renal cell cancer in connection witrh agent orange

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RE: renal cell cancer in connection witrh agent orange

by HillbillyVet on Wed Feb 17, 2016 05:03 AM

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On Feb 17, 2016 3:19 AM ForDadRip wrote:

Ok well here is my story. I hope this may help all of you. I will keep you all posted on my findings in the future. When I was 3-4 years old I had a obvious eye problem where one eye was lazy. I had surgery shortly after diagnoses which has left me with a lifetime of horrible vision in the one eye. I will be calling children's for my report from back then to find out exactly what the diagnosis was. During meetings with the doctors my dad was asked if he was ever in Vietnam and the doctor told my parents that this eye condition is common in the offspring of those who were exposed to agent orange. Which my father was. That was around 1980. In 1984 my father was diagnosed with RCC and had one of his kidneys removed. This doctor also asked if my dad was in Vietnam and he also stated the correlation between RCC and agent orange. I will be reaching out to this hospital and the doctor who performed the removal of the kidney for any and all records. In march of 1995 my dad was diagnosed terminally ill with RCC by Ohio State university doctors. His doctor at ohio state also asked if my dad was in Vietnam and also expressed his opinion to my parents that agent orange may to be blamed for the RCC. I will be reaching out to the OSU hospital and doctors as well looking for any and all paperwork. My father passed in march of 1998. Fast forward to 2012... My mother joins a local AMVETS organization and a couple of the members who happen to be Veterans gave her a phone number of a gentleman here in Columbus Ohio who works for the local VA. They said to call this man and tell him your story. Which is what my mom did. My mom told me this back in 2012 and that was the last I heard of it. Tonight my mom called and said she wanted to bring some paperwork over that she just received in the mail from the local VA and she told me she has been working on it all this time since it started in 2012. This paperwork just received from the VA is asking for my dads medical treatment records from when he was at the cleveland clinic. And it is also asking for a copy of the medical opinion from the OSU doctor indicating that the RCC was due to agent orange along with the reasons and bases used in making this medical opinion. This was all just laid upon me tonight so I went to the internet and found you guys. Sounds like I have a lot of work to do. I will keep you all posted in hopes that what I find May help you as well. Thanks for your time and consideration. Jimmy

We also have an "Agent Orange and Kidney Cancer in Vietnam Veterans" group on Facebook.

https://www.facebook.com/groups/AGENTORANGE1/

Make sure you join us over there... it's much more active than this thread is.

Doug

RE: renal cell cancer in connection witrh agent orange

by ForDadRip on Sat Feb 27, 2016 04:12 PM

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Went to the VA on 2/25/2016. Still not for sure what the title is of the two guys we met with as they do not have business cards, can not give out their phone numbers or emails, and could not hardly answer any of the questions i had.  Their most popular response was "we cant comment on that".  They did however time stamp the VCAA Notice Response that informs the VA we would like an extra 30 days to gather evidence.  I am hoping we dont have to go back to the VA again.  All in all it was not a good experience.  Nothing was done in a timely or efficient manner, the overall attitude of those we came in contact with was just short of piss poor and i dont believe they are there to to help but only to attempt to manage the veterans and their situations.  On 2/27/2016 we went down to the Veterans Service Commission.  I stumbled upon them on the internet and this is where we met out first Service Office.  She tried to convince us to drop our case and stop waisting our time for two reasons.  1)  "Your dad never went to the VA hospital" and 2) "When the veteran dies the claim dies".  She also stated "Knowing what i know, if i was you i would not waste any more of my time on this".  Not expecting this response we stuck to our guns and said this was something we wanted to carry on with.  She then brought in one of her fellow S.O. who has 8 years experience. She never once suggested we drop the case.  She told us exactly what she thought we should do and get and also informed us that we do not need to go back to the VA that we should contac the Veterans Service Commission for everything as they are advocates for veterans and their families.  Next i will be attempting to contact any and all doctors my father came into contact with to see if any of them believe that there is a connection between agent orange and RCC and if they will put their professional opinion on paper so that we can submit to the VA.  Thats it for now.  Stay tuned... 

