MDS

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MDS

by mdsMAN on Wed Aug 06, 2014 09:30 PM

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Good afternoon.  I was diagnosed with MDS, Myelodysplastic Syndrome, about 2 years ago.  I had a stem cell transplant in November 2013. I am looking for someone with the same thing.

Thank you.

RE: MDS

by Mlupita on Wed Oct 26, 2016 09:40 PM

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Hi mdsMAN- Wondering how you are doing? My 78 yo dad was just diagnosed with MDS last week (10/22/16). He was previously diagnosed with MF, but when his dr. Wasn't monitoring him on Jakafi, I decided to get him a second opinion, and that's when/how we found out he had MDS. Dad is now on Aranesp, and having blood draws every 2 weeks to check progress. Would be interested in chatting and sharing knowledge with you or anyone else on the site who has MDS. -Lupita

RE: MDS

by Sonyberre on Thu Jan 03, 2019 02:24 PM

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Hello! Did you ever get responses or find something that worked for your dad my gayjee72, was recently diagnosed with MDS.
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