question to tonsil cancer survivors and patients!!

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RE: question to tonsil cancer survivors and patients!!

by housemaid on Sat Nov 29, 2014 12:43 PM

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Linda, I had pain in my tonsils and went to several ENT doctors who said that nothing was wrong. I also had a cough and a pain in my ear at times, especially lying in bed at night. Finally I stuck my finger back there and felt a lump. I was terrified that I had cancer. I could see something white back there. I rushed off to another ENT doctor, and this one said I had tonsil stones! He said it was very common, and he squeezed a whole bunch of them out. The pain went away.

However, most ENT doctors do not want to squeeze out the stones and will just give you antibiotics. Most don't even think about them. I was lucky to get an ENT who would do something about it at last. I suggest you google tonsil stones and also ask your ENT doctor at your upcoming appointment  if that is what you might have. If he doesn't want to be bothered, he may not try to squeeze them out and will just give a quick look and say he doesn't see anything. That happened to me with my first FOUR ENT doctors!

Even though this doctor did squeeze out my stones, he said I woul get more and he wanted to do a tonsillectomy. No way am I going to have a tonsillectomy at my age. I had never had any tonsil stones before in my life, but I had a bad viral tonsillitis a couple of years previously where my tonsils were swollen for a couple of weeks. Some people get them as teens, but for me it happened at age 67!

RE: question to tonsil cancer survivors and patients!!

by Dlynn1210 on Sat Nov 29, 2014 02:04 PM

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I've never heard of tonsil stones but then if we can have gallbladder and kidney stones, which are extremely painful, sounds like a possibility.  It seems the younger (30s and 40s) ENTs are a little more on top of things because more health issues are popping up with tonsil and throat area.  Both the cardiologist and the ENT that knew what my problem was were probably in their late 30s or early 40s.  I was 60 years old when I was diagnosed and had both tonsils removed - not a piece of cake by any means but worth it for peace of mind. 

Diana

RE: question to tonsil cancer survivors and patients!!

by lwoctober on Sun Nov 30, 2014 08:08 PM

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I do know about tonsil stones with all the goggling Im doing lol so i will bring them up to the Dr for sure! and I will let you know if that is the case..Thank you! 

RE: question to tonsil cancer survivors and patients!!

by lwoctober on Sun Nov 30, 2014 08:11 PM

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yeah the are actually pretty common looks like hard chesse with a bad odor they say, you can youtube it and see them.. Linda

RE: question to tonsil cancer survivors and patients!!

by housemaid on Mon Dec 01, 2014 01:49 AM

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Yes, they are common even though I had never heard of them before. You can't always see a white spot, but I would advise getting a strong penlight and looking back there. I had never looked or felt back there before in my life. Stones will make your tonsil feel "full" and cramp if you have a lot of them. They affect the nerve that goes to your ear and can cause pain and itching in the ear. The ENT said my stones were the largest he had ever seen. I was totally shocked when I saw them come out. I had a lot more in one tonsil than the other. If the ENT says he sees nothing, you can learn to express them yourself by reading about it on the internet and watching videos.

RE: question to tonsil cancer survivors and patients!!

by housemaid on Mon Dec 01, 2014 01:52 AM

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On Dec 01, 2014 1:49 AM housemaid wrote:

Yes, they are common even though I had never heard of them before. You can't always see a white spot, but I would advise getting a strong penlight and looking back there. I had never looked or felt back there before in my life. Stones will make your tonsil feel "full" and cramp if you have a lot of them. They affect the nerve that goes to your ear and can cause pain and itching in the ear. The ENT said my stones were the largest he had ever seen. I was totally shocked when I saw them come out. I had a lot more in one tonsil than the other. If the ENT says he sees nothing, you can learn to express them yourself by reading about it on the internet and watching videos.

Meant to say "expel" them yourself.

RE: question to tonsil cancer survivors and patients!!

by totis_salvador on Tue Dec 02, 2014 07:22 PM

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Hi there, my name is francis, I been following your responses,my right tonsil is bigger that my left, my ENT appnt is this Thursday , do you guys think that it's better off to have my right tonsils be taken off, It comes to my mind that it's only tonsil stones.

RE: question to tonsil cancer survivors and patients!!

by housemaid on Wed Dec 03, 2014 12:49 AM

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From what I have read, having a tonsillectomy as an adult is extremely painful and takes a couple of weeks to recover from. If you do have tonsil stones, the doctor might suggest tonsillectomy, but I think that is too extreme since you can usually press out the stones.

There are laser procedures that reduce the size of the tonsils and remove crypts where stones form, but do not strip the tonsils out completely. That would be a lot less are less painful than tonsillectomy. They have videos of laser ablation of tonsils on YouTube.

If you have tonsil cancer, then of course, you would have to have a tonsillectomy. It is common for one tonsil to be bigger than the other, especially if you have stones in them. Best of luck at the doctor's office, Francis.

RE: question to tonsil cancer survivors and patients!!

by Dlynn1210 on Wed Dec 03, 2014 01:19 AM

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With tonsil cancer, one tonsil will be greatly enlarged while the other one is normal size.  Your ENT should be able to tell you what is going on.  I doubt if they would do a tonsillectomy on you unless a doctor deems it necessary.  Insurance companies are backing off from paying claims unless the procedure is absolutely necessary. 

My daughter had several bouts with strip throat and her doctor had talked to her a few times about having her tonsils out.  She is an RN and knew it was not a piece of cake for an adult so she kept putting it off - until I was diagnosed with tonsil cancer. She went in immediately for the tonsillectomy when I shared that they suspect a genetic factor.  It wasn't easy on her or I - she was off work for one week.

Let us know what the ENT says.

Diana 

RE: question to tonsil cancer survivors and patients!!

by lwoctober on Wed Dec 03, 2014 01:56 AM

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Well for everyone who is tracking this thread. I went to the ENT today and he said "My tonsil doesnt look that bad but that he wants to look at my tonsil again in 3 weeks" after giving me a script of 10 days of 875 Amox-clav and 3x prednisone 10mg he said "Dr wants to rule out a infection. but what he did see was, my salvary glands were very enlarged what I thought were (lymph nodes) so he ordered a cat-scan and he also ordered me a chest xray to find out why Im in so much pain he did say he would be looking for a tumor but that doesnt mean I have one. I was treated already with a zpak in Oct so I dont think I have any infection but Im taking all this medicine and hoping for it to help me. I will update after the cat-scan..Any thoughts are welcome..Linda 

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