GBM Treatment - Hallwang Clinic

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GBM Treatment - Hallwang Clinic

by yasheshb on Wed Feb 12, 2014 05:22 PM

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Hello,

    My mother (78 years) was diagnosed with GBM IV in Sep 2013 and she's undergone a surgery on Oct 1st 2013

She has had 4 rounds of Temozolomide (oral chemo - standard 5 days dosage) in the months of Nov, Dec, Jan and Feb.

  She did not undergo any radiation. Since Feb 7th she's been hospitalised since she complained of persistent headaches and nausea and on 7th she was in very poor health and could not even swallow medicine hence had to be hospitalized.

  A new CT scan done on Fri (7th Feb) shows a growth in the tumour.

  In the meantime i was recommended of Hallwang clinic in Germany for cancer treatment. 

  Wanted to check with anyone in this mailing list if you'll have had any experiences at the Hallwang clinic specifically for GBM IV.

   Any input, feedback regarding it appreciated.

Thanks

Yashesh

RE: GBM Treatment - Hallwang Clinic

by yasheshb on Wed Feb 12, 2014 06:11 PM

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Hello, The "Hallwang clinic" i'm alluding is the one in Germany and run by Dr Asir Kopic

http://www.hallwang-clinic.com/en.html

Yashesh

RE: GBM Treatment - Hallwang Clinic

by jon4156 on Wed Feb 12, 2014 06:37 PM

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I've never heard of this clinic but did visit their web page.  They don't appear to publish anything specific to GBM so I'm curious why they were recommended for your mothers care.

Has your mother been offered Avastin?

RE: GBM Treatment - Hallwang Clinic

by yasheshb on Thu Feb 13, 2014 03:26 AM

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Hi jon4156.

    My mother has not been offered Avastin yet. I'll check with my onco when i meet him next.

   Hallwang was actually recommended to me by a friend whose aunt was diagnosed with myloma and they had a positive experience.

  Have written to them for specific GBM treatment at their clinic.

Thanks.

Yashesh

RE: GBM Treatment - Hallwang Clinic

by jon4156 on Thu Feb 13, 2014 01:19 PM

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I'm sure they had good intentions but most friends and family think of cancer in a generic sense and do not understand that different cancers require different therapies and that brain cancers in particular are very complex due to blood/brain barrier issues.

Just based upon their web page, I don't think Hallwang is capable of prescribing your mother's care.  On the other hand, if you are looking for someplace to perform the day-to-day care for your mother and ensure that the directions of a qualified Neuro-oncologist are followed, you might inquire if they are willing to fill that role.  Certainly looks like a nice comfortable place.

 

RE: GBM Treatment - Hallwang Clinic

by peralta on Fri Dec 26, 2014 10:07 AM

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On Feb 12, 2014 5:22yasheshbwrote:

Hello,

    My mother (78 years) was diagnosed with GBM IV in Sep 2013 and she's undergone a surgery on Oct 1st 2013

She has had 4 rounds of Temozolomide (oral chemo - standard 5 days dosage) in the months of Nov, Dec, Jan and Feb.

  She did not undergo any radiation. Since Feb 7th she's been hospitalised since she complained of persistent headaches and nausea and on 7th she was in very poor health and could not even swallow medicine hence had to be hospitalized.

  A new CT scan done on Fri (7th Feb) shows a growth in the tumour.

  In the meantime i was recommended of Hallwang clinic in Germany for cancer treatment. 

  Wanted to check with anyone in this mailing list if you'll have had any experiences at the Hallwang clinic specifically for GBM IV.

   Any input, feedback regarding it appreciated.

Thanks

Yashesh

Hello Yashesh,

I have been at Hallwang Clinic for another reason - TNBC stage IV - just until 23rd of December  - but there was a patient with me who was diagnosed with GBM IV and they used an immunotherapeutic approach similar to what has been used in my case - they targeted the so-called immune checkpoint in combination with dendritic cell vaccination and targeted small molecules - for TNBC there have been very encouraging data last month and the Halwang Clinic was the oly Clinic I found that offered that treatment course in this early study stage. In this regard I think that clinical studies are also currently runnning for GBM - I just can honestly say, that the care I was given at HPOC was great, particularly the senior consultant Dr. N is very kind, and very knowledgeable about immunotherapy and integrative oncology. Even now, I just keep in contact with him via mail since I experience some side effects (not yet major=)). If you have any questions about your mother´s case, I´m sure that he will help you, just write him All my best wishes, Johanna  

RE: GBM Treatment - Hallwang Clinic

by andrew_simmons on Thu Feb 11, 2016 12:54 PM

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Hello Yashesh!

