Stage 1V Pancreatic Cancer

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Stage 1V Pancreatic Cancer

by lestom on Mon Aug 25, 2014 05:53 PM

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I have been married to To for forty two years and we were told that Tom 66yrs has Pancreatic Cancer, it is stage 1V, the prognosis is six months.

We are both devasted, I want to know all I can on the subject, but my husbans does not, he thinks all will be alright, I know better though.

RE: Stage 1V Pancreatic Cancer

by bobss396 on Mon Aug 25, 2014 06:14 PM

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My wife Barbara was the same way, didn't want to explore care options, didn't want me or anyone else to play doctor. So I respected her wishes.

She was a stage 2 when diagnosed, so maybe there was some hope for her then with alternative treatments. But once it hits stage 4... treatment options are limited.

I have some guilt over not being a little more forceful over looking for more information, but she was fully capable about making her own decisions at that time.

RE: Stage 1V Pancreatic Cancer

by lestom on Mon Aug 25, 2014 06:28 PM

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I had to ask what stage Tom's cancer was at, they didn't tell until then.

Tom is starting Chemo in a weeks time, I'am praying it will give us some extra time together. 

RE: Stage 1V Pancreatic Cancer

by Octoberglory on Mon Aug 25, 2014 06:52 PM

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I feel your pain--our 45th wedding anniversary is next February--my husband was able to have the Whipple on 7/30 but remains in hospital since except for 4 days home. We were told it was stage 2with lymph node metastasis but looking online appears to be more like 3. We were just on the verge of retiring to our dream home close to the Delaware shore--savor every moment and fight like crazy!

RE: Stage 1V Pancreatic Cancer

by bobss396 on Mon Aug 25, 2014 07:29 PM

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On Aug 25, 2014 6:52 PM Octoberglory wrote:

I feel your pain--our 45th wedding anniversary is next February--my husband was able to have the Whipple on 7/30 but remains in hospital since except for 4 days home. We were told it was stage 2with lymph node metastasis but looking online appears to be more like 3. We were just on the verge of retiring to our dream home close to the Delaware shore--savor every moment and fight like crazy!

Barbara and I were on track to retire at age 62 in 2017. Married 13 days shy of 31 years... we was robbed. She did fight the fight but lost.

I don't know what to do any more and I'll push my retirement out a few years. Next year I can collect her SS, so that's something at least.

RE: Stage 1V Pancreatic Cancer

by lestom on Mon Aug 25, 2014 08:07 PM

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On Aug 25, 2014 7:29 PM bobss396 wrote:

On Aug 25, 2014 6:52 PM Octoberglory wrote:

I feel your pain--our 45th wedding anniversary is next February--my husband was able to have the Whipple on 7/30 but remains in hospital since except for 4 days home. We were told it was stage 2with lymph node metastasis but looking online appears to be more like 3. We were just on the verge of retiring to our dream home close to the Delaware shore--savor every moment and fight like crazy!

Barbara and I were on track to retire at age 62 in 2017. Married 13 days shy of 31 years... we was robbed. She did fight the fight but lost.

I don't know what to do any more and I'll push my retirement out a few years. Next year I can collect her SS, so that's something at least.

I need to know all about my enemy PC.

Like you, I could visualise my husband and me holding hands and walking into the sunset.

I know we don't have much time together, he has yet to have Chemo and he is just tired all the time, I wonder what he will be like when he does start.

My problem is Tom thinks everything will turn out well, when I know it won't.

RE: Stage 1V Pancreatic Cancer

by lestom on Mon Aug 25, 2014 08:15 PM

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On Aug 25, 2014 7:29 PM bobss396 wrote:

On Aug 25, 2014 6:52 PM Octoberglory wrote:

I feel your pain--our 45th wedding anniversary is next February--my husband was able to have the Whipple on 7/30 but remains in hospital since except for 4 days home. We were told it was stage 2with lymph node metastasis but looking online appears to be more like 3. We were just on the verge of retiring to our dream home close to the Delaware shore--savor every moment and fight like crazy!

Barbara and I were on track to retire at age 62 in 2017. Married 13 days shy of 31 years... we was robbed. She did fight the fight but lost.

I don't know what to do any more and I'll push my retirement out a few years. Next year I can collect her SS, so that's something at least.

