question to tonsil cancer survivors and patients!!

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RE: question to tonsil cancer survivors and patients!!

by totis_salvador on Fri Dec 05, 2014 06:38 PM

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Thanks diana

RE: question to tonsil cancer survivors and patients!!

by lwoctober on Fri Dec 12, 2014 12:28 AM

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Too Everyone who replied to me..Ok I got the report from the place that gave me the ct-scan but I haven't went back to the Dr yet..My report says "I have a 1.4 cm nodule of the left thyroid lobe..I am surprised but it makes sense why I'm having chest pain with my left neck pain and I notice if I sing my neck hurts, bet this is why i get red flushed in the face..My tonsil came back within normal limits, but my left one still looks bigger to me and a lil red..I hope I get a biopsy on my thyroid to get some kind of diagnose. I just hope I don't get dismissed because I'm miserable..Guess I'll read all I can about this ..Linda

RE: question to tonsil cancer survivors and patients!!

by Dlynn1210 on Fri Dec 12, 2014 12:36 AM

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On Dec 12, 2014 12:28 AM lwoctober wrote:

Too Everyone who replied to me..Ok I got the report from the place that gave me the ct-scan but I haven't went back to the Dr yet..My report says "I have a 1.4 cm nodule of the left thyroid lobe..I am surprised but it makes sense why I'm having chest pain with my left neck pain and I notice if I sing my neck hurts, bet this is why i get red flushed in the face..My tonsil came back within normal limits, but my left one still looks bigger to me and a lil red..I hope I get a biopsy on my thyroid to get some kind of diagnose. I just hope I don't get dismissed because I'm miserable..Guess I'll read all I can about this ..Linda

Linda -

Nodules are fairly common which I found out after being diagnosed with nodules in my lungs.  After going through cancer, I kind of freaked out upon hearing nodules.  They found them through a CT scan and wanted to do an MRI soon but my oncologist calmly said to wait for my regular check up in two months.  During those two months I came across friends who had also been told they have nodules but had never had cancer.  Nodules are not cancer which is good and my onlogist saw no reason to do an MRI.  We had a female news reporter here in Tampa area that had them and had to reduce her reporting for a time while being treated.  There have to be other indications of cancer before they will biopsy.  It really isn't good to be reading "all" you can because not being a medical person, you can read the wrong things into a report.  You need to ask your doctor for an explanation.

Diana 

RE: question to tonsil cancer survivors and patients!!

by lwoctober on Fri Dec 12, 2014 01:58 AM

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I understand but if this is cancer I want to catch it early. And even if it is not cancer I have symptoms I cannot live with so something has to be done. I am having pain in my neck and chest. I cant sing or talk very long without pain and I tire easily. I just need answers. I meant I want to read all about the thyroid gland and I did read a lot tonight and it is making sense to me. We all know our own body and I knew something was wrong. Im getting closer to an answer and I am happy I can now fous on getting a diagnose soon. Linda 

RE: question to tonsil cancer survivors and patients!!

by lwoctober on Tue Dec 16, 2014 04:30 PM

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Diana..I have a question for you..I know youre not a Dr but you seem to have a lot of knowledge..You know Ive been having chest and back pain with my neck pain ugh and Ive thought all this time my pain was from the orginal tonsilitis I had and possible some kind of neck-head cancer..Well yesterday I had an upper EGD because my food gets stuck this has been going for for a few years but I notice it has gotten a lot worst but I put it to the side when all the neck and tonsil stuff started happening so I decided to get it checked out now since im running so many test anyway, so when I woke up from the procedure my chest and back pain was severe and felt like the same pain and when I tried to drink something I almost couldnt because of the pain, like it something was distubed so it is the same but more intense. Well the Dr found something and took a bisposy and it looks like a red bubbled shrimp on the bottom of my esophagus..(He gave me pictures) plus I had food where food wasnt suppose to be..Anyway my question is..is it possible that all my neck pain could be from this area? Yes I do have a nodule on my thyroid but maybe that is just a coincidence? Thank you..Not saying cancer but whatever that is he found Just wondering..Linda

RE: question to tonsil cancer survivors and patients!!

by lwoctober on Tue Dec 16, 2014 04:42 PM

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Guess what I saying is, the esophagus runs through the back of the neck..wondering if that is the source of all my pain..Linda

RE: question to tonsil cancer survivors and patients!!

by cjayi_louise on Mon Jan 23, 2017 03:45 AM

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On Nov 23, 2014 1:33 PM Dlynn1210 wrote:

On Nov 23, 2014 1:27 PM lwoctober wrote:

On Mar 04, 2014 9:15 PM Sdurnell wrote:

My cancer was stage III, and has metastasized to a lymph node in my neck, which was enlarged but not painful.  (It is most often diagnosed at III or IV.)  I mentioned it to my doctor, who ordered a CT and on the basis of that referred me to an ENT/neck surgeon in the city.  He did a needle-guided biopsy which came back positive, so next did a modified radical neck dissection, which means removing all the lymph nodes on one side of the neck, including the big one.  (Hospital, overnight stay, not a big deal.) Pathology found that only that one was cancerous, and the cancer was encapsulated in that node.  I had radiation to my entire jaw and neck for five weeks, no chemo.  And then there was the nightmare of recovery.

