Wife in thirties, Pregnant, possibly have Carcinoid

6 Posts | Page(s): 1 

Wife in thirties, Pregnant, possibly have Carcinoid

by PleaseHelpMeNow on Mon Dec 30, 2013 02:53 AM

Quote | Reply

Dear All:

Finally, a place to get some REAL answers from REAL people that know about this dreaded syndrome/tumor.

My wife is 13 weeks pregnant.

6 months ago, she had an interesting episode. Face was flushing, massive diarrhea, light-headed, and I thought she was going to die. I called 9-1-1 and really didnt know how to explain what the heck happened. Went to the ER and they were puzzled. One ER doctor said there is an outside shot of Carcinoid (no idea what it was at the time). Made follow up with her primary doctor. He was not too concerned which made me more concerned. 3 months later, same thing happened. Now, she just took the 24 hour urine test, still awaiting results.

She has been diagnosed with IBS, Tachycardia, and now waiting to see what is "wrong" with her.

I'm just curious, has anyone had a healthy pregnancy with "carcinoids." Obviously, nothing official has been said that she has carcinoid, but what in the heck else could it be?!?!?! She's had a colonoscopy before (due to IBS) and they found nothing.....Any information or anything would be greatly appreciated. thanks so much!

RE: Wife in thirties, Pregnant, possibly have Carcinoid

by LauriG on Sun Mar 23, 2014 01:19 PM

Quote | Reply

Hi, just wanted to check if you had anyone reply to your post? I am in Australia and am aware of people having successful pregnancies, but don't know if I would have useful info to offer in particular....

RE: Wife in thirties, Pregnant, possibly have Carcinoid

by Angelannabel on Thu May 29, 2014 02:37 AM

Quote | Reply
I don't normally write or follow these boards. But I saw your post and wanted to respond. I had a carcinoid tumor in my intestines (didn't know at the time) and gave birth to a full term healthy girl in 2008. Shortly after the Timor was discovered and I had surgery to remove 1/3 of my large intestines and a foot of my small as well as several lymph nodes. A few if the lymph nodes had carcinoid cells. About 4 months later I became pregnant again and had another full term healthy girl. It has since been almost 5 years. I see a specialist in Columbus, ohio (don't trust anyone but a specialist from the list on carcinoid.org ) and I am again 25 wks pregnant with our third child. I have had no complications this far. I am lucky in that my cancer was caught fairly early and I have had no issues since my surgery. It is all very scary but I wanted you to know that your wife can have a perfectly perfect baby even if she has a carcinoid tumor and that she can also be a successful mom for many years to come. Hope that helps!

RE: Wife in thirties, Pregnant, possibly have Carcinoid

by PleaseHelpMeNow on Sun Nov 01, 2015 07:51 PM

Quote | Reply

Baby is perfectly healthy and normal!!! I'm still scared out of my mind. She hasn't been officially diagnosed yet, but we are now being A LOT MORE AGGRESSIVE! Hoping to see specialists in Philly once insurance approves it.  

RE: Wife in thirties, Pregnant, possibly have Carcinoid

by Angelannabel on Sun Nov 01, 2015 09:17 PM

Quote | Reply

On Nov 01, 2015 7:51 PMPleaseHelpMeNowwrote:

Baby is perfectly healthy and normal!!! I'm still scared out of my mind. She hasn't been officially diagnosed yet, but we are now being A LOT MORE AGGRESSIVE! Hoping to see specialists in Philly once insurance approves it.  

I am so happy to Hear! I too had a healthy baby boy and all is well. I have follow up tests (which I do yearly now) in about a month. They will be my second set since the baby was born. I get scared before my tests each year but it has now been 7 years since my original diagnosis and surgery. I have lived a full, active and healthy life every day of it! It is all so scary though and when I think back to the days and nights with my first daughter completely scared out of my mind I completely sympathize with you and your wife. My name is Annie and my email is if she ever wants to write and ask about my experience. I was able to get in contact with someone when I was first diagnosed and it helped so much more than reading the sometimes terrible stories online. We that are diagnosed so young are in the monority and so our stories I think I are different. Please pass my information along and if I can ever do anything let me know.

RE: Wife in thirties, Pregnant, possibly have Carcinoid

by Bkbelle09 on Sun Dec 27, 2015 08:10 AM

Quote | Reply

On May 29, 2014 2:37 AM Angelannabel wrote:

I don't normally write or follow these boards. But I saw your post and wanted to respond. I had a carcinoid tumor in my intestines (didn't know at the time) and gave birth to a full term healthy girl in 2008. Shortly after the Timor was discovered and I had surgery to remove 1/3 of my large intestines and a foot of my small as well as several lymph nodes. A few if the lymph nodes had carcinoid cells. About 4 months later I became pregnant again and had another full term healthy girl. It has since been almost 5 years. I see a specialist in Columbus, ohio (don't trust anyone but a specialist from the list on carcinoid.org "" target="_blank" rel="nofollow">http://carcinoid.org " target="_blank" rel="nofollow">carcinoid.org ) and I am again 25 wks pregnant with our third child. I have had no complications this far. I am lucky in that my cancer was caught fairly early and I have had no issues since my surgery. It is all very scary but I wanted you to know that your wife can have a perfectly perfect baby even if she has a carcinoid tumor and that she can also be a successful mom for many years to come. Hope that helps!
Hello, I just read your response about being pregnant with Carcinoid Cancer. I have a question. I was diagnosed in 2009 with Carcinoid Cancer, after having two successful pregnancies in 2008 and 2009. I have now been on Sandostatin since 2009. I've been thinking about having another child, and I'm now doing my research on whether or not I can continue the octreotide (Sandostatin) treatment while being pregnant. Do you have any information on that?
6 Posts | Page(s): 1 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.