I live in the England, I found this site and read some of the comments and coild relate to the honest no holds barred info.

RE: Stage 1V Pancreatic Cancer

by Hussy on Mon Aug 25, 2014 08:24 PM

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Here are some other sites I have found very helpful in terms of education myself about this loathesome disease:

Johns Hopkins Pancreas Cancer Discussion Page

http://pathology.jhu.edu/pancreas_chat/

Association of Online Cancer Resources Pancreas Cancer Page

http://listserv.acor.org/scripts/wa-ACOR.exe?A0=PANCREAS-ONC

NCCN Guidelines for Patients with Pancreatic Cancer

http://www.nccn.org/patients/guidelines/pancreatic/index.htm

Pancreatic Cancer Action Network:

http://www.pancan.org/

Best of luck to you and your husband

RE: Stage 1V Pancreatic Cancer

by lestom on Mon Aug 25, 2014 08:54 PM

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On Aug 25, 2014 8:24 PM Hussy wrote:

Here are some other sites I have found very helpful in terms of education myself about this loathesome disease:

Johns Hopkins Pancreas Cancer Discussion Page

http://pathology.jhu.edu/pancreas_chat/ "" target="_blank" rel="nofollow">http://pathology.jhu.edu/pancreas_chat/ " target="_blank" rel="nofollow">http://pathology.jhu.edu/pancreas_chat/

Association of Online Cancer Resources Pancreas Cancer Page

http://listserv.acor.org/scripts/wa-ACOR.exe?A0=PANCREAS-ONC &X=3D3F636F558CC104B8&Y=sahopkin%40onebox.com"" target="_blank" rel="nofollow">http://listserv.acor.org/scripts/wa-ACOR.exe?A0=PANCREAS-ONC target="_blank" rel="nofollow">http://listserv.acor.org/scripts/wa-ACOR.exe?A0=PANCREAS-ONC

NCCN Guidelines for Patients with Pancreatic Cancer

http://www.nccn.org/patients/guidelines/pancreatic/index.htm l"" target="_blank" rel="nofollow">http://www.nccn.org/patients/guidelines/pancreatic/index.htm target="_blank" rel="nofollow">http://www.nccn.org/patients/guidelines/pancreatic/index.htm

Pancreatic Cancer Action Network:

http://www.pancan.org/ "" target="_blank" rel="nofollow">http://www.pancan.org/ " target="_blank" rel="nofollow">http://www.pancan.org/

Best of luck to you and your husband

Thank you Hussy, I want to get all the info I can, I will look at the links you have given.

RE: Stage 1V Pancreatic Cancer

by Carien on Tue Aug 26, 2014 10:25 AM

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On Aug 25, 2014 5:53 PM lestom wrote:

I have been married to To for forty two years and we were told that Tom 66yrs has Pancreatic Cancer, it is stage 1V, the prognosis is six months.

We are both devasted, I want to know all I can on the subject, but my husbans does not, he thinks all will be alright, I know better though.

Hi Lestom,

I was given a grim prognosis too, back in Feb of 2014. Could not digest food anymore, could hardly walk, always in pain. 
But you never know how things can turn out. I was started on Folfirinox, even though I was considered probably too weak to endure it, but it enabled me to start eating again bit by bit because the tumor let go of my stomach thanks to the poison of the chemo. I do lots of complementary things, eat extremely healthy, had radiation therapies on pancreas and livermetastase,  and except for low white and red bloodcells I am ok at the moment. (I do still have the tumor on my pancreas but that seems dormant.....)
When first diagnosed I thought I could never travel again, but in the last year I have made a few beautiful trips to the mountains etc. I am even in the process of starting to teach again, and starting a campaign for my dr (a surgeon for PC) who does research in immunotherapy for PC.

You never know how things may turn out.
I would say if you and your husband feel like working on trying to heal as much as possible, go for it and do not give up hope.
If you do: find the best doctor you can, on a good (university) hospital with a lot of experience in pancreatic cancer.

I wish you all the strength and positivity you need for this path, and if you decide not to go for it but to let things take it natural course, I wish you and your husband peace of mind.

Carien

PS I am well aware of how fast it can go, my father died 3 months after his diagnosis of phase IV PC, and to make it worse, he died only 3 weeks before I got my diagnosis. 

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