Esophageal cancer in young people

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RE: Esophageal cancer in young people

by RosemaryC on Sun Aug 06, 2017 06:06 PM

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I'm so very sorry you are going through this. The treatment is tough but manageable. There is another forum with a very active EC group. It is called smart patients. I think you would find it most helpful, for support, encouragement and discussions with others who have been there. In the meantime, try to stay positive, take one day at a time ( sometimes one moment at a time) keep your nutrition up, stay hydrated and do some type of daily exercise. Stay connected to family and friends, try meditation and be strong, you have much to live for. All my very best, keep us posted and check in on smart patients. You got this! Rosemary

RE: Esophageal cancer in young people

by ChadInBama on Sun Aug 06, 2017 06:19 PM

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Hi Rosemary. Thank you for such a thoughtful reply. I will check out smart patients. I like hearing the words manageable and you got this! There is no other choice for me, my young growing family need me!

RE: Esophageal cancer in young people

by Aoife on Sun Aug 06, 2017 06:20 PM

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On Aug 06, 2017 5:06 PM ChadInBama wrote:

Hello all. I found this thread and it has helped inspire me. I am 33 years old, have a 4 yr old daughter, and an 8 week pregnant wife. Needless to say, I was invincible until 2 weeks ago when I was diagnosed with EC.

I was fortunate that it was found due to me visiting a local Doc for daily mild heart burn. What is crazy is the heart burn symptons went away after we started testing. My doctors call it a stage 2/possible 3. They said it may be impacting 2 very close lymph nodes but cannot tell for sure. 

My doctors gave me confidence that we can shrink it and remove my lower esophagus.. However reading online makes me feel like odds are against me. Im 1 week into my treatment of 5 rounds weekly chemo and 28 total radiation. My first chemo made me quite sick and took my appetite.

I am trying to be brave, but with such a young family it is hard to escape my worst fears. I feel confident I can best this, it's just hard to deal with. Finding this forum has gave me a lot of support and I hope there are others that can join in and comment on their fight. 

Hi,

I am no longer really on this site as I am a 10.5 year survivor at this stage but I had my first symotoms when I was 31 and was diagnosed with esophageal cancer when I was 32.  I married two weeks post chemo, then had a total esophagectomy and before I turned 5 year survivor had my two children who are 6 and 7 now. 

I am sorry that you are going through this but wish you all the best - I have forgotten chemo, the surgery was very tough though but I did have my children post treatment.

Best wishes.

RE: Esophageal cancer in young people

by ChadInBama on Sun Aug 06, 2017 06:23 PM

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Aoife, you are truly an inspiration for me. Thank you

RE: Esophageal cancer in young people

by akb1972 on Mon Aug 14, 2017 10:12 PM

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My 45 yr old husband was diagnosed Dec 2014 with esophageal adenocarcinoma stage 2B.  He had no pre-existing conditions or risk factors such as Barretts, GERD, or otherwise.  He just passed 2 year mark NED after chemo, radiation, and esophagectomy.  We couldn't fathom where this unusual cancer came from, and why it hit an otherwise healthy, fit, young guy.  We undertook subsequent genetic testing, which revealed a mutation on a tumor-suppressant gene which has some link with increased risk of colon cancer but no mention of any relationship to esophageal adenocarcinoma.  Probably not enough evidence, but they'll figure out a link one day.  We will never know if this gene mutation contributed to his esophageal cancer, but that's the only information we have been able to gather.  

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