Tarceva 150 mgs.

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RE: Tarceva 150 mgs.

by schuckers on Thu Oct 03, 2013 02:32 PM

Quote | Reply

Thank you KimmieAnne!

So far I have had a slight rash.  It started on my face.

Actually my nose, red and swollen and then up to my eyes.

That was miserable!  Nothing bad at all..........does it come

back with a vengence!!!!???  I have no other side effects.

Thank God!!!!!

Keeping you and everyone else in my prayers.

Schuckers

RE: Tarceva 150 mgs.

by pcr1953 on Sun Oct 06, 2013 07:12 PM

Quote | Reply

On Oct 03, 2013 2:32 PM schuckers wrote:

Thank you KimmieAnne!

So far I have had a slight rash.  It started on my face.

Actually my nose, red and swollen and then up to my eyes.

That was miserable!  Nothing bad at all..........does it come

back with a vengence!!!!???  I have no other side effects.

Thank God!!!!!

Keeping you and everyone else in my prayers.

Schuckers

kimmieanne, the doctor gave you 2 or 3 years with stage iv?  What other places did you have cancer than your lung?

I found out that I take a acid reflux medication omeprazole which counteracts tarceva as tarceva needs the acid in the stomach to work.  I was told to try taking it 12 hrs before I take the pill.  I have just started and have taken 1 pill so far.

 

RE: Tarceva 150 mgs.

by Iamstillhere on Mon Oct 07, 2013 03:21 AM

Quote | Reply

On Oct 03, 2013 2:32 PM schuckers wrote:

Thank you KimmieAnne!

So far I have had a slight rash.  It started on my face.

Actually my nose, red and swollen and then up to my eyes.

That was miserable!  Nothing bad at all..........does it come

back with a vengence!!!!???  I have no other side effects.

Thank God!!!!!

Keeping you and everyone else in my prayers.

Schuckers

KIMMIE ANNE AND SCHUCKERS

I WROTE A REPLY AND I DO NOT SEE IT..MEDICINE FOR THE BREAKING OUT IN GEL PRECRIPTION CLINDAMYCIN PHOSPHATE GEl  1%...

ALSO PILLS MINOCYCLINE...

ALSO STOP TAKING YOUR ANTIACID MEDICINE AND ASK THE DOCTOR FOR ANOTHER...

DO RESEARCH ON THE TARCEVA ONLINE THERE IS LOTS AND THE SHOULD DO's AND DON'TS  ALSO KEEP TAKING THE MEDICINE TARCEVA NO MATTER HOW BAD IT GETS IT GETS BETTER IT TOOK LOT TIME MY EYES WERE DRY AND MY EYELASHES HURT BUT I AM STILL ALIVE.

I WAS ONLY TO HAVE A SHORT TIME IT'S IN MY LUNGS AND IN MY PELVIS BUT THE TARCEVA STOP THE MESTAS'S...KEEP TAKING IT.

THEN DON'T WAIT THAT LONG TO SEE YOUR DOCTOR WHEN YOU KNOW YOUR GOING TO TAKE A PET SCAN GET THE RESULTS WITHIN HOURS...

AND MAKE YOUR APPOINTMENT RIGHT AWAY...I GO TO MOFFITT CANCER CENTER IN TAMPA FLORIDA I WASN'T HAPPY WITH THE DOCTOR.

 BUT NOW I SEE A RESEARCH DOCTOR UC...HE IS WONDERFUL I GET MY RESULTS AN HOUR AFTER THE PET SCAN...

I DON'T KNOW IF YOU GO TO A PRIVATE DOCTOR OF A CANCER CENTER BUT IT IS UP TO YOU TO TELL THEM WHAT YOU WANT...

I USE TO SEE HIM THE WEEK AFTER AND I SAY NO WAY I WANTED TO SEE HIM THE SAME DAY.. YOU CAN WAIT FOR YOU SCAN ON THE

 SAME DAY AND BRING TO HIM...OR HER...TELL HIM WHAT YOU WANT AND NEED...TARCEVA IS A WONDERFUL DRUG AND IT CAN WORK..

AND KEEP YOU ALIVE AND GOING AND THERE IS NO WAY TO GIVE IT A DATE FOR ANYTHING.STAND UP FOR YOU AND ASK FOR THE

 MEDICINE FOR YOUR FACE...THEY MUST HAVE A NURSE YOU CAN CALL AND ASK THEM.  I TAKE IMODIUM EVERYDAY I GET THE GENERIC WHICH IS CHEAP. 

