What now?

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What now?

by galileesea on Sun Oct 13, 2013 08:57 AM

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Hello, all.

My dad was diagnosed with stage 4 pancreatic cancer on May 2nd of this year.  He had mets to the liver.  He turned 50 on May 31st, was healthy, and never smoke or drank excessively. 

Of course, this diagnosis broke our hearts, but we have gotten good very good news.  My dad did 9 rounds of folfirinox over 4 months and at his last scan, literally all of the cancer was gone.  There was nothing to be seen, and he has been declared to be in total remission. 

I realize that this is the best possible outcome we could have asked for.  My question is, how common is this?  Can we hope for the future? 

We are helping him with a special, mostly vegan diet which we are following from the book "Life Over Cancer."  It's about integrative treatment of cancer and I highly recommend it.  The most important question I'd like to ask is what else can we be doing right now?  Are there any clinical trials or new treatments out there that could make sure this never comes back?  The problem is that right now, there is no visible cancer to work on, so cyberknife and the like are not options, and surgery does not seem to be a possibility.  I just hate the idea of sitting around waiting for it to come back.

I'd appreciate any thoughts or comments!  I truly hope that you all are able to be as lucky as my dad.

RE: What now?

by Bryan51 on Sun Oct 13, 2013 01:04 PM

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Wow, how ironic. I was dx with stage 4 pc on May 2nd of this year and turned 51 on May 28th. I just finished 18 infusions of Gemzar / Abraxane combination and go in for my scan tomorrow morning. I also had mets to the liver. That is great news about your dad. What was your fathers most recent CA19 marker? Good luck and I hope I can get the same outcome. is your dad taking bitter melon?

RE: What now?

by PunkyD on Sun Oct 13, 2013 01:11 PM

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Dear Galileesea (I like that name!)

How wonderful that your father's treatments have been so effective.  That really is amazing news!  I don't think that it is very common in stage 4 PC, but everyone is different, and there are some lucky survivors out there.  YES, you definitely have hope for the future!!! Keep your chins up and enjoy this positive outcome.  The vegan diet sounds like a good idea as well. 

I don't know what else you can be doing right now except, keeping your dad healthy, fit, eating well, enjoying life.  I totally understand your wanting to make sure the cancer never comes back, being pro-active, and not sitting around waiting, but  I can't think of anything else you should be doing.

Just wanted to wish you (your family) and your dad continued health and happiness.  Bless you.

Punky

RE: What now?

by PunkyD on Sun Oct 13, 2013 01:16 PM

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Bryan,

Keeping my fingers crossed for your good results tomorrow as well.  Sending you positive vibes that you're definitely going to whip this cancer's butt! 

Punky

RE: What now?

by galileesea on Sun Oct 13, 2013 03:46 PM

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Thanks a lot for your responses! 

Bryan51, I'll be thinking about you as well!  It sounds like your situation is very similar to my dad's, so I'm certain you'll have good results!  To be honest, I don't think my dad ever got his last tumor marker, but the one before that was about 100.  So it's not as though it was perfect, but quite low.  I'll make sure he asks at his next chemo appointment in a couple days; he has to do once monthly maintenance rounds of folfirinox.  My dad is not currently taking bitter melon, though I am working on getting my hands on some seeds or checking out an Indian grocery store.  The one thing that was probably unique that we did was feed him tons of green smoothies, packed with spinach and kale and berries and whatnot. 

PunkyD, thank you for reminding me that we do have hope!  Sometimes it's important to hear it from someone outside the family.  We are just not sure how to feel, but as my dad starts to feel better after the grueling chemo regimen, we all start to feel better.  I can't help but think about the future, but I know I need to just think about the now and be grateful for every moment we have. 

Thanks again for the well-wishes!  I send them right back to you. :)

RE: What now?

by cb531 on Sun Oct 13, 2013 11:14 PM

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Galileesea,

How Blessed!! Plan a trip do something as a family and don't look back. As a Dr told my husband once (LIPOSARCOMA CANCER) What ever you are doing just keep doing it!

xo Cathy

Bryan I am praying that you have the same great results. Keep us informed. thinking of you xo Cathy

RE: What now?

by Kjohnchas on Mon Oct 14, 2013 09:53 AM

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That is great news ,we all hope we get there too,life is too short to sit around waiting,though it's always on your mind,get out and enjoy each day,that's what we try to do bless you kathy

RE: What now?

by jroshar on Mon Oct 14, 2013 05:52 PM

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Are they going to have your dad stay on a maintenance dose of Folfirinox once a month?  I've read different theories on continuing a maintenance dose of chemo every six weeks or eight weeks and I'm curious about it because I hope my dad is in the same position after the next scan (Stage 4 with mets to liver, almost all gone on last scan).

As for the alternative, one thing you might want to look at is high doses of liposomal vitamin C.  You can read about it here:   http://www.peakenergy.com/news/VitaminC_Cancer_w_Comments.pd

We are also doing bitter melon juice which is also called Karela juice.  You can order it online if you can't find it locally.  

Also he is taking Alpha Lipoic Acid, curcumin, and metformin strictly for possible tumor killing effects.

Jeannie

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