing the body. The following nutritional supplements have been around for 25 years and are backed by clinical results. One of the most recent findings being that the Lunasin peptide in the products inhibits cancer cells; giving cancer patients great results and a fighting chance when used consistently and properly.

http://www.americanaci.org/2-extreme-nutrition.html

Please contact me if I can be of further assistance. 

I wish your brother the very best and hope he can see the value in this opportunity.

In Health and Happiness,

Christena

RE: 37 year old with locally advance pancreatic cancer

by vanessab on Fri Jun 21, 2013 05:22 PM

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Thank you to all of you for your thoughts and suggestions.  My brother has gone to see a new oncologist who is to me a much better fighter on my brothers side.  

They will start treatment with Abraxane next week.  She has also suggested a Dr here who has experience with Nano Knife. Thankfully, he is feeling much better gaining back his weight and getting stronger everyday.  

We know this is a long road ahead of us.

Praying for the best for all our loved ones.

RE: 37 year old with locally advance pancreatic cancer

by PunkyD on Sat Jun 22, 2013 08:48 PM

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Hi Cathy,

So nice to get a reply from someone.  Just arrived at my parents' house after not having been here since Tuesday.  I heard she didn't have such a good day today.  Seeing her tonight feels like the end.  Her pain and discomfort is increasing as well as other obvious physical signs. 

So glad to hear that your mom is not bothered by her ascites and that she is eating well.  We are at a much different stage.  The palliative nurse is supposed to visit tomorrow.  She is amazing support.  I am getting scared.  Sat by my mom's side and rubbed her a lot and held her hand. 

Hope your mom keeps feeling well. 

PunkyD 

RE: 37 year old with locally advance pancreatic cancer

by randr2210 on Sat Jun 22, 2013 11:59 PM

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On Jun 21, 2013 5:22 PM vanessab wrote:

Thank you to all of you for your thoughts and suggestions.  My brother has gone to see a new oncologist who is to me a much better fighter on my brothers side.  

They will start treatment with Abraxane next week.  She has also suggested a Dr here who has experience with Nano Knife. Thankfully, he is feeling much better gaining back his weight and getting stronger everyday.  

We know this is a long road ahead of us.

Praying for the best for all our loved ones.

Please do research the Nanoknife.  If it means you must travel to get treatment, then do it.  I recently had the procedure and now I have hope.  Hope that I can beat this disease, and hope that I won't have to live on chemo the rest of my life.  After a year of that poison, living through the side effects, this is a ray of hope for me.

RE: 37 year old with locally advance pancreatic cancer

by healthy.life on Sun Jun 23, 2013 12:49 AM

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Best wishes sent your way....always.

 

Christena

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