Un bearable pain

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Un bearable pain

by Jpg1961 on Wed Feb 19, 2014 01:40 PM

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Hi everyone, just a question please I know how much everyone has gone threw on this site so please don't take this as me being a whiner or complainer. I have a very high tolerance to pain my doctors never believe me when I say no that does not hurt.But in the same way when I tell them I'm in un bearable pain they say O and just move on with the old so how are things going.I don't like taking med's and they know that we go head to head a lot about that.But I'm to the point where it is un bearable.I was able to go out and do things before they got the bright idea to as they say ween me off my pain meds now I physically can not do much but sit in my chair and rock back and forth trying to not go crazy.i had a full radical in my neck and the un forgiving radiation to my neck and face that is what causes all the head,neck,shoulder pain but the pain in my lower back and legs is all I can say un bearable the only thing that helps is the dalaltin it's stronger than morphine the only thing that helps.Im just trying to find out if others are having this issue and if so what are the options to getting control of the pain. I have a pain specialist I go to in phily at med of penn at Perlman cancer center.All they seem to care about is that you might get addicted to the med's so they don't like giving them to us.It will be one year on April 15 2014 since my last operation and my last radiation treatment #35 was July 28 2013 and the pain has never let up.Im starting to have a hard time and I have come to far and to many people have given to much of them selfs for me,so just out of respect for these wonderful people I can not give up,I just don't know what to do,any input would be so appreciated.I don't mean to rabble on but I just don't know how to keep pushing on anymore.I know there are many people wishing this is all they had to deal with. Thank you for listening John

RE: Un bearable pain

by Oudave83 on Wed Feb 19, 2014 04:34 PM

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On Feb 19, 2014 1:40 PM Jpg1961 wrote:

Hi everyone, just a question please I know how much everyone has gone threw on this site so please don't take this as me being a whiner or complainer. I have a very high tolerance to pain my doctors never believe me when I say no that does not hurt.But "" target="_blank" rel="nofollow">http://hurt.But " target="_blank" rel="nofollow">hurt.But in the same way when I tell them I'm in un bearable pain they say O and just move on with the old so how are things going.I don't like taking med's and they know that we go head to head a lot about that.But "" target="_blank" rel="nofollow">http://that.But " target="_blank" rel="nofollow">that.But I'm to the point where it is un bearable.I was able to go out and do things before they got the bright idea to as they say ween me off my pain meds now I physically can not do much but sit in my chair and rock back and forth trying to not go crazy.i had a full radical in my neck and the un forgiving radiation to my neck and face that is what causes all the head,neck,shoulder pain but the pain in my lower back and legs is all I can say un bearable the only thing that helps is the dalaltin it's stronger than morphine the only thing that helps.Im "" target="_blank" rel="nofollow">http://helps.Im " target="_blank" rel="nofollow">helps.Im just trying to find out if others are having this issue and if so what are the options to getting control of the pain. I have a pain specialist I go to in phily at med of penn at Perlman cancer center.All "" target="_blank" rel="nofollow">http://center.All " target="_blank" rel="nofollow">center.All they seem to care about is that you might get addicted to the med's so they don't like giving them to us.It "" target="_blank" rel="nofollow">http://us.It " target="_blank" rel="nofollow">us.It will be one year on April 15 2014 since my last operation and my last radiation treatment #35 was July 28 2013 and the pain has never let up.Im "" target="_blank" rel="nofollow">http://up.Im " target="_blank" rel="nofollow">up.Im starting to have a hard time and I have come to far and to many people have given to much of them selfs for me,so just out of respect for these wonderful people I can not give up,I just don't know what to do,any input would be so appreciated.I don't mean to rabble on but I just don't know how to keep pushing on anymore.I know there are many people wishing this is all they had to deal with. Thank you for listening John
John, Keep hanging tuff...as a six year survivor, many here have walked in your shoes..... Some thoughts: Check for depression or an anxiety adjustment disorder...your life has changed. Get sufficient pain meds as well as lidoderm patches, compound creams lyrica...you must get your pain and depression in check..... If you are a abusing drugs address it and get help ASAP....it's a real challenge. See a pain and palliative division in your hospital...seek counseling as needed. Take one day at a time.... Check spinal cord stimulator for pain... Increase your spiritual growth....your higher power loves you unconditionally, explore nurture and grow that thru your church or faith organization.... Join a head and neck support group..... Find interests and people you enjoy.....people will never understand your experience unless they have been there...be forgiving of them and yourself. Fill your heart with gratitude and be confident you ban overcome each and every obstacle before you...honestly assess your situation without blame or guilt and take the appropriate action from there. The little c others call cancer got nuttin on you my man...keep hanging tuff with the spirit one day at a time. Oudave83. Out

rjcrossley rjcrossley
(Inactive)

RE: Un bearable pain

by rjcrossley on Wed Feb 19, 2014 08:07 PM

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On Feb 19, 2014 1:40 PM Jpg1961 wrote:

