LIVING with brain cancer

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RE: LIVING with brain cancer

by BogieMon on Mon Jul 20, 2015 04:35 PM

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Good luck to your DH. Dad's tumor was near his speech and memory areas, too (left temporal lobe). It was problems with his speech that led to the discovery of the tumor. While Dad has yet to have any headaches or pain or physical problems (except for worsening of a tremor in his right hand that he's always had) he started saying the wrong words or not being able to say the word he was thinking. If he said the wrong word, he didn't notice at all, because he was (and is) always thinking the right word, although he couldn't get his mouth to say it. These word recall problems and the tremor greatly improved after surgery and during radiation, but they are back now. He caught an upper respiratory infection right after his radiation ended. He ran a temperature for almost a solid week before antibiotics finally defeated the infection. I wonder if the fever didn't spur some swelling.

RE: LIVING with brain cancer

by BogieMon on Mon Jul 20, 2015 04:39 PM

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Oh, I also meant to add that I relieve my stress somewhat with adult coloring books. (And by adult, I don't mean racy, just coloring books that are more elaborate than children's books.) While I'm coloring I'm able to block out all my worrisome thought. And you are so right about worrying only meaning you have to deal with bad things twice. Mom and I are both trying to work on it.

RE: LIVING with brain cancer

by veracityW on Mon Jul 20, 2015 07:28 PM

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i LOVE coloring books!!

RE: LIVING with brain cancer

by discomommy on Thu Jul 23, 2015 12:31 AM

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am thrilled to read this.. I am newly diagnosed with GMF and had it all removed from the parietal lobe.. starting radiation monday wand temodar at the same time.  also looking into immunotherapy and nutritional support but need to make sure all DRs are on board which is the hard part....its 3 weks today since my craniotomy and i went back to work as a hairdresser today--just a little.  gotta start somewhere right???best of luck and keep on keppin on!!

RE: LIVING with brain cancer

by elliep on Thu Jul 23, 2015 03:02 AM

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That is awesome news.  You are truly an inspiration and a powerful voice on this website.  I love to read your posts.  My husband is 14 months out with a GBM and we are hanging in there.  He is doing pretty well, and we try to enjoy every day.  Best of luck to you as you go back on your hike.  You have an army of people wishing you well.  Thank you again for your voice and sound advice on this website.  I know it has helped me.  Best, Ellie P

RE: LIVING with brain cancer

by BogieMon on Thu Jul 23, 2015 03:06 AM

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Good for you for going back to work! I wish you the very best going forward with your treatment!

RE: LIVING with brain cancer

by ub40acdc on Sat Jul 25, 2015 10:35 AM

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On Oct 12, 2014 12:35 AM Dodgerblue wrote:

I thought I would try to start a new thread dedicated to recognizing all of the amazing things that can happen, be experienced or achieved after a brain tumor/cancer diagnosis.  Many threads are filled with terrified newly diagnosed or others who have ended their journey, and this site serves as a great forum to have their questions answered or share their painful loss and recieve support from those who have walked a similiar path. However, between the beginning and end there is still life to live.  So feel free to share the good times.  Thanks,

Dodger

Being diagnosed with a brain tumor is devastating news but however you choose you most rise above the devastation im 26 years old  I look at life in a different way now  I try to get up early in the morning to see the sun rise its the small things in life that brings me joy like a bird flying pass I still have my good days and bad days when we are young we think where bulletproof and so focus on making money we forget two see the joy in small thing I like to help others where I can that brings me joy also   thanks Dodger

RE: LIVING with brain cancer

by discomommy on Sat Jul 25, 2015 05:37 PM

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I had my gross total resection  of the gbm in the right parietal lobe on July 2 and will be starting temodar and radiation aug 3..I ewnt tyo integrative medicine in mt kisco ny last week and paid 1800 for blood work and other testing and then was told it would be approximatley 6900 for 6 months of  immunotherapy treatments including vitamin c drips, anti oxidants, supplements, food plan (not including food) yada yada---im on the fence

RE: LIVING with brain cancer

by veracityW on Sat Jul 25, 2015 07:05 PM

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On Jul 25, 2015 5:37 PM discomommy wrote:

I had my gross total resection  of the gbm in the right parietal lobe on July 2 and will be starting temodar and radiation aug 3..I ewnt tyo integrative medicine in mt kisco ny last week and paid 1800 for blood work and other testing and then was told it would be approximatley 6900 for 6 months of  immunotherapy treatments including vitamin c drips, anti oxidants, supplements, food plan (not including food) yada yada---im on the fence

the "integrative medicine" sounds like a ripoff to me. $1800 doe bloodwork? gimme a break... don't throw good money after bad. if you want to do a healthy diet, you can find info for FREE on the internet. caveat emptor, however.

RE: LIVING with brain cancer

by discomommy on Sat Jul 25, 2015 07:20 PM

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i do not disagree at all- its just sad that the holiostic and mecial communities cannot join hands to save us without robbing us blind

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