Susan

Hi..Thank you for your info.. Did you see your tonsil was bigger? red? any pain at the tonsil site? I know the nodes do not hurt really..Linda

I was told by my ENT that when ONE tonsil is greatly enlarged while the other is NORMAL size almost always means cancer.  My left tonsil took up half my throat (after she pointed it out - how many of us look at the back of our throats?) and had no discoloration - not an infection which would cause redness - while my right one was so tiny it was almost invisible - which is why I had been told my entire life I was born without tonsils - like my mother. 

Also, there was NO pain involved which is why tonsil cancer is often overlooked for some time (slow growing).  The only symptom I had in the beginning was severe fatique - I went to bed tired and woke up tired.  At the very end I began to have VERY MILD chest pains - and I do mean so mild they didn't bother me during the day - I only noticed at night in bed. 

Diana

I have been having problems with my right tonsil for 3 years!! From the time I first noticed it was covering half of my throat to this very day, it has never gotten smaller.  It has only gotten slightly bigger. I don't often have pain, but I have noticed a strange sensation in my tonsil which is hard to describe - it's like I can feel that my tonsil is there and I know that I shouldn't be able to feel this.

I have had strange chest pains for the last year and a half.  Sometimes it is a stab, sometimes it is a dull ache on one side of my back, and I never thought that this could be related to my tonsil until I read your comment here.

I have been to numerous doctors, taken steroids and antibiotics and nothing has made a difference to my tonsil. I have been told that there is no virus or infection after multiple doctors visits and a tonsil swab, and continue to get sent away. 

I did see an ENT specialist but was not impressed when all he did was literally poke my tonsil with his finger and say "it doesn't feel firm, I think it is fine."

I have just seen a new doctor to get like a 5th opinion and he immediately gave me a request to get a CATscan to see if there is anything behind the tonsil.  But he tells me that he is not overly concerned because if it were cancerous, it would have progressed A LOT more in this time.  What do you think?

I see you commented on this way back in 2014 but if you happen to see this please please reply :) 

Thanks.

RE: question to tonsil cancer survivors and patients!!

by Dlynn1210 on Mon Jan 23, 2017 04:00 AM

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I tend to agree with your doctor - in three years you would have experienced more.  While you and I would not likely be able to tell just by looking at our tonsil, doctors are trained to recognize malignant tissue.  While I went to several doctors before finding one that knew what she was looking at (a cardiologist) - only one even mentioned my enlarged tonsil and that was the doctor I saw just before the cardiologist.  Even though he didn't know what it meant, he did ask if anyone had ever told me I had one enlarged tonsil.  The one symptom I had from the beginning was severe fatigue.  I went to bed tired and got up tired - 24/7.  Another possibility my ENT mentioned prior to the surgical removal of my tonsils was something embedded in the tonsil.  She called her partner in to look into my mouth and I could tell both suspected the same because it looked like cancerous tissue.     

Diana

RE: question to tonsil cancer survivors and patients!!

by cjayi_louise on Mon Jan 23, 2017 08:56 AM

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On Jan 23, 2017 4:00 AM Dlynn1210 wrote:

I tend to agree with your doctor - in three years you would have experienced more.  While you and I would not likely be able to tell just by looking at our tonsil, doctors are trained to recognize malignant tissue.  While I went to several doctors before finding one that knew what she was looking at (a cardiologist) - only one even mentioned my enlarged tonsil and that was the doctor I saw just before the cardiologist.  Even though he didn't know what it meant, he did ask if anyone had ever told me I had one enlarged tonsil.  The one symptom I had from the beginning was severe fatigue.  I went to bed tired and got up tired - 24/7.  Another possibility my ENT mentioned prior to the surgical removal of my tonsils was something embedded in the tonsil.  She called her partner in to look into my mouth and I could tell both suspected the same because it looked like cancerous tissue.     

Diana

Thanks for taking the time to reply :) 

My doctor still mentioned the fact that he would like to rule out any tumour - malignant or non malignant, and I was appreciative of him considering that this was a possibility after my doctors turned me away saying it was nothing.  

I am also happy that he notes that even if it isn't something as life threatening as cancer, there is still something going on as my tonsil shouldn't be in the state that it is in.  I am also appreciative of this as in the past I was told "that's just the way you are."  

Thank you for reassuring me! I'll be sure to let you know when I get the results saying it is nothing serious :) 

RE: question to tonsil cancer survivors and patients!!

by kevincolangelo on Mon Jan 23, 2017 08:57 AM

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I had tonsil cancer Get ent to ecsim you and they will remove tonsils and do a biopsy on what they remove then you will know
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