Hi everyone, just a question please I know how much everyone has gone threw on this site so please don't take this as me being a whiner or complainer. I have a very high tolerance to pain my doctors never believe me when I say no that does not hurt.But "" target="_blank" rel="nofollow">http://hurt.But " target="_blank" rel="nofollow">hurt.But in the same way when I tell them I'm in un bearable pain they say O and just move on with the old so how are things going.I don't like taking med's and they know that we go head to head a lot about that.But "" target="_blank" rel="nofollow">http://that.But " target="_blank" rel="nofollow">that.But I'm to the point where it is un bearable.I was able to go out and do things before they got the bright idea to as they say ween me off my pain meds now I physically can not do much but sit in my chair and rock back and forth trying to not go crazy.i had a full radical in my neck and the un forgiving radiation to my neck and face that is what causes all the head,neck,shoulder pain but the pain in my lower back and legs is all I can say un bearable the only thing that helps is the dalaltin it's stronger than morphine the only thing that helps.Im "" target="_blank" rel="nofollow">http://helps.Im " target="_blank" rel="nofollow">helps.Im just trying to find out if others are having this issue and if so what are the options to getting control of the pain. I have a pain specialist I go to in phily at med of penn at Perlman cancer center.All "" target="_blank" rel="nofollow">http://center.All " target="_blank" rel="nofollow">center.All they seem to care about is that you might get addicted to the med's so they don't like giving them to us.It "" target="_blank" rel="nofollow">http://us.It " target="_blank" rel="nofollow">us.It will be one year on April 15 2014 since my last operation and my last radiation treatment #35 was July 28 2013 and the pain has never let up.Im "" target="_blank" rel="nofollow">http://up.Im " target="_blank" rel="nofollow">up.Im starting to have a hard time and I have come to far and to many people have given to much of them selfs for me,so just out of respect for these wonderful people I can not give up,I just don't know what to do,any input would be so appreciated.I don't mean to rabble on but I just don't know how to keep pushing on anymore.I know there are many people wishing this is all they had to deal with. Thank you for listening John

I know just what you're going through four years ago A Tens machine help me lot. It got me off the pain pathers The pain was so bad it use to make me nor is But the worst now is the Neuropathy in my feet.  But until now I really did not  know how much pain My body was coping with  You see problem with the radiation is that it damages the  outer coating(the merlin) from the nerves. In the long term There only two things I know off that will help One hydrotherapy

http://www.treating-cancer-alternatively.com/Hydrotherapy.ht

the other medical marijuana

  http://medicalmarijuanamallusa.com/InformationPages/CancerTr

rjcrossley rjcrossley
(Inactive)

RE: Un bearable pain

by rjcrossley on Wed Feb 19, 2014 08:11 PM

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On Feb 19, 2014 4:34 PM Oudave83 wrote:

On Feb 19, 2014 1:40 PM Jpg1961 wrote:

