tonsil cancer afraid..

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RE: tonsil cancer afraid..

by Arman on Thu Dec 06, 2018 11:33 AM

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Lardog,

Kevin's cancer was HPV positive, but he was also a heavy smoker. This cancer has 85% chance of cure; unfortunatley for Kevin, his cancer never went away and finally spread to his brain.

RE: tonsil cancer afraid..

by Diamond_David on Thu Dec 06, 2018 07:13 PM

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90% cure rate when chemo and radiation used together. Without radiation, 60% cure

Most curable, most terrible treatment. i saved my post from years ago, heres' my story

You'll need to follow the same course of action

===============================

I had tonsils removed at age 59. They took out ONE lymph node in my neck. Just one. I get cramps in my neck and shooting pains

I know soemone who had EXACTLY what i had and they said the doctor was NOT going to remove his lymph node. they said "Why cut you, we are going to RADIATE all of your nexk anyway. Smart

So i'm glad they won't cut you

You'll have 7 weeks, 5 days a week of radiation to tongue.mouth /neck area.

7 weeks usually once a week of checmo.

There are two types of radiation. One is a SPRAY, coves all of the neck,called IMRT, the other type i like a BEAM, you want this one if at all possible. Called Tomo

I had IMRT they sprayed all of my neck. I now have 1/2 of my saliva, carry water everywhere and must eat medium rare meat. Also ruined my thyroid gland, take a pill daily. 

I have a cousin who had tonsil cancer, he had TOMO, has no saliva problems at all

if you can get the beam go for it

Most folks with neck caner and radiation can't eat or swallow after 10 days. I got a feeding tube in my chest and poured nurishment they give you in 3 times a day. GET IT. don't be a hero. 

it is a rough treatment, but 90% survival. I didn't loose hair with chemo, only threw up twice in 2 months

but radiation to neck was terrible. 

After 4-5 weeks you may not be able to work, if you do you'll be slow. I work from home with my wife. 

i know this is scary, the scariest part is your life partner is sick. See if family memebers can pitch in as needed.

if you have iability insurance, claim on it. I do and it paid for 4 months.

on the teeth, just get them celaned and any dnetal work (cavities) done first. I've had no problems with dental, I use additionally flouride tooth paste. knew TWO people doctor said go get ALL of your teeth pulled. NEVER! For 5 years went to dentis every 3 months, now back to every 6

i'm told NOW if I need teeth PULLED I must go to a baraiatic chamber to get extra oxygen before that is done, but luckily mine are OK

good luck to you. When teatment starts you'll have MORE questions, we are all here.

Also you'll have a plastic face mask (Like Friday the 13th) amde to fit. They will BOLT you down still for radiation treatment, you can't move, Its not bad. Treatment for ME was over in 15 minutes daily.

RE: tonsil cancer afraid..

by lardog04 on Thu Dec 06, 2018 08:50 PM

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Dave - Susan -Arman and all the other recent posters. As I read the post my short term memory issues cloud a lot of the issues that have been recently mentioned.

I also after four years after had a slight weight gain and thinning of my hair. It was a PA that noticed a few pounds a year in gain and thinning of my hair and suggest I get my thyroid checked. She was right and I now take thyroid medication.

I have been curious what type of chemo everyone has had. Mine was Chromo Cisplatin for six weeks for the first round.  I started the second round of daily chemo with the Chromo Cisplatin. By Thursday or the forth day blood levels were too low so they switched for the balance of the second round  to Carbo Cisplatin. The second round was a back pack of 2 litres Carbo Cisplatin and a electric pump. I did loose all of my hair everywhere except for a very few hairs that were gray.  

Dave you said a friend did not have surgery. How is he doing?

I also have not had any teeth pulled as my teeth were good but just receently I have chipped two of my lower front teeth. I do use daily, Colgate PreviDent 5000ppm Sensitive high content Flouride toothpaste. This is prescription only and my dentist gave me a prescription.  I did see an article about this toothpaste on a web ste a few year ago. Showed my dentist and he said definitely yes use it.

I was 56 in December 2009 when diagnosed. I after the first round chemo and concurrently with the second round had six weeks of daily radiation and the seventh week was twice a day.

The lady I spoke of in my last posting did not have Cisplatin chemo. Neither did Kevin after reading all the posts.

lardog

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