 I just read your post re Hallwang clinic-I have just been there two weeks ago and was actually really surprised. I have to admit I was really nervous and insecure before going to the Hallwang clinic, as I have read so many different and ambivalent posts on this clinic, but after a long internet search and chats with different patients I decided to go there-and I am so grateful and feel blessed that I found this clinic. There are now 3 oncologists that are rotating and the medical director is a very innovative and caring doctor (Dr Nolting)- I actually never met a doctor like him-so interested and up to date with all aspects of cancer research and excited about helping people. From what I understand  the medical staff changed completely over the last two years and they offer a wide range of real immunotherapy, I have never found something like that before (and believe me, I visited a lot of clinics already in Germany). I can just say that it is the first time my tumor markers went down and I feel hope and strength again, after my previous doctors told me I would be dead by now! Steve, a lovely British gentleman I met here, is in complete remission from mets pancreatic cancer, you should have seen him after he came from his scan in Stuttgart. Also, I met two patients with glioblastoma and they have been in treatment there for over a year and looked good (but dont know anything in detail re their history). Having said all that, I also truly believe that everyone has to find her or his right treatment, and what helped me (peptide vaccine with i.v. antibody treatment) might not help someone else, since this terrible disease has so many faces and we are all so different, but having received my blood results yesterday and feeling on track again, I am grateful for every week this treatment is giving me, and I could not help to leave this  line in case you are looking into the Hallwang clinic but are unsure because of all the different opinions-in my case it was the right choice. Don´t give up, but hang in there, sometimes help is where you least expect it.

RE: GBM Treatment - Hallwang Clinic

by susanwatkins on Fri Feb 12, 2016 01:42 PM

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On Feb 11, 2016 12:54 andrew_simmons wrote:

Hello Yashesh!

 I just read your post re Hallwang clinic-I have just been there two weeks ago and was actually really surprised. I have to admit I was really nervous and insecure before going to the Hallwang clinic, as I have read so many different and ambivalent posts on this clinic, but after a long internet search and chats with different patients I decided to go there-and I am so grateful and feel blessed that I found this clinic. There are now 3 oncologists that are rotating and the medical director is a very innovative and caring doctor (Dr Nolting)- I actually never met a doctor like him-so interested and up to date with all aspects of cancer research and excited about helping people. From what I understand  the medical staff changed completely over the last two years and they offer a wide range of real immunotherapy, I have never found something like that before (and believe me, I visited a lot of clinics already in Germany). I can just say that it is the first time my tumor markers went down and I feel hope and strength again, after my previous doctors told me I would be dead by now! Steve, a lovely British gentleman I met here, is in complete remission from mets pancreatic cancer, you should have seen him after he came from his scan in Stuttgart. Also, I met two patients with glioblastoma and they have been in treatment there for over a year and looked good (but dont know anything in detail re their history). Having said all that, I also truly believe that everyone has to find her or his right treatment, and what helped me (peptide vaccine with i.v. antibody treatment) might not help someone else, since this terrible disease has so many faces and we are all so different, but having received my blood results yesterday and feeling on track again, I am grateful for every week this treatment is giving me, and I could not help to leave this  line in case you are looking into the Hallwang clinic but are unsure because of all the different opinions-in my case it was the right choice. Don´t give up, but hang in there, sometimes help is where you least expect it.

Hello Andrew!

That is great to hear! Congratulations to your success and I hope you will continue on this path. A friend of mine has just been to the clinic, too and when I visited her I was impressed about the progress she made and the care she was given. She suffers from ovarian cancer stage IV and was given up by her US doctors, but then heard about the Hallwang Clinic. She just started treatment there 3 months ago, but is really happy. We can only recommend this clinic. But we also read some worrying posts posted a couple of years ago- I can only say the current staff is amazing, the nurses are gold (never underestimate how important their attention is!) and treatments the most advanced out there. Of course, they are no magicians, and probably will not be able to help everyone, as cancer is a b****, but I will be forever grateful for what they do for my friend. 

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