Silly question?

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Silly question?

by DJWINZ on Mon Oct 13, 2014 01:29 PM

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Hello, I haven't been on in quite some time. We have just recently retired (hubby, US Army, 37 yrs) and have relocated to San Antonio for his new job. He just bought me a beautiful home and I am enjoying the climate here. So, I have a new bunch of docs and am getting my pet scan done here on tues. My silly question is My cancer is stage four pancreatic cancer. I was on five fu for 11 months, recent scans showed Clean pancreas, clean everything except for my bone in my hip. Soooooo, why don't I get bone chemo treatments from now on since my pancreas is fine? My ca 19-9 is in the 9,000s....... Does anyone know the answer to this? I am seeing an orthopedic doc tues also..... Thanks in advance!!!!!!

RE: Silly question?

by maxxschiken on Mon Oct 13, 2014 05:45 PM

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Let me see if I'm understanding this correnctly.  So you have been on 5Fu alone with no other components for 11 months and this treated the pancreatic tumor correct?  Is the cancer in your hip bone the reason why you are diagnosed with stage 4?  At your initial diagnosis, where was the cancer other than your pancreas?   

If your cancer antigen's are still at 9000 where were these numbers 11 months ago?   

RE: Silly question?

by maxxschiken on Mon Oct 13, 2014 05:48 PM

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oh...i just went back and read your previous posts.  So your CA19-9's went all the way down to 80 or lower and now are back up to 9000.  I'm sure if your current chemo isn't effective at bring this number down they will change it.  Has the radiation to the hip bone cancer provided you the pain relief intended with this type of treatment? 

RE: Silly question?

by DJWINZ on Mon Oct 13, 2014 09:02 PM

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Didn't mean to confuse you. I've been on this journey for 20 months now, and the whole time I have had really good scans after the initial one which showed masses all over. I had been on abraxane Gemzar, but had a bad reaction to the abraxane, so they put me on Gemzar. Then in aug they noticed the bone was looking bad, so they stopped Gemzar and did 5 quick rounds of radiation. It's been about a month now with no treatments due to the move. I go for a round of Gemzar thurs, but am hoping they can do something different to get my #s down. I'm having squeezing pain in my ribs lately. Glad to be getting a scan on wed.... Thanks for your input, it is always good to hear from you. I did have some relief from the radiation, but my left leg has been excruciating . Doc took X-rays of area and I see a orthopedic doc tomorrow.

RE: Silly question?

by Hussy on Tue Oct 14, 2014 04:21 PM

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I've been following this thread because my husband's last CT revealed a lesion on his pelvic bone.  The tumor on his pancreas has remained stable.  He's getting a pet scan on Thursday to check that out.  I'm wondering if it's metastastis or not.  Radiologist seems to think it could be; surgeon is less sure.  Wondering what impact this will have on next treatment choice.  We were going to be starting up with chemo again (Gemzar & Abraxane) but now I'm wondering if radiation will be on the table again. 

RE: Silly question?

by maxxschiken on Tue Oct 14, 2014 09:35 PM

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My wife's very first recurrence was last January when they too found a lesion on the lumbar region of her spine. This came after being in remission with no chemotherapy treatments for nearly 21 months. The lesion caused excruciating pain to her lower back, hips and thighs where the strongest narcotics were taken but provided only a little relief. The narcotics were so strong they caused havoc to her digestive system where little food could be kept down. She began Folfox chemotherapy, a modification of Folfitinox minus it's strongest component irenotecan in mid-January. After only three rounds the pain vanished and by her 4th month of treatment, PET/CT could no longer locate the lesion. We optioned against radiation with hopes the chemo would shrink lesion and it did. Her quality of life on Folfox from January to September was excellent.
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