Hi everyone, just a question please I know how much everyone has gone threw on this site so please don't take this as me being a whiner or complainer. I have a very high tolerance to pain my doctors never believe me when I say no that does not hurt.But " target="_blank" rel="nofollow">hurt.But " target="_blank" rel="nofollow">hurt.But " target="_blank" rel="nofollow">hurt.But "" target="_blank" rel="nofollow">http://hurt.But " target="_blank" rel="nofollow">hurt.But " target="_blank" rel="nofollow">hurt.But " target="_blank" rel="nofollow">hurt.But " " target="_blank" rel="nofollow">hurt.But " target="_blank" rel="nofollow">hurt.But " target="_blank" rel="nofollow">hurt.But " target="_blank" rel="nofollow">hurt.But "" target="_blank" rel="nofollow">http://hurt.But " target="_blank" rel="nofollow">hurt.But " target="_blank" rel="nofollow">hurt.But " target="_blank" rel="nofollow">hurt.But " " target="_blank" rel="nofollow">hurt.But " target="_blank" rel="nofollow">hurt.But " target="_blank" rel="nofollow">hurt.But " target="_blank" rel="nofollow">hurt.But "" target="_blank" rel="nofollow">http://hurt.But " target="_blank" 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rel="nofollow">us.It " target="_blank" rel="nofollow">us.It "" target="_blank" rel="nofollow">http://us.It " target="_blank" rel="nofollow">us.It " target="_blank" rel="nofollow">us.It " target="_blank" rel="nofollow">us.It " target="_blank" rel="nofollow">us.It " target="_blank" rel="nofollow">us.It " target="_blank" rel="nofollow">us.It " target="_blank" rel="nofollow">us.It will be one year on April 15 2014 since my last operation and my last radiation treatment #35 was July 28 2013 and the pain has never let up.Im " target="_blank" rel="nofollow">up.Im " target="_blank" rel="nofollow">up.Im " target="_blank" rel="nofollow">up.Im "" target="_blank" rel="nofollow">http://up.Im " target="_blank" rel="nofollow">up.Im " target="_blank" rel="nofollow">up.Im " target="_blank" rel="nofollow">up.Im " " target="_blank" rel="nofollow">up.Im " target="_blank" rel="nofollow">up.Im " target="_blank" rel="nofollow">up.Im " target="_blank" rel="nofollow">up.Im "" target="_blank" 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rel="nofollow">up.Im " target="_blank" rel="nofollow">up.Im " " target="_blank" rel="nofollow">up.Im " target="_blank" rel="nofollow">up.Im " target="_blank" rel="nofollow">up.Im " target="_blank" rel="nofollow">up.Im "" target="_blank" rel="nofollow">http://up.Im " target="_blank" rel="nofollow">up.Im " target="_blank" rel="nofollow">up.Im " target="_blank" rel="nofollow">up.Im " " target="_blank" rel="nofollow">up.Im " target="_blank" rel="nofollow">up.Im " target="_blank" rel="nofollow">up.Im " target="_blank" rel="nofollow">up.Im "" target="_blank" rel="nofollow">http://up.Im " target="_blank" rel="nofollow">up.Im " target="_blank" rel="nofollow">up.Im " target="_blank" rel="nofollow">up.Im " target="_blank" rel="nofollow">up.Im " target="_blank" rel="nofollow">up.Im " target="_blank" rel="nofollow">up.Im " target="_blank" rel="nofollow">up.Im starting to have a hard time and I have come to far and to many people have given to much of them selfs for me,so just out of respect for these wonderful people I can not give up,I just don't know what to do,any input would be so appreciated.I don't mean to rabble on but I just don't know how to keep pushing on anymore.I know there are many people wishing this is all they had to deal with. Thank you for listening John
John, Keep hanging tuff...as a six year survivor, many here have walked in your shoes..... Some thoughts: Check for depression or an anxiety adjustment disorder...your life has changed. Get sufficient pain meds as well as lidoderm patches, compound creams lyrica...you must get your pain and depression in check..... If you are a abusing drugs address it and get help ASAP....it's a real challenge. See a pain and palliative division in your hospital...seek counseling as needed. Take one day at a time.... Check spinal cord stimulator for pain... Increase your spiritual growth....your higher power loves you unconditionally, explore nurture and grow that thru your church or faith organization.... Join a head and neck support group..... Find interests and people you enjoy.....people will never understand your experience unless they have been there...be forgiving of them and yourself. Fill your heart with gratitude and be confident you ban overcome each and every obstacle before you...honestly assess your situation without blame or guilt and take the appropriate action from there. The little c others call cancer got nuttin on you my man...keep hanging tuff with the spirit one day at a time. Oudave83. Out

Sorry about the spelling mistakes in the last post I type to fast I accidentally posted it be I had a chance to correct it

Ray

RE: Un bearable pain

by adamschesley on Thu Feb 20, 2014 03:13 AM

Quote | Reply

John,

Have you had an MRI to the lower spine. As a physical therapist, I often see people with pain in their legs due to pathology in their lumbar spine. Problems such as bulging discs, narrowing of central canal(spinal cord space), etc. ;these can all cause low back and/or leg pain. You may want to rule out any of these causes for your pain. If the pain is indeed caused by pathology in your back, then an orthopedic solution may help ( physical therapy, surgery, spinal injections,TENS, etc.).

Best of Luck-Hang in there!

Ches

RE: Un bearable pain

by Jpg1961 on Fri Feb 21, 2014 12:56 PM

Quote | Reply
Thank you everyone I will take all the advice and use it to my advantage .just had an other PET scan Thursday so waiting on results. Thank you

RE: Un bearable pain

by Oudave83 on Thu Feb 27, 2014 07:58 PM

Quote | Reply
Keep kickin behind...waiting after a pet is always the hardest...visualize positive thoughts only...give me the good news. Oudave 83

RE: Un bearable pain

by pcn17 on Fri Feb 28, 2014 01:52 AM

Quote | Reply

Hi John, it has been a  while since I've been back here. I am an 8 year surviror, I am just now going to file disability, which I should have done long ago. Pain, I know what you mean, I was on the fentyln patch, liquid Norco, and Percocet which I am currently still on for the pain, necrosis, neck disection. I have depression, and I really know that this has changed my quality of life forever and I am not going to spend the rest of my life in pain, discomfor, torturing myself, trying to work and killing myself all the while in denial I will be back as new. Cause I won't be. I've read these post in the 2-3 years I've been off and it all has convinced me. I don't think you will abuse the pain meds, you need them for the discomfort you are going through. I have gone to accunpunture which helped a little in the beginning. I started going to this pain management docor 3 years ago. Have had trigger point injections, epidurals in my neck because of the pain, and sometimes that does not help much. I have not gained a lb since all this started, I am still 100 lbs. Hardly no saliva, mucous, phelgm, I'd rather not eat because of the discomfort, possible choking and loss of appetite I've gotten out of this. I am just grateful to be here for my kids and my grand children, but the quality of life is so questionable. I meditate, speak with God all the time, I cry and want better, but I don't think it will. I hope you take care of yourself and find some relief. but take care of yourself for you now!

Patricia "-)

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