Tarceva 150 mgs.

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RE: Tarceva 150 mgs.

by Iamstillhere on Fri Oct 11, 2013 01:37 AM

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KIMMIE ANNE AND SCHUCKERS...

Nobody mentioned that they lost any hair...I had long curly hair and it was falling out it was all tangled big chucks were falling out and left a lot of empty spaces in my head. I just grab it  and cut it off.  And what ever was left was straight and sticky out...I looked like Abert Einstien. I used a shampoo called NUTRI-OX 1 2 3 from Sally's it started to grow and stopped falling out... finally It growing back but not lenght it takes forever it its been a a year and the Tarceva has kept me a live. so it ok with all the stuff...I live on imodium and that keeps me more regular, my kidney doctor said that was ok. I am happy that you both are doing ok...  

RE: Tarceva 150 mgs.

by rayboyd on Fri Oct 11, 2013 04:41 PM

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Iamstillhere my mom is losing her hair as well. The hair on her head has become very dry and she can't style it because it will just stick up. As for her facial hair, it is growing like a weed. Her eyelashes are super long and need to be trimmed and her eyebrows are thick and dark too. She will also take Imodium but she'll only take it if she knows she'll be somewhere where she can't go, such as a wedding, party, beach, etc. Back to her hair, it's her scalp that really bothers her. Did u have that too? Her scalp is really red and has sores on it. I know u mentioned the shampoo for your hair, any suggestions for her scalp? Thank you. Keeping everyone in my prayers

RE: Tarceva 150 mgs.

by schuckers on Fri Oct 11, 2013 05:03 PM

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I haven't had any problems with my hair or scalp.  I don't

think I've been on it long enough.  Have you tried researching

on the web, that might help you and your Mom.  Have you

asked your onc to see if there's and RX drug for that?  Seems

like there should be.  There is another site you might want

to go to:www.Inspire.com this is a Lung Cancer Survivor's

Support Group.  I will keep you and everyone in my prayers.

God Bless,  Schuckers

RE: Tarceva 150 mgs.

by KimmieAnne on Fri Oct 11, 2013 05:06 PM

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Here is a previous post that may assist you.

Iamstillhereon Thu Oct 10, 2013 09:37 PMQuote|Reply

KIMMIE ANNE AND SCHUCKERS...

Nobody mentioned that they lost any hair...I had long curly hair and it was falling out it was all tangled big chucks were falling out and left a lot of empty spaces in my head. I just grab it  and cut it off.  And what ever was left was straight and sticky out...I looked like Abert Einstien. I used a shampoo called NUTRI-OX 1 2 3 from Sally's it started to grow and stopped falling out... finally It growing back but not lenght it takes forever it its been a a year and the Tarceva has kept me a live. so it ok with all the stuff...I live on imodium and that keeps me more regular, my kidney doctor said that was ok. I am happy that you both are doing ok...  

RE: Tarceva 150 mgs.

by pcr1953 on Fri Oct 11, 2013 05:38 PM

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I am on day 6 of tarceva.  As far as the antiacids i did a lot of research.  The omeprezole is out because I need this shot at life. After researching tarceva I take a H2-receptor antagonist cimetidine.  I went yesterday without taking it and had problems with my dinner so today I took it at 9am and I take tarceva at 9pm every night so that 12 hrs separate the two.  I have been through 4 separate chemo therapies (taxol/carbo platin, cisplatin/vinorbeline, gemzar, and taxotore) and have had 4 or 5 separate radiation treatments done on 9 tumors 8 of which were on my back/pulvis and they have all stopped.  But I have several more some were growing and some not as my reports are not written very well.

I get my pet scan before I see my doctor by going to the place that took them and get the written report and to the area to get the disk.  If that fails I can get a copy at records by requesting it and they will print it out for me.

I have lost so much weight that I cannot afford to lose anymore (weighed 187 last year and lost 21 lbs before radiation was done on my t10 spinal cord and primary left lung tumor. I gained weight until I weighed 173.  Now it has been a steady drop of weight where I am at which is 128 lbs and I am 5' 10" and all bone.

Not sure what is causing the appetite loss but for at least the last 2 months I have not eaten enough calories needed for that day.

Now that I am on tarceva I am able to eat a little more food and gain more calories so I can climb out of this hole I am in.   But it is looking promining as I have been eating some at every meal and increasing my calorie intake.

What is this about NO FAT.  I need to get calories where I can get them and I remember one speaker at the Bonnie J Addario Foundation monthly lung meeting stated that he likes to see his patients eat ice cream every night.  I think the important thing is that the weight needs to be gained any way I can gain it until I am out of the danger zone which I am very close to.

A problem with my appetite has been even the things I like I cannot eat so I have to make sure what I eat is something I like.  Got to go, acpunctre treatment and I missed the one at 9am this morning as I was still in bed.

