Alas it was a short break

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RE: Alas it was a short break

by Carien on Thu Apr 10, 2014 07:15 AM

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the Netherlands Bryan, some pics on my blog www.cariensblog.wordpress.com (Dutch) and careensblog.wordpress.com (English) (careen is the phonetic spelling for my name for English-speaking people)

RE: Alas it was a short break

by Carien on Thu Apr 10, 2014 04:10 PM

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My dr called me. The good news: the primary tumor did shrink some more after the last scan (dec 31), but, the bad news, 1 (one) met is found in the liver. A small one. Their hypothesis: the CA 19,9 activity is solely from the liver, so best tactic would be local attack of the met through a new round of radiationtherapy on the liver. Next step: a biopt of the liver to make sure what they see on the scan ís indeed a met of the PC. He called me so that I could think things through until tuesday, I asked him to start up the biopsy, he will. 

RE: Alas it was a short break

by cb531 on Thu Apr 10, 2014 07:50 PM

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Sounds like the dr has a great plan plus the primary tumor shrinking is great news! Going forward with a great attidude like you are is wining!!!!!!!!!

Praying for even better results next time!

Cathy

RE: Alas it was a short break

by Bryan51 on Thu Apr 10, 2014 10:35 PM

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On Apr 10, 2014 4:10 PM Carien wrote:

My dr called me. The good news: the primary tumor did shrink some more after the last scan (dec 31), but, the bad news, 1 (one) met is found in the liver. A small one. Their hypothesis: the CA 19,9 activity is solely from the liver, so best tactic would be local attack of the met through a new round of radiationtherapy on the liver. Next step: a biopt of the liver to make sure what they see on the scan ís indeed a met of the PC. He called me so that I could think things through until tuesday, I asked him to start up the biopsy, he will. 

Carien, you are exactly like me. Small legion on the liver is the only thing that's active. I had the sirs sphere proceedure done but it did not go as planned. They were supposed to trap radioactive beeds around the tumor. Instead they released the beeds on the complete right lobe of my liver. Stomach problems for a month. Ask them if they can do radio frequency ablation and enilate it with heat. That is not an option for me because the legion is to close to my stomach lining and would burn a hole through it. Keep fighting!!!! Bryan

RE: Alas it was a short break

by Carien on Fri Apr 11, 2014 09:29 AM

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Thanks Cathy, I hope that you mean winning and not whining ;-)

Bryan, good tip, but in my case RFA is no option because the lesion is too close to an artery or vein.  I will learn more about the whereabouts of this new little friend on tuesday :) Chemo embolisation is too invasive.

I think they are planning 'normal' radiation or stereotactic, the latter is what I hope. 

I am standby here in case they call that I can go in for biopsy. Did you get a biopsy punction of the liver to make sure it was a met ? And based on what are they sure that it is only the lesion that is active ?

Carien

RE: Alas it was a short break

by cb531 on Fri Apr 11, 2014 03:53 PM

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Oh course WINNING!!!! xo Cathy

RE: Alas it was a short break

by Bryan51 on Fri Apr 11, 2014 10:17 PM

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On Apr 11, 2014 9:29 AM Carien wrote:

Thanks Cathy, I hope that you mean winning and not whining ;-)

Bryan, good tip, but in my case RFA is no option because the lesion is too close to an artery or vein.  I will learn more about the whereabouts of this new little friend on tuesday :) Chemo embolisation is too invasive.

I think they are planning 'normal' radiation or stereotactic, the latter is what I hope. 

I am standby here in case they call that I can go in for biopsy. Did you get a biopsy punction of the liver to make sure it was a met ? And based on what are they sure that it is only the lesion that is active ?

Carien

Carien, pet scan showed that the 1 cm legion was all that is active. That's the great thing about getting a pet scan instead of a cat scan. I did get a biopsy of the legion to see what it consists of, but they ran out of tissue before they could identify the best way to combat it. Most likely have to go back and let them take some more. The last time I had the biopsy I told the doc to feel free and take it all. He smiled and said he wished he could.what is stereotactic?

RE: Alas it was a short break

by Carien on Sat Apr 12, 2014 01:48 PM

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Stereotactic is more precise than normal radiationtherapy.

Most often done on the brain

http://en.wikipedia.org/wiki/Stereotactic_radiation_therapy

RE: Alas it was a short break

by Kjohnchas on Sat Apr 12, 2014 11:22 PM

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Caries,,,,I did read this,,,how great that you took the time and you were able too. My prayers with you,,,your doing great. Kathy

RE: Alas it was a short break

by Carien on Mon Apr 28, 2014 09:28 PM

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I went to see the radiationtherapist today. The good news: I will get stereotactic radiation treatment (here in NL protocol with PC with mets is no more local treatment at all), the bad news is the waitinglist: it will be June before they will start. Coming thursday endo-echo with biopt and placing of clips to guide the radiation.
Cheers, Carien 

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