Caregiver's struggle.

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Caregiver's struggle.

by Jennaleigh on Mon Jan 13, 2014 10:51 AM

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Hey everybody, Well, it's 5:40 am and I've been up all night worrying and somehow found myself here. On December 2nd, they found a tumor on my boyfriend's testicle. He had it removed on December 10th, and after that we found out that he has stage 3 testicular cancer. It has spread to the lymph nodes in his groin and abdomen, as well as his lung. We are young- he turned 23 a week before his diagnosis and I turned 21 a week after. He started BEP chemo the day after Christmas. The side effects of chemo are really starting to set in. He is a really strong and courageous young man and we are going to fight this as hard as we can, but it is not going to get any easier. I guess I don't really know where this is going, I just thought it would be nice to talk to others who have been through this and get some support. I feel pretty alone in this currently and don't want to lay any extra stress on my boyfriend. Any advice is appreciated! Thanks in advance. Jenna

RE: Caregiver's struggle.

by sue1234 on Mon Jan 13, 2014 03:52 PM

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Jenna, so sorry to hear about your boyfriend. The chemo is rough, the future is terrifying. My husband has bile duct cancer. I'm terrified also. The chemo he's getting is to buy him time. Currently he is doing well, but at some point he won't be. We've been married for 44 years. I told him yesterday that maybe it would be easier if we had the kind of marriage where I hated his dumb ass!! But we don't, he's been the only thing I've ever wanted in a man. I don't know enough about your type of cancer to really comment but whenever you hear the "C" word it's terrifying. I made my husband his own private Facebook page because after all these years we have lots of friends and family. I found its too hard to have in depth conversations with everyone so I just do it once on FB. I have a few places I go in the dead of night, this site, cancer caregivers on FB, Whipple warriors on FB (that pertains more to pancreatic cancer which is more what my husband has). I am sure if you search on Facebook you will find they have a page dedicated to testicular cancer. I find that it's hardest in the middle if the night. These places are good to come to, there is always someone up. One final thought, you are both young. This is a lot to take in. At my age, I've already assembled a lot of knowledge on cancer, both my parents and in-laws died from it. Do some research, write down questions, take a pad of paper and write down answers. Good luck and keep in contact. 

RE: Caregiver's struggle.

by sue1234 on Mon Jan 13, 2014 03:58 PM

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I googled it on Facebook, the biggest group is global testicular cancer awareness and support forum. It's a closed group, as are most of the good ones, but I'm sure they will give you the ok to join. Might have some really good info for you. Bless you darling, hugs, Sue

RE: Caregiver's struggle.

by briansgirl on Tue Jan 14, 2014 04:28 PM

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Hey. My husband had testicular cancer in 2002 and beat it with radiation.  He recently had some pain in his remaining testicle and they found a mass. He is going for surgery next week. With God's help he will beat this one too. As for your boyfriend, I pray that he beats his cancer too. Look at lance armstrong, his spread and he beat it and went on to cheat his way through a few tour de france races(lol) Put your faith in God. He will take away your stress. Good luck!!

RE: Caregiver's struggle.

by CA013 on Fri Jan 17, 2014 06:45 PM

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Hi Jenna,

Just wanted to tell you that we are literally going through the exact same thing as you and your boyfriend.  Lump, surgery, CT Scan, Stage 3.

Let me know if you'd like to chat -- just send me a message.  It's so tough, especially at first...but I promise you it gets easier as you get the new routine down.

Lots of love to you both,

Charlee-Ann

RE: Caregiver's struggle.

by kciungan on Mon Apr 28, 2014 06:07 PM

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Hi Jenna.Just saw your message and hope things are ok with you and your boyfriend so far.My son had TC 2 years ago.He found a lump and after a scan he had surgery a week later.I forget the type he had but it wasn't the "best" or the "worst".Problem was he was diagnosed a few months before his wedding.The wedding went off as scheduled but he hates the pictures because he was totally bald and puffy after just finishing his last chemo treatment right before. Good luck to both of you.So far he's cancer free.

RE: Caregiver's struggle.

by BLBxx on Sun Jun 15, 2014 08:56 PM

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We found TC-cancer.com to be very  helpful. The site is informative and the ppl who post are awesome and can be quite knowledgable.

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