RE: renal cell cancer in connection witrh agent orange

by HillbillyVet on Thu May 26, 2016 01:06 PM

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Help get this petition out there telling the VA to give Kidney Cancer presumptive status from exposure to Agent Orange

https://www.change.org/p/let-your-legislator-know-include-re

RE: renal cell cancer in connection witrh agent orange

by Cdphillips on Thu Jul 07, 2016 03:43 PM

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On Jul 22, 2015 5:18 AM vangie wrote:

Never ever give up.  Get an attorney and let him fight it out!  Attorneys get 20% of what very you get and I would keep going.  Vietnam vets have a saying "deny, deny ,deny until you die.  I have new research if your interested that just came out this year.  See my facebook account.  Suzan Mobley Rhodes.  Contact me and ill help if I can

i am interested in new research of AO and RCC..  my husband has RCC.  diagnosed in 2009 and they removed his right kidney.  came back 3/14 and removed a third of left kidney and his left adrenal gland.   came back in 8/14 it is in his right adrenal, 2 places on his back and on a left rib.   i tried to get on your facebook page but no luck.   any help is appreciated.   He was in Okinawa 1/67 to 7/68 with a TDY to  Korea for 30 days 4/68 on DMZ

RE: renal cell cancer in connection witrh agent orange

by rafaelmiamiva on Thu Sep 08, 2016 04:21 PM

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On Jun 11, 2014 2:10 AM hupkovich wrote:

I am a vietnam vet(1969-1970) and was exposed to agent orange in CuChi. I developed renal cell cancer and applied for comp to the VA. I was denied. Has anyone else had this problem?

I was also denied compensation for renal cell carcinoma. Was in 'Nam 66-67.  Renal Cell carcinoma is not in the list. 
Go to (copy/paste) 
https://www.change.org/p/let-your-legislator-know-include-re

and sign petition.

RE: renal cell cancer in connection witrh agent orange

by oilandgas on Mon Sep 19, 2016 08:43 PM

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VA found a small spot on my husband's kidney back in 2010 said they would just watch it on and off for 5 years. In 2015 it had started to grow. About the time the VA was getting into so much trouble. They were going to remove his kidney and I refused to go to the Dallas VAr  since we had medicare and a supplement. The urolgist told us about Interventional Radiolgy. If the tumor is not more than 3 cm they go through the back take a biopsy and then burn the tumor for 9 to 10 minutes. No chemo not losing your kidney and a 95% sucess rate. If it comes back they can do it again. The Doctor who does this is amazing. We did this at the Baylor Scott and White in Plano. My husband was in Vietnam in 1967-1968, A combat engineer and they sprayed agent orange on both sides of them as they built bridges and roads. His was renal cancer and I tell this to anyone who might have a tumor on their kidney or might have one in the future. This is done as an out patient and he will monitor it every 6 months for the first 2 years then once a year then after 5 we pray he will still be cancer free. This was done on July 7, 2016.

RE: renal cell cancer in connection witrh agent orange

by Cdphillips on Fri Aug 04, 2017 07:24 PM

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On Jul 22, 2015 5:18 AM vangie wrote:

Never ever give up.  Get an attorney and let him fight it out!  Attorneys get 20% of what very you get and I would keep going.  Vietnam vets have a saying "deny, deny ,deny until you die.  I have new research if your interested that just came out this year.  See my facebook account.  Suzan Mobley Rhodes.  Contact me and ill help if I can

I would like to have any information you have on the Renal Cell connection with AO.  My husband was in the Army Security Agency in 1968 stationed in Okinawa.  AO was stored there as well as used there.  He also spent 30 days on the DMZ in Korea.   He has his right kindey removed in 2009 and a third of his left kidney and left adrenal gland rmoved in March of 2014.  Came back in October of 2014 in his right adrenal gland, 2 places on his spine and one place on his left 4th rib.   We have been denied twice.  Gearing up to go at it again.  need all the help i can get.  Thank you Cheryl

RE: renal cell cancer in connection witrh agent orange

by ltobleck12 on Thu Sep 14, 2017 12:24 AM

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Ms Rhodes,  just happened to find this site on AO and RCC/Kidney cancer. Nam vet of 67-68 with one kidney removed in 2000 and now mastizized to RCC/Kidney cancer omn bone, liver and other glands. have filed and been denied as RCC/Kidney Clear Cell cancer is not a presumptive cancer for AO. If you still have this updated info could you forward to me as supportive documents when I file my appeal.

Thank You,

Larry A. Tobleck

ltobleck@aol.com

RE: renal cell cancer in connection witrh agent orange

by Doug1026 on Mon Oct 09, 2017 05:55 PM

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I had the same problem. The local VSO told me not to appeal, as it may impact my P&T. I assume the VA doesn't  want anyone making too much noise about this. I contacted my congressman and was told they would help after I appealed and was denied again.

RE: renal cell cancer in connection witrh agent orange

by Doug1026 on Mon Oct 09, 2017 05:58 PM

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Do you have any statistics on how many Korean or Vietnam Vets have been diagnosed with renal cell carcinoma? 

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