Pancreatic cancer stage 4 / whipple aborted/ chemo?

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Pancreatic cancer stage 4 / whipple aborted/ chemo?

by Niconiconico on Wed May 07, 2014 05:10 AM

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Hi . This is my first post . My dad (64) went in for a Whipple procedure today at ucla . They had discovered a mass at the head of his pancreas but according to imaging it had not spread (stage1-2) and was operable . Within the first 1.5 hours of surgery the doctor discovered very small 1cm nodules in his belly tissue , which upon being biopsied , where determined as cancerous. They aborted the biopsy because the cancer had spread which according to the surgeon makes any surgery inefficable . 2 weeks ago the placed a stent in his bile duct as that was blocked, and today before stitching him up , they rerouted his small intestine to another part of the stomach, in case the duendenom was blocked down the line . The surgeon said chemo is the next step ASAP. We would like to try some alternative treatments, but need guidance with a logical gameplan. The alternatives I've come across online and from friends and family are- -Gerson diet / therapy -bitter mellon ( soursop juice/ extract) - dr. Gonzales enzyme therapy - juicing / alkaline diet - Laetrile (almond kernels b-17) - turmeric ( curcumin) - CBD therapy - budwig diet - Metformin- for sugar levels ? -salvestrols - fruit based 'prodrugs' - noni juice - there are also reports of therapies and trials done abroad that may be more advanced than the course he is on now. This is all so new and tough for our family . He's such an amazing guy , and we just want to do the right thing. It seems like he was cut open today for no reason , and it's been a real disappointing day . Good news is it has not , according to surgeon , spread to his liver. Please share any info or advice . Thank you and take care !

RE: Pancreatic cancer stage 4 / whipple aborted/ chemo?

by Niconiconico on Wed May 07, 2014 05:32 AM

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Also, Sorry again for the run on typing ... I'm very worried. After the surgery today , the docs classified it as stage 4 PC. They didn't seem to care to speak about any other options than chemo . Any advice , info, hope? Thanks again :)

RE: Pancreatic cancer stage 4 / whipple aborted/ chemo?

by PunkyD on Wed May 07, 2014 06:00 AM

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Dear Nico,

I'm sorry to hear about your dad's diagnosis.  It's optimistic that he is stage 1-2, and it doesn't sound like the surgery was all for nothing, if they rerouted his small intestine, and were actually able to see what is going on inside.  Often, you really don't know whether it has spread until you get in there. It sounds like you have a game plan, and a good medical team.  I also think it's a great decision to implement alternative treatments in cooperation with chemo.  That's a good way to kick cancer's butt! It sounds like you've really done your research.  Way to go.  This will be very helpful for your dad.  

I know it is so overwhelming, frustrating, sad, stressful, and confusing, and you have a long tough road ahead of you.  My words of advice would be to take a deep breath, keep optimistic and positive, take one day at a time and each challenge, one by one.  There is hope, lots of hope, and survivors.

Lastly, cherish every moment with your dad.  Not because he's not going to make it, but because life is too precious for ANYONE not to.

Continue to come here for support, advice, info, or just to vent, whenever you want.

Punky

RE: Pancreatic cancer stage 4 / whipple aborted/ chemo?

by debistalnaker on Wed May 07, 2014 07:09 PM

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My Dad had inoperable PC, so Dr Kortz at Swedish Medical used the nanoknife to kill the tumor. You might contact his office and see if they can use the nanoknife on all the cancers. Dr Kortz is one of very few doctors that use the nanoknife on pancreatic cancer. If that path is not viable you might look into low dose naltrexone. My Best, Debbie

RE: Pancreatic cancer stage 4 / whipple aborted/ chemo?

by Carien on Wed May 07, 2014 07:30 PM

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Hi Nico, yes there is such a wealth of info on 'how to cure your cancer' through diets and supplements and complementary treatments... and sometimes they contradict each other. I think personally that there is no such thing as THE truth in this matter, we all seem to react differently so I guess you will have to research all you can and make the choices you feel fit you and your father. 

I can only tell you what I do (and 'performing' beyond expectation so far) and I am sure all people here will have their own and different 'schedules' and 'strategies'. Mine: no sugars, no refined products, heaps of veggies, no meat, all organic, bread only sourdough and very little etc, etc. Budwig only for breakfast, daily bittermelon, ayurvedic medication including curcumine, selenium supplement, green powder (spirulina etc) drink, daily walk outside 1 hr, daily yoga. I did not refuse regular therapy, had folfirinox and radiation therapy so far.

