1 year post esophagectomy

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1 year post esophagectomy

by Jennydb on Mon Sep 02, 2013 09:26 PM

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Hi there, 

I'm new to this forum, posted a message a couple of months a go but think it got lost along the way.

i

I'm 32 and this time last year I had an esophagectomy (95%) removed and part of my stomach, surgery done in Dublin.  To patients who have had similar surgery, does hunger ever come back? I'm beginning to think at this stage it won't.. or the sick fullness feeling?  

Also, and this is a long shot, is there anyone who has had children post surgery?  

Thank you to anyone who replies, I don't like pestering the hospital with queries and its nice to have a message board where you can speak to people who are going through a similar experience.

Jenny x 

RE: 1 year post esophagectomy

by Aoife on Tue Sep 03, 2013 06:09 AM

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Yes, I did - was diagnosed same age as you and have sent you a private message, speaking of which, have to get my son and daughter up :)

RE: 1 year post esophagectomy

by jripsky on Thu Sep 05, 2013 03:30 AM

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I am six years out from my esophagectomy. yes hunger will come back, in fact you will be eating everything thst you did before. Just keep in mind, you shoiuld always be eating smaller meals, six to eight time a day.

My expiereance is, this new normal is, I stlll do everything I did before E/C just not as hard or as much. But I am 73 years old and a my kids tell me " Dad you have to slow down some day".

RE: 1 year post esophagectomy

by slteaches on Thu Sep 05, 2013 07:39 PM

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Hi

I am 2 1/2 years passed an esophagectomy and I can say I don't get hunger pains anymore.  I get a different feeling when I am obviously hungry which is a little nauseas.  When I eat I feel better.  I've read about people who have had children after esophagectomies.  When I had mine there was a fellow at Memorial Sloan Kettering Hospital who learned from my doctor who was from Ireland.  He went back there 2 years ago.  He was great.  His name was Dr. David Healy.

RE: 1 year post esophagectomy

by Aoife on Thu Sep 05, 2013 09:24 PM

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I married 2 weeks after chemo and did not have time to preserve my eggs - had the total oesophagectomy in 2007.  I was very lucky to have my 2 and 3 year old post surgery (diagnosed age 32) and am now 39.  I would love one more but have to have words with my husband.

Eating gets easier with time - hunger, not so sure but I do lke food.

RE: 1 year post esophagectomy

by valbennett on Sun Sep 08, 2013 06:12 PM

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Hi,

I am 11 years post esophagectomy and yes, hunger does come back.   Just remember to eat small meals or snack many times a day.  Large amounts of food can give us trouble.

This is a long journey, adjustments have to be made in our lifestyle, but fortunately the survival rate for this cancer is lengthing.

When I started this journey 11 years ago EC was very rare and it was very hard to find any long term survivors, today there are many of us.

Treatment received is critical, one of the best EC teams is in California ar USC Medical Center.  the best EC doctor in the US is Jeffrey Peters in Rochester New York.

We are slowly winning the war with the terrible cancer, this is not a death sentence.   

RE: 1 year post esophagectomy

by DanBlack on Mon Dec 23, 2013 09:45 PM

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On Sep 02, 2013 9:26 PM Jennydb wrote:

Hi there, 

I'm new to this forum, posted a message a couple of months a go but think it got lost along the way.

i

I'm 32 and this time last year I had an esophagectomy (95%) removed and part of my stomach, surgery done in Dublin.  To patients who have had similar surgery, does hunger ever come back? I'm beginning to think at this stage it won't.. or the sick fullness feeling?  

Also, and this is a long shot, is there anyone who has had children post surgery?  

Thank you to anyone who replies, I don't like pestering the hospital with queries and its nice to have a message board where you can speak to people who are going through a similar experience.

Jenny x 

Just saw your post today.

Surgery was 11.12.12  My esophagus was almost totally blocked when they first discovered tumor.  I went through two round of chemo and 23 sessions of radiation before esophagectomy.

I was 58 at time of surgery.  Appetite comes back, mostly, but food doesn't have the same meaning.  I still think I'd like to eat my old favorite foods, but it's been so long I don't think about it much.  My weight is slowly getting back to where it was before.  My activity level is pretty OK, though, as a runner/triathlete, I'm still not as fast, and may never be.

I still have bad days.  I still get hiccups.  I still get the "sick fullness" you mentioned.  Everything is improving, but WOW - it sure takes a while.  Had my 1 year checkup a couple weeks ago.  I'm "ahead of the curve" but it still might be another full year before I reach the new "normal." 

I'm past the child-rearing stage.  Hoping to spoil grandkids soon!  Good luck to you.  As far as I know, there's no reason you shouldn't be able to have kids.

Best of everything to you!  God bless you!

Dan

RE: 1 year post esophagectomy

by Aoife on Sat May 02, 2015 08:01 PM

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I was 32 when diagnosed and had my two post treatment (I am also a type 1 diabetic), 8.5 year survivor now.

RE: 1 year post esophagectomy

by doingfine on Mon May 04, 2015 08:20 PM

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I am also 11 years past surgery and treatment.  I have a great appetite and have gained lots of weight.  Some foods still bother me, but I know what to eat and how much.  YES,  I actually get hungry and enjoy it.  Give it one more year and you will not believe the difference.

RE: 1 year post esophagectomy

by doggone on Wed May 06, 2015 05:41 PM

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Jenny-I probably had a similar operation 3.5 years ago. I eat three meals a day with snacks rarely. I usually have a full feeling, except perhaps first thing in the morning. I am never truely hungry as I was pre-op. My weight has settled about 8-10 pounds lower now and that's been a concern. 

Otherwise I am reasonably active ( walk, work out at a gym, train dogs) and am in great shape according to my doctor (at age 68). 

Keep moving and enjoy what you do!

MK

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