RE: Tarceva 150 mgs.

by KimmieAnne on Fri Oct 11, 2013 06:29 PM

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My oncologist prescribes Protonix for his Tarceva patients who experience heartburn.  It really works.

I am experiencing weight loss myself.  When I started on Tarceva 150mg seven years ago, I put on weight and have been at 154lbs since.  However, this past January, I have experienced a lot of stress, both personally and profesisonally and have dropped 40lbs, now weighing in at 112lbs.  I have been prescribed Marinol and it seems to be working.  However, my body is craving protein, so even though I am eating alot of food high in protein, I am not gaining any weight, but I am holding steady at 112lbs.  I take the Marinol twice a day, an hour before I would normally eat a meal, and it does make me hungry.  I don't eat big meals anymore.  I find that snacking throughout the day helps (that is if I am hungry).

I hope you find something that works for you.  Blessings.

RE: Tarceva 150 mgs.

by pcr1953 on Fri Oct 11, 2013 11:59 PM

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Protonix is a proton pump inhibitor which is states if possible not to use which is what I am doing.  I am taking a H2-receptor like tagamet.

RE: Tarceva 150 mgs.

by annice on Sun Oct 13, 2013 08:52 AM

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I thought I had posted to this forum a couple of days ago, but can't fnd my posting.  I was diagnosed with lung cancer in July, and the biopsy showed that it was the genetic mutation that responds to Tarceva.  I started taking the pills just over a month ago.  I am a 75-year old woman who has never smoked, and was in good health before this.  The cancer is confined to the right lung, but it has metastasized.

So far, my side effects have not been too bad: mild diarrhea (1-2 episodes a day only in the morning), some fatigue, some loss of appetite and dry skin, especially on the face.  I might  also be losing some hair, but that's hard to tell, as I've been a shedder for years.

I have my next CT scan and see the oncologist again the beginning of December, and will find out whether or not the Tarceva is working.  It is encouraging to read the success stories of some of you.

Just to add insult to injury (or the other way around), on my first visit to the oncologist, I tripped on some uneven tiles in the hospital corridor and broke my hip.  She visited me in the emergency room.  So I had a hip replacement the next day, and have made good progress recovering from that.

RE: Tarceva 150 mgs.

by LC1956 on Fri Oct 25, 2013 05:39 PM

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I've been on Tarceva (150mgs) for about five months now. I was diagnosed with Stage 3B lung cancer in February. I am a 56 year old man. I smoked for most of my life, but quit five or six years ago. Before starting the Tarceva, I went through the standard chemo and radiation regimen.  I handled it well, but the chemo proved uneffective. In fact, a second tumor grew in my lung during (or after) I was undergoing the treatment.  After this, I had another biopsy (of the newer lesion) and it was determined at that time that I have the EGRG presentation for which Tarceva is sometimes effective.  I had a scan after having taken the medication for about three months, and the results were remarkable. The smaller lesion is now gone, undetectable, and the larger (original) lesion is much smaller. My next scan is scheduled for December and I'm hopeful that this trend will continue.

I have the rash over the entire top half of my body. I use a topical antibiotic, clindimycin (sp?) twice a day on my face. This seems to keep the rash in check, for the most part. Otherwise, the rash doesn't itch or hurt. It's just there.

I take an Immodium every morning. Sometimes I need one in the evening as well, but mostly, one a day keeps me from running. ;) 

Another thing that I have learned is related to appetite. For one thing, my body seems to crave healthy foods now. Stews and soups are really appealing. Slabs of meat are not. Perhaps more importantly, I've learned that it is necessary to eat regular meals. I find that if I miss a meal, I'm less hungry when meal time rolls around again, rather than more hungry. So now I have a supplement (boost or some other protein drink) in the morning. Then I eat a regular breakfast and lunch, and usually a lighter meal in the evening. Before I got sick I weighed approximately 205 pounds. I bottomed out at 170 pounds during the time I was having chemo and radiation simultaneously.  I am now at 185, which seems to be the "right" weight for me. I've maintained this weight for three or four months now, and I don't have to eat like a pig to do it. I think the important thing is to eat regular meals so that you don't slip into that downward spiral of not taking in enough nutrition to sustain yourself.

Beyond that, I've really learned a lot about the power of prayer in the last year. I'm not talking about religion or beliefs. I'm talking about the healing power that is brought by the knowledge that there are people out there who love you and who care about you. There's been a huge outpouring of love from everyone I know, and it's palpable. It makes a difference.

I wish all of you long life and good health.  Hopefully the Tarceva will get us there.

RE: Tarceva 150 mgs.

by tarcevamom on Wed Feb 24, 2016 09:07 PM

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Hi Annice, are you there.

My mom just got diagnosed with lung cancer couple months ago. she is on tarceva too. She is a non smoker 75 year old mom. I am looking forward to hearing good news in this storm...

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