My mother suffering from Adeno Carcinoma 4th stage with metastatis in brain

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My mother suffering from Adeno Carcinoma 4th stage with metastatis in brain

by chetna on Fri Feb 07, 2014 07:53 AM

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My mother 70 is suffering from adeno carcinoma with 3 brain tumors. It all started with shortness of breath and tiredness which doctors here diagonosed as a Heart Problem with 70% of bloackage (which BTW can be cleaned with medicenes and diet ) but they did surgery and put stent in her heart , she somehow felt better. After almost 4 months she started feeling the same and instead felt very weak and cudnt even walk, and started coughing badly, then our family doctor suggested to get and a chest xray done in which a patch in the lungs was diagnosed.which was further recommended for Biopsy and then it all got confirmed. But that was not all within few days of us getting to accept about her lung cancer, her left side from her left arm to her leg got more weaak she started dragging herself and started to use more of right hand than her left hand. we discussed witht he doctor to which he asked to get her brain MRI done and it was confirmed that she has 3 tumors in her brain. Why in this world there is no cure of this deadly disease. I am from India and here doctors have not been at all comapssionate enough to us or the patient, rather kept giving us dates, that she wil survive for a week, 3 months, then may be few days. but today its going to be 1 year, though this one year did not pass easy for her. As there was not much treatment for her due her weakness, age, and diabetes no chemo cud be given to her. She was given one radiation.  and she is on Dexa a drug for her brain , which has kind of stopped responding now.I really dont understand why the doctors here do not want to give a try. She is on bed comletely on diapers and does not speak, at the most yes or no is all she answers to our questions. All I want is her to speak and tell us what she feels like doing/eating. I cant see her like this. Now lately from 2-3 days she is breathing heavily and am scared. Is there any medication or therapy which can make her speak or make her comfortable. I cant explain what she is going through. I am sure lot of people are goin throught the same and the families are equally having a tough time fighting it.

RE: My mother suffering from Adeno Carcinoma 4th stage with metastatis in brain

by mamacandi on Fri Feb 14, 2014 02:31 AM

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I have no answers for you Wish I did.  Your mothers story sounds so close to mine.  This is my second bout with adenocarcinoma and non small cell lung cancer.  I was 1 year cancer free after the did a lobe wedge  But went for my 1 year scan and it was back in the middle lobe. That was in October then the insurance issues..took a while for them to ok my first biosopy, then results were not conclusive as there was so much blood vessel involvement so they wanted a PET scan, all the time I was getting shorter of breath, I have diabetes and heart diease.  I had a stint replaced in December which helped with the shortness of breath for a while.  The PET scan showed that the cancer is spreding but assured me it is not in my brain.  I am now waiting for another biospy again having to wait for the insurance to ok it. I am getting more tired each day and am on O2 all the time now.  The waiting game is going to be the death of me yet.  

I hope you are taking good care of yourself, because it is hard work to take care of someone..I took care of my dad until this ugly diease took him to heaven in 2010.

Good thoughts for you and your family     Candi

RE: My mother suffering from Adeno Carcinoma 4th stage with metastatis in brain

by chetna on Fri Feb 14, 2014 04:33 AM

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Thank you Candi.. my heart goes out for you... God be with you and help you get out of this forever. Take good care.. and pray.. u will be in my prayers.

RE: My mother suffering from Adeno Carcinoma 4th stage with metastatis in brain

by mamacandi on Fri Feb 14, 2014 09:38 PM

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Thank you  its all the waiting I think that gets to me  LOL I want it fixed NOW   Thanks for the prayers they do help Sending you a hug and a smile on this day  Candi

RE: My mother suffering from Adeno Carcinoma 4th stage with metastatis in brain

by chetna on Sat Feb 15, 2014 07:03 AM

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Thanks candi... hugs

RE: My mother suffering from Adeno Carcinoma 4th stage with metastatis in brain

by anujaggarwal on Wed Mar 04, 2015 03:29 AM

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Hey chetna 

My mom is suffering from the same cancer and the same stage doctors remained confused for a very long time about whether this was cancer or sarcoidosis an autoimmune disease. She has recently stopped speaking and seeing her like this is a heartache. She is just 49 and have never smoked in her life don't know how did she get this. We are just hoping her perdicaments end doctors are just trying to prolong her life which is no use. I hope you find comfort and your gets proper treatment. https://www.youtube.com/watch?v=_3rmHZaBMtw This video says that cannabis plant can heal terminal cancer if you are able to try this let me know as well
 

RE: My mother suffering from Adeno Carcinoma 4th stage with metastatis in brain

by Charms on Thu May 14, 2015 06:08 PM

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I am not sure where exactly you live, but push for genetic testing if possible.  I know health care in India is less than desirable at times.  I live in the US so it is fairly easy to have that testing done here with insurance.  

My mom is in her early 50's, non-smoker Indian.  Adenocarcinoma of the lung for asian non-smokers is actually common.  My mom is ALK positive (genetic mutation) and therefore is on Xalxori.  A chemo pill taken 2x a day to try to inhibit the growth of malignant cells.  

There are several targeted therapies that may be an option.  There is also chemo/radiation.  

I am in the same situation as the rest of you.  If you have questions/need to talk, feel free to message me.

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