Scientific question

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RE: So scared, radiation side effect

by Dodgerblue on Tue Nov 06, 2018 02:45 AM

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Hi Shell, I understand your apprehension about radiation treatment and if your daughters tumor was strictly grade 2, forgoing radiation would be a viable option in my opinion. However, given the fact that it wasn’t a 99 percent resection(all visible tumor) and there was a grade 3 component to her tumor, I would definitely recommend radiation treatment. As my surgeon told me,”a grade 3 can act like a grade 2 or a grade 4.”. In terms of radiation side effects, most are short term. Of course, after surgery and radiation my short term memory isn’t quite what it used to be, ability to concentrate with a lot going on around me, etc. Most major impairments are caused by surgery not radiation. The only other concern would be another tumor down the road caused by this radiation treatment. In decades past, whole brain radiation treatment was a major cause of this. Current technology allows for exact areas to be treated, thus reducing the radiation exposure. As far as temador, most people I know deal with it well. Loss of appetite for a week or so, no nausea as long as you take a proper anti-nausea dose. As for myself, I’ll hit 5 years survivorship next month recurrence free. I get MRI’s every 4 months now, and yes still get a bit nervous each time. Any other questions don’t be a stranger. Dodger

RE: So scared, radiation side effect

by Shell2018 on Wed Nov 07, 2018 03:39 AM

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Dear Dodger,

Thank you so much for replying and friend  request confirmation. I had read your reply twice and it really made me feel good. Yesterday was the first day for radiation and chemo. So far so good. We will take your advice. I will let you know how  the progress is. You are a real educator on brain tumors.

Thanks

Shell2018

RE: So scared, radiation side effect

by Shell2018 on Wed Nov 07, 2018 04:03 AM

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Dear Dodger,

Thank you so much for replying and friend  request confirmation. I had read your reply twice and it really made me feel good. Yesterday was the first day for radiation and chemo. So far so good. We will take your advice. I will let you know how  the progress is. You are a real educator on brain tumors.

Thanks

Shell2018

RE: Congrats

by Shell2018 on Fri Dec 14, 2018 08:55 PM

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Hi Dodger, how are you Congrats  your 5year survivorship this Month!!!!

RE: Congrats

by Dodgerblue on Thu Jan 03, 2019 09:44 PM

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I’m good Shell! Hitting 5 year mark was exciting because by the numbers my prognosis was 3-5 years, scary in a way because I may need to figure out to do with the rest of my life. I think there is good chance I may never have a recurrence, which is great, but I’ve kinda prepared myself that I would have one, so... empty nester in another year, so guess I must plan another grand adventure. Dodger

RE: Congrats

by Keithge on Sat Jan 05, 2019 12:08 AM

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Hi Dodger, it is great to read about you defying the statistics, very heartening for us affected by brain cancer.

When you had your craniotomy how much of your tumor was removed?

RE: Congrats

by Dodgerblue on Sat Jan 05, 2019 07:59 PM

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I was very fortunate as my tumor was on the outside of my right parital lobe, so the neurosurgeon was able to just scoop it out without having to navigate through any healthy brain tissue. He removed all visible tumor, so 99. something %. There are always remaining cancer cells so hopefully radiation and chemo killed or put those in a comatose state. Dodger

RE: Congrats

by FrankeW on Mon Jan 07, 2019 08:11 PM

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Today is my 5 year survivor mark!  January 7, 2014 was the worst day of my life and I never thought I would be here five years later.  Oligodendroglioma grade 3 brain tumor 98+% removed on 2-18-14.  No recurrence so far.  No seizures since my surgery and I'm not taking any medication!  God Bless everyone on this message board.  I am so thankful for all the helpful information over the past five years.  I am hopeful I will have another five years.

RE: Congrats

by Shell2018 on Wed Jan 09, 2019 03:32 AM

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Happy New Year , Dodger. I am so glad that you are doing great!!. I had quitted my job last Oct so I can focus on taking care of my daughter. It is not easy to be a caregiver. I am pretty sure you will find something you like to do and enjoy your life. It is scary every day to me since my daughter just finished 6 was radiation and TMZ. First MRI in next couple weeks, I have my fingers crossed.

Best wishes

Shell

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