RE: Pancreatic cancer stage 4 / whipple aborted/ chemo?

by al216 on Wed May 07, 2014 07:48 PM

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On May 07, 2014 7:30 PM Carien wrote:

Hi Nico, yes there is such a wealth of info on 'how to cure your cancer' through diets and supplements and complementary treatments... and sometimes they contradict each other. I think personally that there is no such thing as THE truth in this matter, we all seem to react differently so I guess you will have to research all you can and make the choices you feel fit you and your father. 

I can only tell you what I do (and 'performing' beyond expectation so far) and I am sure all people here will have their own and different 'schedules' and 'strategies'. Mine: no sugars, no refined products, heaps of veggies, no meat, all organic, bread only sourdough and very little etc, etc. Budwig only for breakfast, daily bittermelon, ayurvedic medication including curcumine, selenium supplement, green powder (spirulina etc) drink, daily walk outside 1 hr, daily yoga. I did not refuse regular therapy, had folfirinox and radiation therapy so far.

Carien,

Happened to read your post, what is budwig, bittermelon, and curcumine and where can i find them?

RE: Pancreatic cancer stage 4 / whipple aborted/ chemo?

by Niconiconico on Wed May 07, 2014 11:17 PM

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Thank you for all the caring replies . Wondering if anyone has any experience with alternative / complimentary programs such Oasis of Hope in mexico , the Gerson therapy , dr. Gonzales in NY who uses pancreatic enzyme treatment ... Or even the CAM programs in Germany ? Still hoping to find an expert to guide us in the alt/ complimentary realm ... We are still sitting in ucla recovering and it seems that the docs are unwilling to speak about any course other than chemo . Thanks again !

RE: Pancreatic cancer stage 4 / whipple aborted/ chemo?

by pcprof on Thu May 08, 2014 11:16 PM

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I was in touch with a caring research/author who wrote a book called Radical Remission which was published this Spring. She did a lot of research with healers around the world and on patients who beat cancer against all odds. The book discusses diet, exercise, spirituality, etc.

RE: Pancreatic cancer stage 4 / whipple aborted/ chemo?

by Carien on Fri May 09, 2014 12:25 AM

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hi al216.

there is a lot of information on all these things on the internet, easy to find. On curcumine/curcuma and budwig diet so many sites to read from... for the bitter melon this is the link for a relevant paper: http://carcin.oxfordjournals.org/content/34/7/1585.  Good luck.


pcprof: there is not just the book from Kelly Turner, but also a website where you can post your survivor stories or read them. Same name. radical remission. 

RE: Pancreatic cancer stage 4 / whipple aborted/ chemo?

by Henman on Fri May 09, 2014 06:28 PM

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Hi Nico 

This is also my first post and we are in the same situation. My mother was diagnosed in early February as a result of Jaundice. She saw her Doctor and he immediately suspected pancreatic cancer and refered to this as painless Jaundice. He scheduled us to an emergency ultrasound scan and after I took her there we found out she had a 3-4 cm tumor in her pancreas and a week later they placed a stent in her bile duct that was restricted from pressure from the tumor to give her some relief. They scheduled a Whipple Procedure operation but unfortunately she had to wait until April 2 for this which concerned me because of how bad pancreatic cancer is. During the operation after about 1 1/2 hours they discovered the cancer had spread to her liver and they also aborted the operation after doing a bile duct bypass. This was very disappointing to say the least as we were hoping for success because pancreatic cancer I was told can be very agressive and fast meanwhile the aborted Whipple will create a delay once again because of the healing process will delay Chemo. While she was recovering from the operation, pneunomia set in and they were able to get rid of that using antibiotics and she went home to wait for her cancer treatment appointment. Only 3 days later the pain was becoming unbearable so I brought her back to the hospital and they readmitted her. Later that night she had a stroke brought on by blood clots and is now trying to recover from that and of course this will probably delay the Chemo for too long or who knows, maybe the Cancer treatment center will cancel it. Right now I wonder if she would have been better off receiving Chemo before the Whipple because of the length of time she had to wait for the operation and recovery after the aborted Whipple. I'm also wondering how long my mother can wait before the Chemotharapy treatment is no longer viable. We  are wondering what other options are available to slow the cancer down in situations like this.

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