Residual thyroid

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Residual thyroid

by Tammym on Fri Jan 03, 2014 09:20 PM

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I was told a few months ago, that I have some residual thyroid tissue with a nodule measuring .4 mm. Nine months later that nodule is 1.4 cm. I had a total thyroidectomy in 1989. My endocrinologist doesn't seem concerned, but I am. He says he doubts that the medullary thyroid cancer is back. He performed a biopsy that was inconclusive, and wants to just watch and wait. Waiting for what?

RE: Residual thyroid

by butterfly501 on Fri Jan 03, 2014 09:51 PM

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The guidelines for MTC may be your best bet, as there are probably very few MTC survivors on this board:

http://thyroidguidelines.net/medullary/taskforce

Good luck, good health!

RE: Residual thyroid

by Tammym on Sun Jan 05, 2014 10:16 PM

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Thank you for the link. My calcitonin level is within range, but my vitamin D levels are low. My PCP has placed me on 50,000 units of vitamin D twice a week, plus a multi- vitamin. My TSH levels, thyroglobulin levels and anion gap levels are out of whack. A few months ago, my PTH levels were high. I am seeking a second opinion! I am not sure what needs to be done, but watching and waiting doesn't seem right. On 1/7/2013, the nodule was 4x3x2 mm with irregular borders. The ultrasound findings on 10/30/2013 shows 1.02x1.89x.565 cm with irregular borders . The FNA reports post surgical hypo complete thyroidectomy - residual tissue nodule. noted very little thyroid tissue visible. Left thyroid residual 1.42cm ( follicular with reactive changes).

RE: Residual thyroid

by butterfly501 on Mon Jan 06, 2014 01:19 AM

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Why do you get your Tg measured?

RE: Residual thyroid

by Tammym on Mon Jan 06, 2014 04:35 AM

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It's always been part of my routine blood work. It's always been within normal range and never mentioned.

RE: Residual thyroid

by butterfly501 on Mon Jan 06, 2014 08:13 AM

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In your position, I would inquire about that.

RE: Residual thyroid

by Tammym on Tue Jan 07, 2014 12:40 PM

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I will, thanks.

RE: Residual thyroid

by dinparadise on Tue Jan 07, 2014 06:11 PM

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Checking your Thyroglobulin levels (TG) is always included in your regular blood work after thyca.  It's a tumor/cancer indicator.  It can sometimes be the first indicator of a recurrance.  As my number grew, we knew I had cancer again.  Mine is currently very low but rising.  We are now on a search for what is probably still microscopic cancer cells.  If yours is negligible then you probably don't have a recurrence.  But the description you gave is sometimes indicative of a recurrence.  A PET scan could help.  Everyone I read about always get their TG checked at least once a year.

A second opinion sounds like a great idea.  Better safe than sorry.

Good Luck!

RE: Residual thyroid

by Tammym on Tue Jan 07, 2014 07:53 PM

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Did you have MTC?

RE: Residual thyroid

by butterfly501 on Tue Jan 07, 2014 07:54 PM

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On Jan 07, 2014 6:11 PM dinparadise wrote:

Checking your Thyroglobulin levels (TG) is always included in your regular blood work after thyca.  It's a tumor/cancer indicator.  It can sometimes be the first indicator of a recurrance.  As my number grew, we knew I had cancer again.  Mine is currently very low but rising.  We are now on a search for what is probably still microscopic cancer cells.  If yours is negligible then you probably don't have a recurrence.  But the description you gave is sometimes indicative of a recurrence.  A PET scan could help.  Everyone I read about always get their TG checked at least once a year.

A second opinion sounds like a great idea.  Better safe than sorry.

Good Luck!

Thyroglobulin has no value in MTC.  It is not useful as a tumor marker for MTC as MTC is a completely different thyroid cancer originating in the C-cells.

Those managing MTC have no use for TSH suppression therapy or Tg monitoring any more than those with papillary/follicular would monitor Ct or CEA levels.

They're completely different cancers and are not managed the same.

As I wrote at the beginning, there are most likely very few MTC survivors on this board, and even fewer papillary/follicular (DTC) survivors who understand that MTC and DTC are two different cancers with very little in common.



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