 IT'S NORMAL OUR NORMAL. BE WELL AND ASK ME ANYTHING...I HAVE BEEN TAKING THE TARCEVA FOR 1 YEAR AND I FEEL BETTER IT NOT MY OLD LIFE,

 BUT IT BETTER.

SARALEE LOVE

RE: Tarceva 150 mgs.

by Iamstillhere on Mon Oct 07, 2013 03:28 AM

Quote | Reply

I GET A PET SCAN EVERY 3 MONTHS SOMETIMES MORE...I TAKE THE TARCEVA.KIMMIE ANNE AND SHUCKERS

I WROTE A REPLY AND I DO NOT SEE IT..MEDICINE FOR THE BREAKING OUT IN GEL PRECRIPTION CLINDAMYCIN PHOSPHATE GEl  1%...

ALSO PILLS MINOCYCLINE...

ALSO STOP TAKING YOUR ANTIACID MEDICINE AND ASK THE DOCTOR FOR ANOTHER...

DO RESEARCH ON THE TARCEVA ONLINE THERE IS LOTS AND THE SHOULD DO's AND DON'TS  ALSO KEEP TAKING THE MEDICINE TARCEVA NO MATTER HOW BAD IT GETS IT GETS BETTER IT TOOK LOT TIME MY EYES WERE DRY AND MY EYELASHES HURT BUT I AM STILL ALIVE.

I WAS ONLY TO HAVE A SHORT TIME IT'S IN MY LUNGS AND IN MY PELVIS BUT THE TARCEVA STOP THE MESTAS'S...KEEP TAKING IT.

THEN DON'T WAIT THAT LONG TO SEE YOUR DOCTOR WHEN YOU KNOW YOUR GOING TO TAKE A PET SCAN GET THE RESULTS WITHIN HOURS...

AND MAKE YOUR APPOINTMENT RIGHT AWAY...I GO TO MOFFITT CANCER CENTER IN TAMPA FLORIDA I WASN'T HAPPY WITH THE DOCTOR.

 BUT NOW I SEE A RESEARCH DOCTOR UC...HE IS WONDERFUL I GET MY RESULTS AN HOUR AFTER THE PET SCAN...

I DON'T KNOW IF YOU GO TO A PRIVATE DOCTOR OF A CANCER CENTER BUT IT IS UP TO YOU TO TELL THEM WHAT YOU WANT...

I USE TO SEE HIM THE WEEK AFTER AND I SAY NO WAY I WANTED TO SEE HIM THE SAME DAY.. YOU CAN WAIT FOR YOU SCAN ON THE

 SAME DAY AND BRING TO HIM...OR HER...TELL HIM WHAT YOU WANT AND NEED...TARCEVA IS A WONDERFUL DRUG AND IT CAN WORK..

AND KEEP YOU ALIVE AND GOING AND THERE IS NO WAY TO GIVE IT A DATE FOR ANYTHING.STAND UP FOR YOU AND ASK FOR THE

 MEDICINE FOR YOUR FACE...THEY MUST HAVE A NURSE YOU CAN CALL AND ASK THEM.  I TAKE IMODIUM EVERYDAY I GET THE GENERIC WHICH IS CHEAP. 

 IT'S NORMAL OUR NORMAL. BE WELL AND ASK ME ANYTHING...I HAVE BEEN TAKING THE TARCEVA FOR 1 YEAR AND I FEEL BETTER IT NOT MY OLD LIFE,

 BUT IT BETTER.

SARALEE LOVE

RE: Tarceva 150 mgs.

by schuckers on Tue Oct 08, 2013 04:10 PM

Quote | Reply

Hi KimmieAnne,

  I'm sorry it's taken me so long to respond to you, I just

didn't know what to say.  My PET/CTscans showed NO ACTIVE

CANCER IN MY BODY.

I could write a book on my treatment experience.  I had

my right middle lobe taken out April 2012.  They also

removed 9 of the lymph nodes in my chest, 3 proved

cancerous.

The first oncologist I went to had me on the wrong meds.

for Chemo.  He finally told me after my 2nd. treatment.

