Treatment Center Recommendations

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Treatment Center Recommendations

by Bettysdaughter on Fri Jul 04, 2014 05:58 PM

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We live near Cleveland, Ohio.  My mom has stage iv pc.  What treatment institutions have people used in our area/doctors and what success have you had?  My mom is still recovering from surgery -- where they found it had turned from operable to stage iv so we see an oncologist we have been referred to by our University Hospital surgeon.  Please give me any recommendations/comments/assistance you can if you have experience.  When we asked the surgeon about Cancer Centers of America -- we have seen on tv, he basically said they are a "for profit" organization and while the doctors are probably very good, they probably can't do any more for my mom that the hospitals/doctors/treatment centers in our area.  PLEASE PROVIDE ANY HELP YOU CAN.  I am very desparate to keep my mother with me as long as I can for me and my kids (call me selfish) but I also don't want to have her time left miserable. 

thank you all for your advice, comments, stories -- especially those positive ones where pc goes into remission!  Those have been my saving grace.

RE: Treatment Center Recommendations

by cb531 on Sat Jul 05, 2014 02:34 AM

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Hi Betsy I don't know the answer but am curious too. My mom goes to a great big hospital here in long island NY. They now took her off chemo said her body can't take anymore after 20 months. She asked my sister if the drs giving up will we taker her to the treatment centers of America. I really don't know if they would take her or if my mom's body can take anymore. I hope someone here can give us some answers.

RE: Treatment Center Recommendations

by murf99 on Sat Jul 05, 2014 06:21 AM

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My wife, Kathy, is a Stage IV pc patient using a therapy from Dr. Ben Chue in Seattle. He is very willing to work with your oncologist to have them administer the "Chue Protocol" for your loved one. Kathy is 58 and was diagnosed on Dec. 23, 2013. After testing (CT, needle biopsy & PET Scan, CA 19-9 = 23,052) she had one full dose of folfirinox at Kaiser in Calif. but they held out no hope for her. Hundreds of hours searching on the internet led to my discovery of Dr. Chue. We left Kaiser for a chance at survival with Dr. Chue, who's longest surviving Stage IV pc patient is 7.5 years after diagnosis and 5.5 years cancer free. Kathy arrived at Dr. Chue's with a CA 19-9 of 40,820 and after 15 weekly treatments (Gemzar & Paclitaxel) her CA 19-9 is  68. Another Stage IV patient there started with a CA 19-9 of 218,219 and after 21 months of treatment has a CA 19-9 of 53. Dr. Chue does not shy away from Stage IV patients. If you'd like more info please contact me at   murf_lef  at  firenza-llc  dot  com. I'd be glad to send you more info.  Murf  

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