I never went back to him..........My insurance co. sent me

to New Hope Cancer and Research Inst.  They have moniored me for about 3 yrs.  Doing blood tests, etc;

My markers were always good.  I had a PETscan last May

they told me it had come back and was worse.  They even

told me I had 7 to 9 months to live.  It took 5 months to

get 2 lung biopsies, yep, unbelievable!!!  The PET/CT scans

that I had last week showed nothing!!!!!!!  My oncologist

called me right away and told me I was okay, it showed

nothing!!!!!!!!  The only thing we can guess at is, and

the last Dr. that took the biopsy didn't want to do it

because the scan was so fuzzy, he called my onc. and she

said go ahead and take it.  Then I had the scans last week

and there is no sign of cancer...........We are estatic, but

they have really messed with my mind and emotions, stress

and everything else for the past 6 months.  I have to say

I am mad!!!!!!!!  My onc. wants me to stay on Tarceva 150

I go in for blood tests the 23rd. then I will see my onc.

That's about it.  I wish everyone who has this horrible

disease would get the report I did.

God Bless Everyone,

Schuckers

RE: Tarceva 150 mgs.

by schuckers on Tue Oct 08, 2013 04:15 PM

Quote | Reply

KimmieAnne,

This is to correct afew errors in my typing......

I had the right middle lobe removed in April 2010, and

New Hope has been monitoring me since Oct. 2010.                      

God Bless,

schuckers

RE: Tarceva 150 mgs.

by KimmieAnne on Tue Oct 08, 2013 05:39 PM

Quote | Reply

Schuckers...that is FANTASTIC news!  I am so happy for you and your family.

I know you are angry about the misdiagnosis', but putting a positive "spin" on every situation is less stressful than stewing about negative situations.  Positivity increases healing.  Positivity does not breed stress.  So, don't focus on what happened and what should have been done/not done.  Focus on these NEW and WONDERFUL PET scan results!  Celebrate the good news and embrace those who love and support you.

Sounds like you have finally found the right physician and now you can have the faith that everything is going to be okay.

Please keep in touch and don't forget to take your Tarceva EVERY day at the SAME time.  You are in my prayers.

RE: Tarceva 150 mgs.

by rayboyd on Wed Oct 09, 2013 02:06 AM

Quote | Reply
I want to first say how wonderful of news u got schuckers!!! It's fantastic! My mom was diagnosed 1 year ago with stage 4 NSCLC she has been on Tarceva since November. So far it has worked great for her (fingers crossed). Her next follow up PET scan and appt is October 22. She has had all the side effects everyone has mentioned. She stays so positive. Her response to it all is "oh what's a littke rash, so what I get tired, a few finger cuts won't kill no one, etc". She also gets uncontrollable diarhea at unexpected times, but she says its the cancer leaving her body. Lol. It seems as though when one side effect lessens, another new side effect comes. The most recent one for her is sores on her scalp. Her scalp is so red and irritated, she can barely touch her hair without her head hurting. She tried put oil on it and she tried a prescribed mouse from her doctor but its not helping. I was hoping maybe someone knows what she's going through and maybe has some advice on what might help her scalp. Thank you. Keeping all of you in my thoughts and prayers!

RE: Tarceva 150 mgs.

by schuckers on Wed Oct 09, 2013 04:16 PM

Quote | Reply

Thank you KimmeAnne!

You all are such wonderful people, going through the struggle

of your life, and I will pray for you all.  Beings they say there

is nothing there, can't I stay on Cancer Compass?  Yes, I

will take the Tarceva at the same time every day.  I've been

on it for almost a month and all I have experienced is a slight rash.  That I don't understand?

Thinking of you all and praying for you also.

Schuckers

 

RE: Tarceva 150 mgs.

by schuckers on Wed Oct 09, 2013 04:36 PM

Quote | Reply

Thank you rayboyd!!!!

I pray it works for your Mom.  The day she has her follow-up   

PETscan, the 22nd. is my 71st. birthday.  I will be praying for

her all day!!!  I can't tell you much about the side effects, I

have only been on Tarceva less than a month.  My onc. wants me to stay on it.  The only side effect I've had is a

slight rash.  I've been putting alittle Avocado oil in with my

conditioner and letting it set for about 1 hr. then rinsing it.

I put Almond oil on my skin and let it soak in and then do it

again, then I put Eucerin soothing healing cream on heavy

where it's the worst and then I put it on my arms, legs, etc;

to keep them hydrated.  Just because I haven't gotten any

other side effects, doesn't mean I won't...........I do alot of

praying, as I'm sure everyone does.

I do pray for your Mom that her appt. the 22nd. is GREAT!!

Thank you again,

Schuckers

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